Promising Impact of Telenovela Intervention for Caregivers of Hospice Patients: A Pilot Study
Hospice family caregivers (HFCGs) support the needs of their loved ones but are at risk of developing distress and anxiety. NOVELA is a four-chapter telenovela-style educational video to support topics related to hospice caregiving. Telehealth visits are scheduled in 4 weekly sessions consisting of...
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Published in | American journal of hospice & palliative medicine Vol. 41; no. 12; p. 1400 |
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Main Authors | , , , , , , , , |
Format | Journal Article |
Language | English |
Published |
United States
01.12.2024
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Subjects | |
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Abstract | Hospice family caregivers (HFCGs) support the needs of their loved ones but are at risk of developing distress and anxiety. NOVELA is a four-chapter telenovela-style educational video to support topics related to hospice caregiving. Telehealth visits are scheduled in 4 weekly sessions consisting of a chapter and subsequent discussion with an interventionist. This feasibility pilot study tested NOVELA's effect to change HFCGs' outcomes, session and outcome measure completion (defined a priori as >70%).
This is a single-group pretest-posttest study of HFCGs of care recipients with PPS score >20% from 3 hospices in the U.S. Mid-Atlantic region. At baseline and at final posttest, participants completed a web-based survey assessing 3 outcomes: anxiety, self-efficacy, and satisfaction with intervention. Descriptive, t-test, and chi-square statistics were computed.
Participants in our study (N = 59) were mainly collage educated, White, female, adult children of home-bound people with a non-cancer diagnosis. Outcomes changed in the expected direction (
> .05) with higher self-efficacy (Cohen's d = -.08 [95% CI -.4 to .2) and lower anxiety (Cohen's d = .2 [95% CI -.1 to .5]) scores from final to baseline, 86% of HFCGs were satisfied or very satisfied with NOVELA, session (33/59) and outcome measure (43/59) completion averaged 68%.
Encouraging trends in NOVELA's estimation of effect suggests that NOVELA may buffer stressful aspects of hospice caregiving. However, further refinement of NOVELA is needed. Supporting HFCGs through supportive educational interventions may reduce distress and anxiety with broad implications for quality improvement. |
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AbstractList | Hospice family caregivers (HFCGs) support the needs of their loved ones but are at risk of developing distress and anxiety. NOVELA is a four-chapter telenovela-style educational video to support topics related to hospice caregiving. Telehealth visits are scheduled in 4 weekly sessions consisting of a chapter and subsequent discussion with an interventionist. This feasibility pilot study tested NOVELA's effect to change HFCGs' outcomes, session and outcome measure completion (defined a priori as >70%).
This is a single-group pretest-posttest study of HFCGs of care recipients with PPS score >20% from 3 hospices in the U.S. Mid-Atlantic region. At baseline and at final posttest, participants completed a web-based survey assessing 3 outcomes: anxiety, self-efficacy, and satisfaction with intervention. Descriptive, t-test, and chi-square statistics were computed.
Participants in our study (N = 59) were mainly collage educated, White, female, adult children of home-bound people with a non-cancer diagnosis. Outcomes changed in the expected direction (
> .05) with higher self-efficacy (Cohen's d = -.08 [95% CI -.4 to .2) and lower anxiety (Cohen's d = .2 [95% CI -.1 to .5]) scores from final to baseline, 86% of HFCGs were satisfied or very satisfied with NOVELA, session (33/59) and outcome measure (43/59) completion averaged 68%.
Encouraging trends in NOVELA's estimation of effect suggests that NOVELA may buffer stressful aspects of hospice caregiving. However, further refinement of NOVELA is needed. Supporting HFCGs through supportive educational interventions may reduce distress and anxiety with broad implications for quality improvement. |
Author | Durkin, Nowella Abshire Saylor, Martha Oliver, Debra Parker Milner, Gabrielle E Budhathoki, Chakra Bugayong, Marielle Cruz-Oliver, Dulce M Mensh, Kelsea Blinka, Marcela D |
Author_xml | – sequence: 1 givenname: Dulce M orcidid: 0000-0002-6131-2812 surname: Cruz-Oliver fullname: Cruz-Oliver, Dulce M organization: Section of Palliative Medicine, Division of General Internal Medicine Department of Medicine, Johns Hopkins Hospital, Baltimore, MD, USA – sequence: 2 givenname: Gabrielle E surname: Milner fullname: Milner, Gabrielle E organization: School of Medicine, Johns Hopkins Hospital, Baltimore, MD, USA – sequence: 3 givenname: Kelsea surname: Mensh fullname: Mensh, Kelsea organization: Med-Surg Oncology 5A, Sibley Memorial Hospital, Washington, DC, USA – sequence: 4 givenname: Marielle surname: Bugayong fullname: Bugayong, Marielle organization: Division of General Internal Medicine Department of Medicine, Johns Hopkins School of Medicine, Baltimore, MD, USA – sequence: 5 givenname: Marcela D surname: Blinka fullname: Blinka, Marcela D organization: Center on Aging and Health, Johns Hopkins University School of Medicine, Baltimore, MD, USA – sequence: 6 givenname: Nowella surname: Durkin fullname: Durkin, Nowella organization: Division of General Internal Medicine Department of Medicine, Johns Hopkins School of Medicine, Baltimore, MD, USA – sequence: 7 givenname: Martha surname: Abshire Saylor fullname: Abshire Saylor, Martha organization: Johns Hopkins School of Nursing, Baltimore, MD, USA – sequence: 8 givenname: Chakra surname: Budhathoki fullname: Budhathoki, Chakra organization: Johns Hopkins School of Nursing, Baltimore, MD, USA – sequence: 9 givenname: Debra Parker orcidid: 0000-0002-8354-0859 surname: Oliver fullname: Oliver, Debra Parker organization: Division of Palliative Medicine, Goldfarb School of Nursing, Barnes Jewish Hospital, Washington University, St. Louis, MO, USA |
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Snippet | Hospice family caregivers (HFCGs) support the needs of their loved ones but are at risk of developing distress and anxiety. NOVELA is a four-chapter... |
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SubjectTerms | Adult Aged Anxiety Caregivers - psychology Feasibility Studies Female Hospice Care - organization & administration Humans Male Middle Aged Pilot Projects Self Efficacy Telemedicine - organization & administration |
Title | Promising Impact of Telenovela Intervention for Caregivers of Hospice Patients: A Pilot Study |
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