Unmet needs of the Iranian mothers of the children with cancer and the identification of the related factors: A descriptive-correlational study

Introduction Parents’ caring responsibilities lead to imbalances in roles, functions, and emotions, confronting them with new needs that, if left unaddressed, have adverse consequences for the lives of all family members. Therefore, this study aimed to identify the significant unmet needs of the mot...

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Published inFrontiers in psychology Vol. 13; p. 964424
Main Authors Khanali Mojen, Leila, Rassouli, Maryam, Ashrafizadeh, Hadis, Fathollah Zadeh, Ensieh, Dadashi, Nasrin, Khoubbin Khoshnazar, Tahereh Alsadat, Pourazarhagh, Parand, Nasrabadi, Tahereh
Format Journal Article
LanguageEnglish
Published Frontiers Media S.A 23.09.2022
Subjects
cancer
care
caregivers
child/children
parents/family
Psychology
unmet needs
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Abstract Introduction Parents’ caring responsibilities lead to imbalances in roles, functions, and emotions, confronting them with new needs that, if left unaddressed, have adverse consequences for the lives of all family members. Therefore, this study aimed to identify the significant unmet needs of the mothers of the children with cancer. Materials and methods This descriptive cross-sectional study was conducted in Tehran in 2019–2020 on 215 mothers of the children with cancer visiting the hospitals affiliated with medical universities. The study population was selected through convenience sampling method and according to the inclusion criteria. The FIN questionnaire consisting of two subscales, FIN-Import and FIN-Fulfillment, with 40 items, was used to collect data. Results The mean age of the mothers participating in the study was 34.77 ± 7.91 years, and the mean age of the children with cancer was 9.77 ± 14.37 years. The mean scores of FIN-Import and FIN-Fulfillment were 92.88 ± 7.97 and 70.82 ± 17.89, respectively. The phrase “To know the facts concerning my child’s prognosis” with 23%, and the phrase “To be told about the people who could help with problems” with 22.8% were the most common unmet needs reported by the parents. Conclusion The present study indicated that caring for a child with cancer had confronted mothers with new needs to be met; however, not all of these needs had been satisfied. Awareness about the unmet needs of these mothers and planning to manage those needs can lay the groundwork to improve their health.
AbstractList IntroductionParents’ caring responsibilities lead to imbalances in roles, functions, and emotions, confronting them with new needs that, if left unaddressed, have adverse consequences for the lives of all family members. Therefore, this study aimed to identify the significant unmet needs of the mothers of the children with cancer.Materials and methodsThis descriptive cross-sectional study was conducted in Tehran in 2019–2020 on 215 mothers of the children with cancer visiting the hospitals affiliated with medical universities. The study population was selected through convenience sampling method and according to the inclusion criteria. The FIN questionnaire consisting of two subscales, FIN-Import and FIN-Fulfillment, with 40 items, was used to collect data.ResultsThe mean age of the mothers participating in the study was 34.77 ± 7.91 years, and the mean age of the children with cancer was 9.77 ± 14.37 years. The mean scores of FIN-Import and FIN-Fulfillment were 92.88 ± 7.97 and 70.82 ± 17.89, respectively. The phrase “To know the facts concerning my child’s prognosis” with 23%, and the phrase “To be told about the people who could help with problems” with 22.8% were the most common unmet needs reported by the parents.ConclusionThe present study indicated that caring for a child with cancer had confronted mothers with new needs to be met; however, not all of these needs had been satisfied. Awareness about the unmet needs of these mothers and planning to manage those needs can lay the groundwork to improve their health.
