Digital Narratives of Living With Lupus: Lived Experiences and Meanings for Latin American and Latino Patients and Their Families

• Published in: Arthritis care & research (2010) Vol. 75; no. 3; pp. 540 - 549
• Main Authors: Colmenares‐Roa, Tirsa, Gastelum‐Strozzi, Alfonso, Crosley, Erica, Fuentes‐Silva, Yurilis, Reategui‐Sokolova, Cristina, Elera‐Fitzcarrald, Claudia, Ibañez, Soledad, Cairoli, Ernesto, Pons‐Estel, Bernardo A., Drenkard, Cristina, Peláez‐Ballestas, Ingris
• Format: Journal Article
• Language: English
• Published: Boston, USA Wiley Periodicals, Inc 01.03.2023; Wiley Subscription Services, Inc
• Subjects: Lupus; Medical treatment; Patients; Social networks; Spirituality; Systemic lupus erythematosus
• ISSN: 2151-464X; 2151-4658; 2151-4658
• DOI: 10.1002/acr.24870

Objective Systemic lupus erythematosus (SLE) disproportionately affects Latin American and Latino populations, with worse outcomes compared to nonminority populations. Understanding patients' views is critical to provide culturally competent care. The objective of this research is to analyze li...