Identifying and Counting Individuals with Differences of Sex Development Conditions in Population Health Research

The study purpose was to examine opinions about a single-item assessment of differences of sex development (DSD) to be used in research. An online survey was conducted with a convenience sample of 111 adults who self-identified as intersex or having a DSD diagnosis. Participants read and provided fe...

Full description

Saved in:
Bibliographic Details
Published inLGBT health Vol. 5; no. 5; p. 320
Main Authors Tamar-Mattis, Suegee, Gamarel, Kristi E, Kantor, Alena, Baratz, Arlene, Tamar-Mattis, Anne, Operario, Don
Format Journal Article
LanguageEnglish
Published United States 01.07.2018
Subjects
Adult
Aged
Disorders of Sex Development
Female
Humans
Male
Middle Aged
Population Health
Research Design
Surveys and Questionnaires
Young Adult
health
differences of sex development
survey research
intersex
Online AccessGet more information

Cover

More Information
Summary:The study purpose was to examine opinions about a single-item assessment of differences of sex development (DSD) to be used in research. An online survey was conducted with a convenience sample of 111 adults who self-identified as intersex or having a DSD diagnosis. Participants read and provided feedback on the proposed single-item assessment. The item received general endorsement to represent a population that is often not identified in research; however, participants provided suggestions for improvement. This study represents a first step toward identifying people with DSD conditions in surveys to better understand their needs.
ISSN:2325-8306
DOI:10.1089/lgbt.2017.0180