Introduction Parents’ caring responsibilities lead to imbalances in roles, functions, and emotions, confronting them with new needs that, if left unaddressed, have adverse consequences for the lives of all family members. Therefore, this study aimed to identify the significant unmet needs of the mothers of the children with cancer. Materials and methods This descriptive cross-sectional study was conducted in Tehran in 2019–2020 on 215 mothers of the children with cancer visiting the hospitals affiliated with medical universities. The study population was selected through convenience sampling method and according to the inclusion criteria. The FIN questionnaire consisting of two subscales, FIN-Import and FIN-Fulfillment, with 40 items, was used to collect data. Results The mean age of the mothers participating in the study was 34.77 ± 7.91 years, and the mean age of the children with cancer was 9.77 ± 14.37 years. The mean scores of FIN-Import and FIN-Fulfillment were 92.88 ± 7.97 and 70.82 ± 17.89, respectively. The phrase “To know the facts concerning my child’s prognosis” with 23%, and the phrase “To be told about the people who could help with problems” with 22.8% were the most common unmet needs reported by the parents. Conclusion The present study indicated that caring for a child with cancer had confronted mothers with new needs to be met; however, not all of these needs had been satisfied. Awareness about the unmet needs of these mothers and planning to manage those needs can lay the groundwork to improve their health.
Author Dadashi, Nasrin
Nasrabadi, Tahereh
Ashrafizadeh, Hadis
Fathollah Zadeh, Ensieh
Khanali Mojen, Leila
Rassouli, Maryam
Khoubbin Khoshnazar, Tahereh Alsadat
Pourazarhagh, Parand
AuthorAffiliation 5 Department of Medical Surgical Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences , Tehran , Iran
6 School of Nursing and Midwifery, Iran University of Medical Sciences , Tehran , Iran
1 Pediatric Congenital Hematologic Disorders Research Center, Research Institute for Children’s Health, Shahid Beheshti University of Medical Sciences , Tehran , Iran
4 College of Nursing and Health Sciences, Flinders University , Adelaide, SA , Australia
2 Cancer Research Center, Shahid Beheshti University of Medical Sciences , Tehran , Iran
8 Department of Nursing, Faculty of Nursing and Midwifery, Tehran Medical Sciences, Islamic Azad University , Tehran , Iran
3 Student Research Committee, Faculty of Nursing, Dezful University of Medical Sciences , Dezful , Iran
7 Mofid Hospital, Tehran Medical Sciences Branch, Islamic Azad University , Tehran , Iran
AuthorAffiliation_xml – name: 1 Pediatric Congenital Hematologic Disorders Research Center, Research Institute for Children’s Health, Shahid Beheshti University of Medical Sciences , Tehran , Iran
– name: 2 Cancer Research Center, Shahid Beheshti University of Medical Sciences , Tehran , Iran
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Cites_doi 10.31557/APJCP.2019.20.6.1865
10.18502/ijpho.v9i3.1167
10.1002/pon.1757
10.1007/978-3-319-22912-6_20
10.3390/ijerph16245145
10.1111/jocn.12122
10.1097/00002820-200401000-00003
10.1186/s13054-016-1208-6
10.1371/journal.pone.0082570
10.1111/ecc.12441
10.1159/000381966
10.1016/j.jcrc.2010.03.001
10.1186/s13063-014-0534-8
10.1590/S0080-623420130000500017
10.1186/s12955-016-0428-4
10.5812/compreped.65545
10.29252/ijn.31.111.40
10.1111/ecc.12743
10.1002/pon.4914
