Analyzing Twitter as a Platform for Alzheimer-Related Dementia Awareness: Thematic Analyses of Tweets

Dementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websites may serve as a platform to raise awareness for dementia and allow researchers to explore health-related data. The objective of this study was to utilize Twitter, a social media...

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Published inJMIR aging Vol. 1; no. 2; p. e11542
Main Authors Cheng, Tiffany Yi-Mei, Liu, Lisa, Woo, Benjamin Kp
Format Journal Article
LanguageEnglish
Published Canada JMIR Publications 10.12.2018
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Abstract Dementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websites may serve as a platform to raise awareness for dementia and allow researchers to explore health-related data. The objective of this study was to utilize Twitter, a social media website, to examine the content and location of tweets containing the keyword "dementia" to better understand the reasons why individuals discuss dementia. We adopted an approach that analyzed user location, user category, and tweet content subcategories to classify large publicly available datasets. A total of 398 tweets were collected using the Twitter search application programming interface with the keyword "dementia," circulated between January and February 2018. Twitter users were categorized into 4 categories: general public, health care field, advocacy organization, and public broadcasting. Tweets posted by "general public" users were further subcategorized into 5 categories: mental health advocate, affected persons, stigmatization, marketing, and other. Placement into the categories was done through thematic analysis. A total of 398 tweets were written by 359 different screen names from 28 different countries. The largest number of Twitter users were from the United States and the United Kingdom. Within the United States, the largest number of users were from California and Texas. The majority (281/398, 70.6%) of Twitter users were categorized into the "general public" category. Content analysis of tweets from the "general public" category revealed stigmatization (113/281, 40.2%) and mental health advocacy (102/281, 36.3%) as the most common themes. Among tweets from California and Texas, California had more stigmatization tweets, while Texas had more mental health advocacy tweets. Themes from the content of tweets highlight the mixture of the political climate and the supportive network present on Twitter. The ability to use Twitter to combat stigma and raise awareness of mental health indicates the benefits that can potentially be facilitated via the platform, but negative stigmatizing tweets may interfere with the effectiveness of this social support.
AbstractList BACKGROUNDDementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websites may serve as a platform to raise awareness for dementia and allow researchers to explore health-related data. OBJECTIVEThe objective of this study was to utilize Twitter, a social media website, to examine the content and location of tweets containing the keyword "dementia" to better understand the reasons why individuals discuss dementia. We adopted an approach that analyzed user location, user category, and tweet content subcategories to classify large publicly available datasets. METHODSA total of 398 tweets were collected using the Twitter search application programming interface with the keyword "dementia," circulated between January and February 2018. Twitter users were categorized into 4 categories: general public, health care field, advocacy organization, and public broadcasting. Tweets posted by "general public" users were further subcategorized into 5 categories: mental health advocate, affected persons, stigmatization, marketing, and other. Placement into the categories was done through thematic analysis. RESULTSA total of 398 tweets were written by 359 different screen names from 28 different countries. The largest number of Twitter users were from the United States and the United Kingdom. Within the United States, the largest number of users were from California and Texas. The majority (281/398, 70.6%) of Twitter users were categorized into the "general public" category. Content analysis of tweets from the "general public" category revealed stigmatization (113/281, 40.2%) and mental health advocacy (102/281, 36.3%) as the most common themes. Among tweets from California and Texas, California had more stigmatization tweets, while Texas had more mental health advocacy tweets. CONCLUSIONSThemes from the content of tweets highlight the mixture of the political climate and the supportive network present on Twitter. The ability to use Twitter to combat stigma and raise awareness of mental health indicates the benefits that can potentially be facilitated via the platform, but negative stigmatizing tweets may interfere with the effectiveness of this social support.
