Developmental care pathway for hospitalised infants with CHD: on behalf of the Cardiac Newborn Neuroprotective Network, a Special Interest Group of the Cardiac Neurodevelopmental Outcome Collaborative

• Published in: Cardiology in the young Vol. 33; no. 12; pp. 2521 - 2538
• Main Authors: Lisanti, Amy J., Vittner, Dorothy J., Peterson, Jennifer, Van Bergen, Andrew H., Miller, Thomas A., Gordon, Erin E., Negrin, Karli A., Desai, Hema, Willette, Suzie, Jones, Melissa B., Caprarola, Sherrill D., Jones, Anna J., Helman, Stephanie M., Smith, Jodi, Anton, Corinne M., Bear, Laurel M., Malik, Lauren, Russell, Sarah K., Mieczkowski, Dana J., Hamilton, Bridy O., McCoy, Meghan, Feldman, Yvette, Steltzer, Michelle, Savoca, Melanie L., Spatz, Diane L., Butler, Samantha C.
• Format: Journal Article
• Language: English
• Published: England Cambridge University Press 01.12.2023
• Subjects: Abnormalities; Babies; Behavior; Best practice; Cardiovascular disease; Caregivers; Child; Clinical medicine; Collaboration; Congenital diseases; Critical Pathways; Families & family life; Heart Defects, Congenital - complications; Heart Defects, Congenital - diagnosis; Heart Defects, Congenital - therapy; Heart diseases; Hemodynamics; Hospitals; Humans; Infant; Infant, Newborn; Infants; Intensive care; Interdisciplinary aspects; Medical screening; Multidisciplinary teams; Neurodevelopment; Neurodevelopmental disorders; Neuroprotection; Newborn babies; Parents & parenting; Patient care planning; Pediatrics; Premature birth; Public Opinion; Quality control; Therapists; Working groups; developmental care; parent; family-centered care; neurodevelopment; infant; CHD

Infants and children born with CHD are at significant risk for neurodevelopmental delays and abnormalities. Individualised developmental care is widely recognised as best practice to support early neurodevelopment for medically fragile infants born premature or requiring surgical intervention after...