10.1191/0969733002ne499oa
10.1016/j.acap.2014.08.006
10.1186/s41687-019-0092-7
10.4103/jehp.jehp_300_19
10.1097/NCC.0b013e318263f28e
10.1188/10.ONF.E50-E57
10.1097/NCC.0000000000000902
10.1186/s12885-020-07721-4
10.1177/1043454214563407
10.3332/ecancer.2021.1220
10.1891/1061-3749.3.2.109
10.3109/0284186X.2010.529821
10.1606/1044-3894.4097
10.1177/1043454214563757
10.1002/1097-0142(19880801)62:3<627::aid-cncr2820620331>3.0.co;2-1
10.1186/1447-056X-10-14
10.1016/j.ejon.2014.03.002
10.1016/j.ejon.2012.07.010
10.1111/ecc.12174
10.4103/2347-5625.158019
10.1017/s1478951503030475
10.1177/1043454217723862
10.1111/j.1365-2702.2006.01297.x
10.1111/scs.12463
10.1007/s00520-016-3327-7
10.1016/j.pedn.2018.11.003
10.1002/pon.3854
10.1097/PPO.0b013e31818d894a
10.1002/cncr.29223
10.1177/1043454207304907
10.1016/S0885-3924(03)00327-0
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Copyright Copyright © 2022 Khanali Mojen, Rassouli, Ashrafizadeh, Fathollah Zadeh, Dadashi, Khoubbin Khoshnazar, Pourazarhagh and Nasrabadi. 2022 Khanali Mojen, Rassouli, Ashrafizadeh, Fathollah Zadeh, Dadashi, Khoubbin Khoshnazar, Pourazarhagh and Nasrabadi
Copyright_xml – notice: Copyright © 2022 Khanali Mojen, Rassouli, Ashrafizadeh, Fathollah Zadeh, Dadashi, Khoubbin Khoshnazar, Pourazarhagh and Nasrabadi. 2022 Khanali Mojen, Rassouli, Ashrafizadeh, Fathollah Zadeh, Dadashi, Khoubbin Khoshnazar, Pourazarhagh and Nasrabadi
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This article was submitted to Psycho-Oncology, a section of the journal Frontiers in Psychology
Reviewed by: Carlo Maria Scornajenghi, Umberto 1 Hospital, Italy; Vincenzo Asero, Consultant, Rome, Italy
Edited by: Francesco Del Giudice, Sapienza University of Rome, Italy
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References Cui (B9) 2014; 23
Fergus (B12) 2015; 16
Rietveld (B57) 2019; 3
Moridi (B44) 2018; 6
So (B62) 2013; 36
Sklenarova (B61) 2015; 121
Rassouli (B53) 2016
Vasli (B65) 2014; 19
Hwang (B24) 2003; 1
Zimmermann (B69) 2015; 10
Mojen (B43) 2018; 19
So (B63) 2014; 18
Jadidi (B25) 2013; 15
Loureiro (B37) 2013; 47
Nikfarid (B49) 2015; 32
Arabiat (B5) 2013; 22
Lyu (B38) 2019; 44
Stajduhar (B64) 2011; 43
Friðriksdóttir (B14) 2011; 50
Khademi (B28) 2022
Deeken (B10) 2003; 26
Kerr (B27) 2007; 24
Nachshen (B47) 2005; 11
Aziza (B6) 2019; 28
Mohd Nordin (B42) 2019; 16
Khademi (B29) 2019; 9
Borjalilu (B7) 2017; 6
Kim (B30) 2015; 2
Akechi (B4) 2011; 20
Ferlay (B13) 2018
Lie (B34) 2018; 27
Hashemi (B21) 2014
Rassouli (B54) 2017
Salmani (B59) 2014; 23
Ahmadi Pishkuhi (B1) 2018; 9
Regan (B55) 2015; 24
Bužgová (B8) 2016; 25
Miller (B41) 2013; 8
Rozveh (B58) 2017; 11
Ahmadi (B2) 2018; 31
Seyedamini (B60) 2011; 24
Ahmadnia (B3) 2021; 1
Hallström (B19) 2002; 9
Edib (B11) 2016; 14
Hemati (B22) 2016; 4
Munsell (B46) 2010; 37
Hasegawa (B20) 2016; 24
Ji (B26) 2018; 35
Mendenhall (B40) 2018; 92
Panganiban-Corales (B51) 2011; 10
(B16) 2017
Kristjanson (B32) 1995; 3
Yin (B68) 2004; 27
Golant (B17) 2008; 14
Pirbodaghi (B52) 2016; 9
Koohkan (B31) 2019; 8
Rezaei (B56) 2018; 20
Litt (B35) 2015; 15
Li (B33) 2013; 17
Nemati (B48) 2018; 32
Wong (B66) 2006; 15
Houts (B23) 1988; 62
Motlagh (B45) 2019; 20
Okamura (B50) 2021; 21
(B67) 2018
Haffariyan (B18) 2007; 1
Garrouste-Orgeas (B15) 2010; 25
Maree (B39) 2016; 33
Liu (B36) 2008
References_xml – volume: 20
  year: 2019
  ident: B45
  article-title: Information needs assessment among parents of children with cancer.
