Losing Sleep: Considering Caregivers of Children with Rare Epilepsy Syndromes
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| Published in | The Journal of pediatrics. X Vol. 2; p. 100022 |
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| Main Authors | , |
| Format | Journal Article |
| Language | English |
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Elsevier Inc
2020
Elsevier |
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| ArticleNumber | 100022 |
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| Author | Shellhaas, Renée A. Gupta, Gita |
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| Cites_doi | 10.1542/peds.2012-3998 10.1111/j.1528-1167.2012.03515.x 10.1016/j.accpm.2017.05.010 10.1093/jpepsy/jsv008 10.1016/j.yebeh.2019.01.039 10.1542/peds.2016-1287 10.5665/sleep.3388 10.1093/sleep/zsw073 10.1177/000992280504400709 10.1371/journal.pmed.0030487 10.1016/j.sleep.2016.07.019 10.1016/j.yebeh.2019.07.028 10.1016/j.yebeh.2018.10.016 10.7326/0003-4819-141-11-200412070-00008 10.1186/s12887-015-0492-7 10.1038/s41467-017-02170-3 10.1002/epi4.12241 10.1016/j.jacc.2019.07.022 10.1001/jamapediatrics.2019.4003 10.5664/jcsm.4950 |
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| References | Reilly, Atkinson, Memon, Jones, Dabydeen, Cross (bib12) 2018; 3 Watson, Badr, Belenky, Bliwise, Buxton, Buysse (bib9) 2015; 11 Roberts, Duong (bib14) 2014; 37 Barger, Ayas, Cade, Cronin, Rosner, Speizer (bib11) 2006; 3 Cottrell, Khan (bib8) 2005; 44 Arzalier-Daret, Buléon, Bocca, Denise, Gérard, Hanouz (bib10) 2018; 37 Spiegel, Tasali, Penev, Van Cauter (bib18) 2004; 141 Reilly, Atkinson, Memon, Jones, Dabydeen, Das (bib7) 2018; 89 Schall, Foster, Feudtner (bib3) 2020; 174 Berg, Nickels, Wirrell, Geerts, Callenbach, Arts (bib1) 2013; 132 Pires, Bezerra, Tufik, Andersen (bib16) 2016; 24 Mindell, Sadeh, Kwon, Goh (bib5) 2015; 40 Hesdorffer, Kroner, Shen, Farrell, Roberds, Fureman (bib2) 2020; 2 Besedovsky, Ngo, Dimitrov, Gassenmaier, Lehmann, Born (bib17) 2017; 8 Kalmbach, Arnedt, Song, Guille, Sen (bib15) 2017; 40 Larson, Ryther, Jennesson, Geffrey, Bruno, Anagnos (bib6) 2012; 53 Romley, Shah, Chung, Elliott, Vestal, Schuster (bib4) 2017; 139 Edelstein, Shorer, Shorer, Bachner (bib19) 2019; 93 Thompson, Langer, Kinfe (bib21) 2019; 98 Daghlas, Dashti, Lane, Aragam, Rutter, Saxena (bib13) 2019; 74 Hall, Hutton, Brant, Collet, Gregg, Saunders (bib20) 2015; 15 Larson (10.1016/j.ympdx.2020.100022_bib6) 2012; 53 Daghlas (10.1016/j.ympdx.2020.100022_bib13) 2019; 74 Pires (10.1016/j.ympdx.2020.100022_bib16) 2016; 24 Romley (10.1016/j.ympdx.2020.100022_bib4) 2017; 139 Kalmbach (10.1016/j.ympdx.2020.100022_bib15) 2017; 40 Hall (10.1016/j.ympdx.2020.100022_bib20) 2015; 15 Cottrell (10.1016/j.ympdx.2020.100022_bib8) 2005; 44 Reilly (10.1016/j.ympdx.2020.100022_bib12) 2018; 3 Besedovsky (10.1016/j.ympdx.2020.100022_bib17) 2017; 8 Berg (10.1016/j.ympdx.2020.100022_bib1) 2013; 132 Watson (10.1016/j.ympdx.2020.100022_bib9) 2015; 11 Spiegel (10.1016/j.ympdx.2020.100022_bib18) 2004; 141 Barger (10.1016/j.ympdx.2020.100022_bib11) 2006; 3 Edelstein (10.1016/j.ympdx.2020.100022_bib19) 2019; 93 Reilly (10.1016/j.ympdx.2020.100022_bib7) 2018; 89 Arzalier-Daret (10.1016/j.ympdx.2020.100022_bib10) 2018; 37 Schall (10.1016/j.ympdx.2020.100022_bib3) 2020; 174 Roberts (10.1016/j.ympdx.2020.100022_bib14) 2014; 37 Thompson (10.1016/j.ympdx.2020.100022_bib21) 2019; 98 Mindell (10.1016/j.ympdx.2020.100022_bib5) 2015; 40 Hesdorffer (10.1016/j.ympdx.2020.100022_bib2) 2020; 2 |
