Contributions of patient and citizen researchers to ‘Am I the right way up?’ study of balance in posterior cortical atrophy and typical Alzheimer’s disease

• Published in: Dementia (London, England) Vol. 17; no. 8; pp. 1011 - 1022
• Main Authors: Crutch, Sebastian J, Yong, Keir XX, Peters, Amy, Ocal, Dilek, Kaski, Diego, Gonzalez, Aida Suarez, Ryan, Natalie, Ball, Simon, Harrison, Charlie R, Murphy, Charlie, Hulme, Pam, Phillips, Isabel, Hulme, Gaynor, Brown, Andrew, Brown, Lu, Riley, Peter, Ramsey, Lynn, Woods, Anthony, Day, Brian
• Format: Journal Article
• Language: English
• Published: London, England SAGE Publications 01.11.2018
• Subjects: Alzheimer Disease - classification; Alzheimer Disease - psychology; Atrophy - physiopathology; Cerebral Cortex - physiopathology; Community Participation; Humans; Postural Balance - physiology; Retrospective Studies; balance; vestibular; Alzheimer's disease; patient and public involvement

The current report describes the journey from the sharing of a single, extraordinary experience during a support group conversation to the development of a novel scientific investigation of balance problems in a rarer form of dementia. The story centres around the involvement of people living with o...