  publication-title: Asian Pac. J. Cancer Prev. APJCP
  doi: 10.31557/APJCP.2019.20.6.1865
  contributor:
    fullname: Motlagh
– volume: 9
  start-page: 173
  year: 2019
  ident: B29
  article-title: Caring power of mothers who have a child with cancer and its predictors.
  publication-title: Iran. J. Pediatr. Hematol. Oncol.
  doi: 10.18502/ijpho.v9i3.1167
  contributor:
    fullname: Khademi
– volume: 20
  start-page: 497
  year: 2011
  ident: B4
  article-title: Patient’s perceived need and psychological distress and/or quality of life in ambulatory breast cancer patients in Japan.
  publication-title: Psychooncology
  doi: 10.1002/pon.1757
  contributor:
    fullname: Akechi
– start-page: 317
  year: 2016
  ident: B53
  article-title: Cancer care in countries in transition: The Islamic Republic of Iran
  publication-title: Cancer care in countries and societies in transition
  doi: 10.1007/978-3-319-22912-6_20
  contributor:
    fullname: Rassouli
– volume: 6
  start-page: 228
  year: 2017
  ident: B7
  article-title: The information needs of parents of children with cancer: A qualitative study.
  publication-title: J. Qual. Res. Health Sci.
  contributor:
    fullname: Borjalilu
– volume: 16
  year: 2019
  ident: B42
  article-title: The unmet needs of parents of highly dependent children with cerebral palsy.
  publication-title: Int. J. Environ. Res. Public Health
  doi: 10.3390/ijerph16245145
  contributor:
    fullname: Mohd Nordin
– volume: 23
  start-page: 11
  year: 2014
  ident: B59
  article-title: The burden of caregiver and related factors of oncology patients of shahvali hospital.
  publication-title: Adv. Nurs. Midwife
  contributor:
    fullname: Salmani
– year: 2008
  ident: B36
  publication-title: The status of the needs and service utilization wills of advanced cancer patients and their informal caregivers and service contents of some community health service centers delivery in Shanghai.
  contributor:
    fullname: Liu
– volume: 15
  start-page: 28
  year: 2013
  ident: B25
  article-title: The experiences of parents of children with leukemia: A qualitative research.
  publication-title: J. Arak Univ. Med. Sci.
  contributor:
    fullname: Jadidi
– volume: 11
  start-page: 67
  year: 2005
  ident: B47
  article-title: Empowerment and families: Building bridges between parents and professionals, theory and research.
  publication-title: J. Dev. Disabil.
  contributor:
    fullname: Nachshen
– volume: 1
  start-page: 64
  year: 2007
  ident: B18
  article-title: Comparison of quality of life (and its dimensions) in divorced and non-divorced women and its relationship with demographic characteristics in Shiraz.
  publication-title: Knowl. Res. Appl. Psychol.
  contributor:
    fullname: Haffariyan
– volume: 43
  start-page: 78
  year: 2011
  ident: B64
  article-title: Core aspects of” empowering” caregivers as articulated by leaders in home health care: Palliative and chronic illness contexts.
  publication-title: Can. J. Nurs. Res. Arch.
  contributor:
    fullname: Stajduhar
– volume: 22
  start-page: 531
  year: 2013
  ident: B5
  article-title: Unmet care needs of parents of children with cancer in Jordan: Implications for bed-side practice.
  publication-title: J. Clin. Nurs.
  doi: 10.1111/jocn.12122
  contributor:
    fullname: Arabiat
– volume: 27
  start-page: 17
  year: 2004
  ident: B68
  article-title: The effect of childhood cancer on Hong Kong Chinese families at different stages of the disease.
  publication-title: Cancer Nurs.