| References_xml | – volume: 53 start-page: 1162 year: 2012 end-page: 1169 ident: bib6 article-title: Impact of pediatric epilepsy on sleep patterns and behaviors in children and parents publication-title: Epilepsia contributor: fullname: Anagnos – volume: 98 start-page: 188 year: 2019 end-page: 194 ident: bib21 article-title: Seizure detection watch improves quality of life for adolescents and their families publication-title: Epilepsy Behav contributor: fullname: Kinfe – volume: 44 start-page: 613 year: 2005 end-page: 616 ident: bib8 article-title: Impact of childhood epilepsy on maternal sleep and socioemotional functioning publication-title: Clin Pediatr (Phila) contributor: fullname: Khan – volume: 8 start-page: 1984 year: 2017 ident: bib17 article-title: Auditory closed-loop stimulation of EEG slow oscillations strengthens sleep and signs of its immune-supportive function publication-title: Nat Commun contributor: fullname: Born – volume: 139 start-page: e20161287 year: 2017 ident: bib4 article-title: Family-provided health care for children with special health care needs publication-title: Pediatrics contributor: fullname: Schuster – volume: 24 start-page: 109 year: 2016 end-page: 118 ident: bib16 article-title: Effects of acute sleep deprivation on state anxiety levels: a systematic review and meta-analysis publication-title: Sleep Med contributor: fullname: Andersen – volume: 40 start-page: 689 year: 2015 end-page: 696 ident: bib5 article-title: Relationship between child and maternal sleep: a developmental and cross-cultural comparison publication-title: J Pediatr Psychol contributor: fullname: Goh – volume: 37 start-page: 161 year: 2018 end-page: 166 ident: bib10 article-title: Effect of sleep deprivation after a night shift duty on simulated crisis management by residents in anaesthesia. A randomised crossover study publication-title: Anaesth Crit Care Pain Med contributor: fullname: Hanouz – volume: 141 start-page: 846 year: 2004 end-page: 850 ident: bib18 article-title: Brief communication: Sleep curtailment in healthy young men is associated with decreased leptin levels, elevated ghrelin levels, and increased hunger and appetite publication-title: Ann Intern Med contributor: fullname: Van Cauter – volume: 74 start-page: 1304 year: 2019 end-page: 1314 ident: bib13 article-title: Sleep duration and myocardial infarction publication-title: J Am Coll Cardiol contributor: fullname: Saxena – volume: 132 start-page: 124 year: 2013 end-page: 131 ident: bib1 article-title: Mortality risks in new-onset childhood epilepsy publication-title: Pediatrics contributor: fullname: Arts – volume: 89 start-page: 112 year: 2018 end-page: 117 ident: bib7 article-title: Parenting stress and perceived stigma in mothers of young children with epilepsy: a case-control study publication-title: Epilepsy Behav contributor: fullname: Das – volume: 37 start-page: 239 year: 2014 end-page: 244 ident: bib14 article-title: The prospective association between sleep deprivation and depression among adolescents publication-title: Sleep contributor: fullname: Duong – volume: 93 start-page: 80 year: 2019 end-page: 86 ident: bib19 article-title: Correlates of quality of life in mothers of children with diagnosed epilepsy publication-title: Epilepsy Behav contributor: fullname: Bachner – volume: 2 start-page: 100021 year: 2020 ident: bib2 article-title: Factors associated with caregiver sleep quality related to children with rare epilepsy syndromes publication-title: J Pediatr: X contributor: fullname: Fureman – volume: 40 year: 2017 ident: bib15 article-title: Sleep disturbance and short sleep as risk factors for depression and perceived medical errors in first-year residents publication-title: Sleep contributor: fullname: Sen – volume: 11 start-page: 931 year: 2015 end-page: 952 ident: bib9 