Psychosocial and educational outcomes associated with home- and clinic-based pretest education and cystic fibrosis carrier testing among a population of at-risk relatives

• Published in: American journal of medical genetics Vol. 75; no. 5; p. 461
• Main Authors: Cheuvront, B, Sorensen, J R, Callanan, N P, Stearns, S C, DeVellis, B M
• Format: Journal Article
• Language: English
• Published: United States 17.02.1998
• Subjects: Adolescent; Adult; Aged; Cystic Fibrosis - diagnosis; Cystic Fibrosis - genetics; Cystic Fibrosis - psychology; Female; Genetic Carrier Screening - methods; Genetic Counseling - psychology; Genetic Testing - psychology; Home Care Services; Humans; Knowledge; Male; Middle Aged; Outcome Assessment (Health Care); Patient Education as Topic - methods; Patient Satisfaction; Random Allocation; Risk Factors; Social Adjustment

We report on the psychosocial and knowledge outcomes of two different approaches to cystic fibrosis (CF) gene pretest education and carrier testing offered to 288 proactively recruited first-, second-, and third-degree relatives of people with CF. One group received pretest education and gene testin...