  doi: 10.1097/00002820-200401000-00003
  contributor:
    fullname: Yin
– volume: 9
  start-page: 41
  year: 2016
  ident: B52
  article-title: An investigation of factors associated adaptation of mothers to disease of child with cancer based on roy model testing.
  publication-title: Qom Univ. Med. Sci. J.
  doi: 10.1186/s13054-016-1208-6
  contributor:
    fullname: Pirbodaghi
– volume: 6
  start-page: 214
  year: 2018
  ident: B44
  article-title: Parents’ experience of pediatric cancer: A qualitative study.
  publication-title: Chronic Dis. J.
  contributor:
    fullname: Moridi
– volume: 8
  year: 2013
  ident: B41
  article-title: Reasons for unmet need for child and family health services among children with special health care needs with and without medical homes.
  publication-title: PLoS One
  doi: 10.1371/journal.pone.0082570
  contributor:
    fullname: Miller
– volume: 25
  start-page: 592
  year: 2016
  ident: B8
  article-title: Assessing needs of family members of inpatients with advanced cancer.
  publication-title: Eur. J. Cancer Care
  doi: 10.1111/ecc.12441
  contributor:
    fullname: Bužgová
– volume: 10
  start-page: 102
  year: 2015
  ident: B69
  article-title: Intimate relationships affected by breast cancer: Interventions for couples.
  publication-title: Breast Care
  doi: 10.1159/000381966
  contributor:
    fullname: Zimmermann
– volume: 25
  start-page: 634
  year: 2010
  ident: B15
  article-title: Opinions of families, staff, and patients about family participation in care in intensive care units.
  publication-title: J. Crit. Care
  doi: 10.1016/j.jcrc.2010.03.001
  contributor:
    fullname: Garrouste-Orgeas
– volume: 16
  year: 2015
  ident: B12
  article-title: Couplelinks-an online intervention for young women with breast cancer and their male partners: Study protocol for a randomized controlled trial.
  publication-title: Trials
  doi: 10.1186/s13063-014-0534-8
  contributor:
    fullname: Fergus
– volume: 19
  year: 2014
  ident: B65
  article-title: Parents’ participation in taking care of hospitalized children: A concept analysis with hybrid model.
  publication-title: Iran. J. Nurs. Midwifery Res.
  contributor:
    fullname: Vasli
– volume: 47
  start-page: 1129
  year: 2013
  ident: B37
  article-title: Burden in family caregivers of the elderly: Prevalence and association with characteristics of the elderly and the caregivers.
  publication-title: Rev. Esc. Enferm. USP
  doi: 10.1590/S0080-623420130000500017
  contributor:
    fullname: Loureiro
– volume: 14
  year: 2016
  ident: B11
  article-title: Most prevalent unmet supportive care needs and quality of life of breast cancer patients in a tertiary hospital in Malaysia.
  publication-title: Health Qual. Life Outcomes
  doi: 10.1186/s12955-016-0428-4
  contributor:
    fullname: Edib
– volume: 9
  year: 2018
  ident: B1
  article-title: Parents’ experience of caring children with cancer: A qualitative study with phenomenological approach.
  publication-title: J. Compr. Pediatr.
  doi: 10.5812/compreped.65545
  contributor:
    fullname: Ahmadi Pishkuhi
– volume: 31
  start-page: 40
  year: 2018
  ident: B2
  article-title: Care burden and its related factors in parents of children with cancer.
  publication-title: Iran. J. Nurs.
  doi: 10.29252/ijn.31.111.40
  contributor:
    fullname: Ahmadi
– year: 2018
  ident: B13
  publication-title: Global cancer observatory: Cancer today.
  contributor:
    fullname: Ferlay
– volume: 27
  year: 2018
  ident: B34
  article-title: Coping with changes and uncertainty: A qualitative study of young adult cancer patients’ challenges and coping strategies during treatment.
  publication-title: Eur. J. Cancer Care
  doi: 10.1111/ecc.12743
  contributor:
    fullname: Lie
– volume: 28
  start-page: 92
  year: 2019
  ident: B6
  article-title: Unmet supportive care needs and psychological distress among parents of children with cancer in Indonesia.