article-title: Joint Consensus Statement of the American Academy of Sleep Medicine and Sleep Research Society on the recommended amount of sleep for a healthy adult: methodology and discussion publication-title: J Clin Sleep Med contributor: fullname: Buysse – volume: 3 start-page: e487 year: 2006 ident: bib11 article-title: Impact of extended-duration shifts on medical errors, adverse events, and attentional failures publication-title: PLoS Med contributor: fullname: Speizer – volume: 3 start-page: 383 year: 2018 end-page: 391 ident: bib12 article-title: Child and parental sleep in young children with epilepsy: a population-based case-control study publication-title: Epilepsia Open contributor: fullname: Cross – volume: 174 start-page: 7 year: 2020 end-page: 8 ident: bib3 article-title: Safe work-hour standards for parents of children with medical complexity publication-title: JAMA Pediatr contributor: fullname: Feudtner – volume: 15 start-page: 181 year: 2015 ident: bib20 article-title: A randomized controlled trial of an intervention for infants' behavioral sleep problems publication-title: BMC Pediatr contributor: fullname: Saunders – volume: 2 start-page: 100021 year: 2020 ident: 10.1016/j.ympdx.2020.100022_bib2 article-title: Factors associated with caregiver sleep quality related to children with rare epilepsy syndromes publication-title: J Pediatr: X contributor: fullname: Hesdorffer – volume: 132 start-page: 124 year: 2013 ident: 10.1016/j.ympdx.2020.100022_bib1 article-title: Mortality risks in new-onset childhood epilepsy publication-title: Pediatrics doi: 10.1542/peds.2012-3998 contributor: fullname: Berg – volume: 53 start-page: 1162 year: 2012 ident: 10.1016/j.ympdx.2020.100022_bib6 article-title: Impact of pediatric epilepsy on sleep patterns and behaviors in children and parents publication-title: Epilepsia doi: 10.1111/j.1528-1167.2012.03515.x contributor: fullname: Larson – volume: 37 start-page: 161 year: 2018 ident: 10.1016/j.ympdx.2020.100022_bib10 article-title: Effect of sleep deprivation after a night shift duty on simulated crisis management by residents in anaesthesia. A randomised crossover study publication-title: Anaesth Crit Care Pain Med doi: 10.1016/j.accpm.2017.05.010 contributor: fullname: Arzalier-Daret – volume: 40 start-page: 689 year: 2015 ident: 10.1016/j.ympdx.2020.100022_bib5 article-title: Relationship between child and maternal sleep: a developmental and cross-cultural comparison publication-title: J Pediatr Psychol doi: 10.1093/jpepsy/jsv008 contributor: fullname: Mindell – volume: 93 start-page: 80 year: 2019 ident: 10.1016/j.ympdx.2020.100022_bib19 article-title: Correlates of quality of life in mothers of children with diagnosed epilepsy publication-title: Epilepsy Behav doi: 10.1016/j.yebeh.2019.01.039 contributor: fullname: Edelstein – volume: 139 start-page: e20161287 year: 2017 ident: 10.1016/j.ympdx.2020.100022_bib4 article-title: Family-provided health care for children with special health care needs publication-title: Pediatrics doi: 10.1542/peds.2016-1287 contributor: fullname: Romley – volume: 37 start-page: 239 year: 2014 ident: 10.1016/j.ympdx.2020.100022_bib14 article-title: The prospective association between sleep deprivation and depression among adolescents publication-title: Sleep doi: 10.5665/sleep.3388 contributor: fullname: Roberts – volume: 40 year: 2017 ident: 10.1016/j.ympdx.2020.100022_bib15 article-title: Sleep disturbance and short sleep as risk factors for depression and perceived medical errors in first-year residents publication-title: Sleep doi: 10.1093/sleep/zsw073 contributor: fullname: Kalmbach – volume: 44 start-page: 613 year: 2005 ident: 