Standardized Assessment of Health-Related Quality of Life in Patients with Congenital Aniridia

• Published in: Klinische Monatsblatter fur Augenheilkunde Vol. 242; no. 3; p. 228
• Main Authors: Hoxha, Zamira, Fries, Fabian Norbert, Hecker, Dietmar, Seitz, Berthold, Käsmann-Kellner, Barbara, Náray, Annamária, Lagali, Neil, Grupcheva, Christina, Szentmáry, Nóra, Stachon, Tanja
• Format: Journal Article
• Language: English
• Published: Germany 01.03.2025
• Subjects: Adolescent; Adult; Aged; Aniridia - diagnosis; Aniridia - epidemiology; Aniridia - psychology; Child; Female; Germany - epidemiology; Humans; Male; Middle Aged; Quality of Life - psychology; Reproducibility of Results; Surveys and Questionnaires; Vision Disorders - diagnosis; Vision Disorders - epidemiology; Vision Disorders - psychology; Young Adult; Germany

Congenital aniridia is a rare panocular disorder that is associated with varying degrees of impairment of visual acuity. The COST Action (CA18116) developed a survey (aniridia-net.eu) to assess patient-reported experiences with congenital aniridia and its impacts on vision and daily life. Here, we c...