  publication-title: Psychooncology
  doi: 10.1002/pon.4914
  contributor:
    fullname: Aziza
– volume: 9
  start-page: 203
  year: 2002
  ident: B19
  article-title: An observational study of the level at which parents participate in decisions during their child’s hospitalization.
  publication-title: Nurs. Ethics
  doi: 10.1191/0969733002ne499oa
  contributor:
    fullname: Hallström
– volume: 15
  start-page: 185
  year: 2015
  ident: B35
  article-title: Care coordination, the family-centered medical home, and functional disability among children with special health care needs.
  publication-title: Acad. Pediatr.
  doi: 10.1016/j.acap.2014.08.006
  contributor:
    fullname: Litt
– volume: 11
  year: 2017
  ident: B58
  article-title: Attitudes toward telling the truth to cancer patients in Iran: A review article.
  publication-title: Int. J. Hematol. Oncol. Stem Cell Res.
  contributor:
    fullname: Rozveh
– volume: 3
  start-page: 1
  year: 2019
  ident: B57
  article-title: Psychometric properties of the 45-item supportive care needs survey—partners and caregivers-Dutch (SCNS-P&C45-D) in partners of patients with breast cancer.
  publication-title: J. Patient Rep. Outcomes
  doi: 10.1186/s41687-019-0092-7
  contributor:
    fullname: Rietveld
– year: 2014
  ident: B21
  article-title: Iranian caregivers, silent mediums in caring for relatives suffering from cancer.
  publication-title: Iran. J. Nurs. Midwifery Res.
  contributor:
    fullname: Hashemi
– volume: 8
  year: 2019
  ident: B31
  article-title: Health information needs of families at childhood cancer: A qualitative study.
  publication-title: J. Educ. Health Promot.
  doi: 10.4103/jehp.jehp_300_19
  contributor:
    fullname: Koohkan
– volume: 36
  start-page: E23
  year: 2013
  ident: B62
  article-title: Perceived unmet needs and health-related quality of life of Chinese cancer survivors at 1 year after treatment.
  publication-title: Cancer Nurs.
  doi: 10.1097/NCC.0b013e318263f28e
  contributor:
    fullname: So
– volume: 19
  year: 2018
  ident: B43
  article-title: Pediatric palliative care in Iran: Applying regionalization of health care systems.
  publication-title: Asian Pac. J. Cancer Prev. APJCP
  contributor:
    fullname: Mojen
– volume: 37
  start-page: E51
  year: 2010
  ident: B46
  article-title: Caring for the caregiver
  publication-title: Oncol. Nurs. Forum
  doi: 10.1188/10.ONF.E50-E57
  contributor:
    fullname: Munsell
– year: 2022
  ident: B28
  article-title: Psychometric evaluation of the caring ability of family caregivers of patients with cancer scale-mothers’ version for the mothers of children with cancer
  publication-title: Cancer Nurs.
  doi: 10.1097/NCC.0000000000000902
  contributor:
    fullname: Khademi
– volume: 21
  year: 2021
  ident: B50
  article-title: Unmet supportive care needs and associated factors among young adult cancer patients in Japan.
  publication-title: BMC Cancer
  doi: 10.1186/s12885-020-07721-4
  contributor:
    fullname: Okamura
– volume: 32
  start-page: 314
  year: 2015
  ident: B49
  article-title: Chronic sorrow in mothers of children with cancer.
  publication-title: J. Pediat. Oncol. Nurs.
  doi: 10.1177/1043454214563407
  contributor:
    fullname: Nikfarid
– volume: 1
  start-page: 1
  year: 2021
  ident: B3
  article-title: Survivor and parent engagement in childhood cancer treatment in Iran.
  publication-title: E Cancer Med. Sci.
  doi: 10.3332/ecancer.2021.1220
  contributor:
    fullname: Ahmadnia
– year: 2017
  ident: B16
  publication-title: Institute for health metrics and evaluation, 2301 fifth ave, suite 600, seattle, WA 98121
– volume: 3
  start-page: 109
  year: 1995
  ident: B32
  article-title: Validity and reliability of the family inventory of needs (FIN): Measuring the care needs of families of advanced cancer patients.