10.1016/j.ympdx.2020.100022_bib8 article-title: Impact of childhood epilepsy on maternal sleep and socioemotional functioning publication-title: Clin Pediatr (Phila) doi: 10.1177/000992280504400709 contributor: fullname: Cottrell – volume: 3 start-page: e487 year: 2006 ident: 10.1016/j.ympdx.2020.100022_bib11 article-title: Impact of extended-duration shifts on medical errors, adverse events, and attentional failures publication-title: PLoS Med doi: 10.1371/journal.pmed.0030487 contributor: fullname: Barger – volume: 24 start-page: 109 year: 2016 ident: 10.1016/j.ympdx.2020.100022_bib16 article-title: Effects of acute sleep deprivation on state anxiety levels: a systematic review and meta-analysis publication-title: Sleep Med doi: 10.1016/j.sleep.2016.07.019 contributor: fullname: Pires – volume: 98 start-page: 188 issue: Pt A year: 2019 ident: 10.1016/j.ympdx.2020.100022_bib21 article-title: Seizure detection watch improves quality of life for adolescents and their families publication-title: Epilepsy Behav doi: 10.1016/j.yebeh.2019.07.028 contributor: fullname: Thompson – volume: 89 start-page: 112 year: 2018 ident: 10.1016/j.ympdx.2020.100022_bib7 article-title: Parenting stress and perceived stigma in mothers of young children with epilepsy: a case-control study publication-title: Epilepsy Behav doi: 10.1016/j.yebeh.2018.10.016 contributor: fullname: Reilly – volume: 141 start-page: 846 year: 2004 ident: 10.1016/j.ympdx.2020.100022_bib18 article-title: Brief communication: Sleep curtailment in healthy young men is associated with decreased leptin levels, elevated ghrelin levels, and increased hunger and appetite publication-title: Ann Intern Med doi: 10.7326/0003-4819-141-11-200412070-00008 contributor: fullname: Spiegel – volume: 15 start-page: 181 year: 2015 ident: 10.1016/j.ympdx.2020.100022_bib20 article-title: A randomized controlled trial of an intervention for infants' behavioral sleep problems publication-title: BMC Pediatr doi: 10.1186/s12887-015-0492-7 contributor: fullname: Hall – volume: 8 start-page: 1984 year: 2017 ident: 10.1016/j.ympdx.2020.100022_bib17 article-title: Auditory closed-loop stimulation of EEG slow oscillations strengthens sleep and signs of its immune-supportive function publication-title: Nat Commun doi: 10.1038/s41467-017-02170-3 contributor: fullname: Besedovsky – volume: 3 start-page: 383 year: 2018 ident: 10.1016/j.ympdx.2020.100022_bib12 article-title: Child and parental sleep in young children with epilepsy: a population-based case-control study publication-title: Epilepsia Open doi: 10.1002/epi4.12241 contributor: fullname: Reilly – volume: 74 start-page: 1304 year: 2019 ident: 10.1016/j.ympdx.2020.100022_bib13 article-title: Sleep duration and myocardial infarction publication-title: J Am Coll Cardiol doi: 10.1016/j.jacc.2019.07.022 contributor: fullname: Daghlas – volume: 174 start-page: 7 year: 2020 ident: 10.1016/j.ympdx.2020.100022_bib3 article-title: Safe work-hour standards for parents of children with medical complexity publication-title: JAMA Pediatr doi: 10.1001/jamapediatrics.2019.4003 contributor: fullname: Schall – volume: 11 start-page: 931 year: 2015 ident: 10.1016/j.ympdx.2020.100022_bib9 article-title: Joint Consensus Statement of the American Academy of Sleep Medicine and Sleep Research Society on the recommended amount of sleep for a healthy adult: methodology and discussion publication-title: J Clin Sleep Med doi: 10.5664/jcsm.4950 contributor: fullname: Watson |
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| Title | Losing Sleep: Considering Caregivers of Children with Rare Epilepsy Syndromes |
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