"I didn't have anything to decide, I wanted to help my kids"-An interview-based study of consent procedures for sampling human biological material for genetic research in rural Pakistan

• Published in: AJOB empirical bioethics Vol. 9; no. 3; p. 113
• Main Authors: Kongsholm, Nana Cecilie Halmsted, Lassen, Jesper, Sandøe, Peter
• Format: Journal Article
• Language: English
• Published: United States 03.07.2018
• Subjects: trust; Developing countries; Pakistan; qualitative research; informed consent; research ethics

Individual, comprehensive, and written informed consent is broadly considered an ethical obligation in research involving the sampling of human material. In developing countries, however, local conditions, such as widespread illiteracy, low levels of education, and hierarchical social structures, co...