  publication-title: J. Nurs. Meas.
  doi: 10.1891/1061-3749.3.2.109
  contributor:
    fullname: Kristjanson
– volume: 50
  start-page: 252
  year: 2011
  ident: B14
  article-title: Family members of cancer patients: Needs, quality of life and symptoms of anxiety and depression.
  publication-title: Acta Oncol.
  doi: 10.3109/0284186X.2010.529821
  contributor:
    fullname: Friðriksdóttir
– volume: 92
  start-page: 183
  year: 2018
  ident: B40
  article-title: Parents of children with mental illness: Exploring the caregiver experience and caregiver-focused interventions.
  publication-title: Soc. J. Contemp. Soc. Serv.
  doi: 10.1606/1044-3894.4097
  contributor:
    fullname: Mendenhall
– volume: 33
  start-page: 9
  year: 2016
  ident: B39
  article-title: The information needs of South African parents of children with cancer.
  publication-title: J. Pediatr. Oncol. Nurs.
  doi: 10.1177/1043454214563757
  contributor:
    fullname: Maree
– volume: 62
  start-page: 627
  year: 1988
  ident: B23
  article-title: Unmet needs of persons with cancer in Pennsylvania during the period of terminal care.
  publication-title: Cancer
  doi: 10.1002/1097-0142(19880801)62:3<627::aid-cncr2820620331>3.0.co;2-1
  contributor:
    fullname: Houts
– volume: 10
  year: 2011
  ident: B51
  article-title: Family resources study: Part 1: Family resources, family function and caregiver strain in childhood cancer.
  publication-title: Asia Pac. Fam. Med.
  doi: 10.1186/1447-056X-10-14
  contributor:
    fullname: Panganiban-Corales
– volume: 18
  start-page: 323
  year: 2014
  ident: B63
  article-title: Quality of life and most prevalent unmet needs of Chinese breast cancer survivors at one year after cancer treatment.
  publication-title: Eur. J. Oncol. Nurs.
  doi: 10.1016/j.ejon.2014.03.002
  contributor:
    fullname: So
– volume: 17
  start-page: 214
  year: 2013
  ident: B33
  article-title: The impact of cancer on the physical, psychological and social well-being of childhood cancer survivors.
  publication-title: Eur. J. Oncol. Nurs.
  doi: 10.1016/j.ejon.2012.07.010
  contributor:
    fullname: Li
– volume: 23
  start-page: 562
  year: 2014
  ident: B9
  article-title: Needs of family caregivers of advanced cancer patients: A survey in S hanghai of China.
  publication-title: Eur. J. Cancer Care
  doi: 10.1111/ecc.12174
  contributor:
    fullname: Cui
– volume: 2
  year: 2015
  ident: B30
  article-title: Unmet needs and quality of life of family caregivers of cancer patients in South Korea.
  publication-title: Asia Pac. J. Oncol. Nurs.
  doi: 10.4103/2347-5625.158019
  contributor:
    fullname: Kim
– volume: 24
  start-page: 57
  year: 2011
  ident: B60
  article-title: Fears, needs and nursing support of mothers during their child’s hospitalization.
  publication-title: Iran. J. Nurs.
  contributor:
    fullname: Seyedamini
– volume: 4
  start-page: 1885
  year: 2016
  ident: B22
  article-title: Challenges for infants’ home care: A qualitative study.
  publication-title: Int. J. Pediatr.
  contributor:
    fullname: Hemati
– year: 2017
  ident: B54
  publication-title: Palliative care: Perspectives, practices and impact on quality of life, palliative care perspectives and practices in the Islamic Republic of Iran, and their implication on patients’ quality of life.
  contributor:
    fullname: Rassouli
– volume: 1
  start-page: 319
  year: 2003
  ident: B24
  article-title: Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a veterans affairs (VA) medical center.
