The Lived Experience of Pediatric Gene Therapy: A Scoping Review - Kimberly, Laura; Hunt, Cara; Beaverson, Katherine; James, Emma; Bateman-House, Alison; McGowan, Richard; DeSante-Bertkau, Jennifer (Human gene therapy, 2023)
Keywords: Adult; Caregivers - psychology; Child; Clinical Trials as Topic; Genetic Therapy; Humans; Parents - psychology; clinical trial ethics; pediatric gene therapy; patient experience; pediatric clinical trials; lived experience