Patient and Public Involvement in Patient-Reported Outcome Measures Evolution Not Revolution

• Published in: The patient : patient-centered outcomes research Vol. 5; no. 2; pp. 79 - 87
• Main Authors: Staniszewska, Sophie, Haywood, Kirstie L., Brett, Jo, Tutton, Liz
• Format: Journal Article
• Language: English
• Published: Cham Springer International Publishing 01.06.2012
• Subjects: Cooperative Behavior; Current Opinion; Health Administration; Health Economics; Health Services Research - methods; Humans; Interviews as Topic; Medicine; Medicine & Public Health; Patient Compliance; Patient Participation; Patient Preference; Pharmacoeconomics and Health Outcomes; Public Health; Quality of Health Care - organization & administration; Quality of Life Research; Reproducibility of Results; Self Report; Treatment Outcome; Collaborative Form; Minimal Important Change; Prom Development; COSMIN Checklist; Public Involvement

This paper considers the potential for collaborative patient and public involvement in the development, application, evaluation, and interpretation of patient-reported outcome measures (PROMs). The development of PROMs has followed a well trodden methodological path, with patients contributing as re...