  publication-title: Palliat. Support. Care
  doi: 10.1017/s1478951503030475
  contributor:
    fullname: Hwang
– volume: 35
  start-page: 6
  year: 2018
  ident: B26
  article-title: Assessing the needs of parents of children diagnosed with cancer in China: A psychometric study developing a needs assessment tool.
  publication-title: J. Pediatr. Oncol. Nurs.
  doi: 10.1177/1043454217723862
  contributor:
    fullname: Ji
– volume: 15
  start-page: 710
  year: 2006
  ident: B66
  article-title: The qualitative experience of Chinese parents with children diagnosed of cancer.
  publication-title: J. Clin. Nurs.
  doi: 10.1111/j.1365-2702.2006.01297.x
  contributor:
    fullname: Wong
– volume: 32
  start-page: 309
  year: 2018
  ident: B48
  article-title: Perceptions of family caregivers of cancer patients about the challenges of caregiving: A qualitative study.
  publication-title: Scand. J. Caring Sci.
  doi: 10.1111/scs.12463
  contributor:
    fullname: Nemati
– volume: 24
  start-page: 4761
  year: 2016
  ident: B20
  article-title: Prevalence of unmet needs and correlated factors in advanced-stage cancer patients receiving rehabilitation.
  publication-title: Support. Care Cancer
  doi: 10.1007/s00520-016-3327-7
  contributor:
    fullname: Hasegawa
– volume: 44
  start-page: e66
  year: 2019
  ident: B38
  article-title: Unmet family needs concerning healthcare services in the setting of childhood hospitalization for cancer treatment in Mainland China: A qualitative study.
  publication-title: J. Pediatr. Nurs.
  doi: 10.1016/j.pedn.2018.11.003
  contributor:
    fullname: Lyu
– volume: 24
  start-page: 1605
  year: 2015
  ident: B55
  article-title: Couples coping with cancer: Exploration of theoretical frameworks from dyadic studies.
  publication-title: Psychooncology
  doi: 10.1002/pon.3854
  contributor:
    fullname: Regan
– volume: 14
  start-page: 420
  year: 2008
  ident: B17
  article-title: “Other cancer survivors”: The impact on family and caregivers.
  publication-title: Cancer J.
  doi: 10.1097/PPO.0b013e31818d894a
  contributor:
    fullname: Golant
– year: 2018
  ident: B67
  publication-title: Cancer in children.
– volume: 20
  start-page: 425
  year: 2018
  ident: B56
  article-title: Quality of life of mothers of children with cancer in Iran.
  publication-title: Koomesh J.
  contributor:
    fullname: Rezaei
– volume: 121
  start-page: 1513
  year: 2015
  ident: B61
  article-title: When do we need to care about the caregiver? Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors.
  publication-title: Cancer
  doi: 10.1002/cncr.29223
  contributor:
    fullname: Sklenarova
– volume: 24
  start-page: 279
  year: 2007
  ident: B27
  article-title: Understanding the supportive care needs of parents of children with cancer: An approach to local needs assessment.
  publication-title: J. Pediatr. Oncol. Nurs.
  doi: 10.1177/1043454207304907
  contributor:
    fullname: Kerr
– volume: 26
  start-page: 922
  year: 2003
  ident: B10
  article-title: Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers.
  publication-title: J. Pain Symptom Manage.
  doi: 10.1016/S0885-3924(03)00327-0
  contributor:
    fullname: Deeken
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Snippet Introduction Parents’ caring responsibilities lead to imbalances in roles, functions, and emotions, confronting them with new needs that, if left unaddressed,...
IntroductionParents' caring responsibilities lead to imbalances in roles, functions, and emotions, confronting them with new needs that, if left unaddressed,...
IntroductionParents’ caring responsibilities lead to imbalances in roles, functions, and emotions, confronting them with new needs that, if left unaddressed,...
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StartPage 964424
SubjectTerms cancer
care
caregivers
child/children
parents/family
Psychology
unmet needs
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Title Unmet needs of the Iranian mothers of the children with cancer and the identification of the related factors: A descriptive-correlational study
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