Background: Dementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websites may serve as a platform to raise awareness for dementia and allow researchers to explore health-related data. Objective: The objective of this study was to utilize Twitter, a social media website, to examine the content and location of tweets containing the keyword “dementia” to better understand the reasons why individuals discuss dementia. We adopted an approach that analyzed user location, user category, and tweet content subcategories to classify large publicly available datasets. Methods: A total of 398 tweets were collected using the Twitter search application programming interface with the keyword “dementia,” circulated between January and February 2018. Twitter users were categorized into 4 categories: general public, health care field, advocacy organization, and public broadcasting. Tweets posted by “general public” users were further subcategorized into 5 categories: mental health advocate, affected persons, stigmatization, marketing, and other. Placement into the categories was done through thematic analysis. Results: A total of 398 tweets were written by 359 different screen names from 28 different countries. The largest number of Twitter users were from the United States and the United Kingdom. Within the United States, the largest number of users were from California and Texas. The majority (281/398, 70.6%) of Twitter users were categorized into the “general public” category. Content analysis of tweets from the “general public” category revealed stigmatization (113/281, 40.2%) and mental health advocacy (102/281, 36.3%) as the most common themes. Among tweets from California and Texas, California had more stigmatization tweets, while Texas had more mental health advocacy tweets. Conclusions: Themes from the content of tweets highlight the mixture of the political climate and the supportive network present on Twitter. The ability to use Twitter to combat stigma and raise awareness of mental health indicates the benefits that can potentially be facilitated via the platform, but negative stigmatizing tweets may interfere with the effectiveness of this social support.
Dementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websites may serve as a platform to raise awareness for dementia and allow researchers to explore health-related data. The objective of this study was to utilize Twitter, a social media website, to examine the content and location of tweets containing the keyword "dementia" to better understand the reasons why individuals discuss dementia. We adopted an approach that analyzed user location, user category, and tweet content subcategories to classify large publicly available datasets. A total of 398 tweets were collected using the Twitter search application programming interface with the keyword "dementia," circulated between January and February 2018. Twitter users were categorized into 4 categories: general public, health care field, advocacy organization, and public broadcasting. Tweets posted by "general public" users were further subcategorized into 5 categories: mental health advocate, affected persons, stigmatization, marketing, and other. Placement into the categories was done through thematic analysis. A total of 398 tweets were written by 359 different screen names from 28 different countries. The largest number of Twitter users were from the United States and the United Kingdom. Within the United States, the largest number of users were from California and Texas. The majority (281/398, 70.6%) of Twitter users were categorized into the "general public" category. Content analysis of tweets from the "general public" category revealed stigmatization (113/281, 40.2%) and mental health advocacy (102/281, 36.3%) as the most common themes. Among tweets from California and Texas, California had more stigmatization tweets, while Texas had more mental health advocacy tweets. Themes from the content of tweets highlight the mixture of the political climate and the supportive network present on Twitter. The ability to use Twitter to combat stigma and raise awareness of mental health indicates the benefits that can potentially be facilitated via the platform, but negative stigmatizing tweets may interfere with the effectiveness of this social support.
Author Cheng, Tiffany Yi-Mei
Liu, Lisa
Woo, Benjamin Kp
AuthorAffiliation 2 Department of Psychiatry University of California, Los Angeles Los Angeles, CA United States
1 University of California, Los Angeles Los Angeles, CA United States
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ContentType Journal Article
Copyright Tiffany Yi-mei Cheng, Lisa Liu, Benjamin KP Woo. Originally published in JMIR Aging (http://aging.jmir.org), 10.12.2018.
2018. This work is licensed under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.
Tiffany Yi-mei Cheng, Lisa Liu, Benjamin KP Woo. Originally published in JMIR Aging (http://aging.jmir.org), 10.12.2018. 2018
Copyright_xml – notice: Tiffany Yi-mei Cheng, Lisa Liu, Benjamin KP Woo. Originally published in JMIR Aging (http://aging.jmir.org), 10.12.2018.
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– notice: Tiffany Yi-mei Cheng, Lisa Liu, Benjamin KP Woo. Originally published in JMIR Aging (http://aging.jmir.org), 10.12.2018. 2018
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Issue 2
Keywords social support
Twitter
dementia
social media
Language English
License Tiffany Yi-mei Cheng, Lisa Liu, Benjamin KP Woo. Originally published in JMIR Aging (http://aging.jmir.org), 10.12.2018.
This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Aging, is properly cited. The complete bibliographic information, a link to the original publication on http://aging.jmir.org, as well as this copyright and license information must be included.
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Snippet Dementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websites may serve as a platform to raise...
Background: Dementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websites may serve as a platform...
BACKGROUNDDementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websites may serve as a platform...
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StartPage e11542
SubjectTerms Advocacy
Aging
Alzheimer's disease
Application programming interface
Caregivers
Data analysis
Data collection
Dementia
Keywords
Mental health
Multimedia
Older people
Original Paper
Radio stations
Researchers
Social networks
User profiles
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Title Analyzing Twitter as a Platform for Alzheimer-Related Dementia Awareness: Thematic Analyses of Tweets
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