Equivalence of the adapted electronic Pediatric Liver Transplant Quality of Life (PeLTQL) questionnaire: A patient-reported outcome measure for children and teens

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Published inLiver transplantation Vol. 29; no. 9; pp. 1012 - 1015
Main Authors Kortbeek, Simone, Hossain, Alomgir, John, Tomisin, Ng, Vicky L
Format Journal Article
LanguageEnglish
Published United States 01.09.2023
Subjects
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Author Ng, Vicky L
Kortbeek, Simone
Hossain, Alomgir
John, Tomisin
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  orcidid: 0000-0002-9998-5692
  surname: Ng
  fullname: Ng, Vicky L
  organization: Transplant and Regenerative Medicine Centre, The Hospital for Sick Children, Toronto, Ontario, Canada
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Cites_doi 10.2196/15588
10.1016/j.jpeds.2014.05.024
10.1097/MPG.0000000000003636
10.1111/j.1524-4733.2008.00470.x
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References Kortbeek (R4-20241017) 2023; 76
Meirte (R2-20241017) 2020; 3
Coons (R3-20241017) 2009; 12
Ng (R5-20241017) 2014; 165
Black (R1-20241017) 2013; 346
References_xml – volume: 3
  start-page: e15588
  year: 2020
  ident: R2-20241017
  article-title: Benefits and disadvantages of electronic patient-reported outcome measures: systematic review
  publication-title: JMIR Perioper Med
  doi: 10.2196/15588
  contributor:
    fullname: Meirte
– volume: 165
  start-page: 547
  year: 2014
  ident: R5-20241017
  article-title: Development and validation of the pediatric liver transplantation quality of life: a disease-specific quality of life measure for pediatric liver transplant recipients
  publication-title: J Pediatr
  doi: 10.1016/j.jpeds.2014.05.024
  contributor:
    fullname: Ng
– volume: 76
  start-page: 128
  year: 2023
  ident: R4-20241017
  article-title: Equivalence of paper and electronic-based patient reported outcome measures for children: a systematic review
  publication-title: J Pediatr Gastroenterol Nutr
  doi: 10.1097/MPG.0000000000003636
  contributor:
    fullname: Kortbeek
– volume: 346
  start-page: 1
  issue: f167
  year: 2013
  ident: R1-20241017
  article-title: Patient reported outcome measures could help transform healthcare
  publication-title: BMJ
  contributor:
    fullname: Black
– volume: 12
  start-page: 419
  year: 2009
  ident: R3-20241017
  article-title: Recommendations on evidence needed to support measurement equivalence between electronic and paper-based patient-reported outcome (PRO) measures: ISPOR ePRO good research practices task force report
  publication-title: Value Health
  doi: 10.1111/j.1524-4733.2008.00470.x
  contributor:
    fullname: Coons
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StartPage 1012
SubjectTerms Adolescent
Child
Humans
Liver Transplantation - adverse effects
Patient Reported Outcome Measures
Quality of Life
Surveys and Questionnaires
Title Equivalence of the adapted electronic Pediatric Liver Transplant Quality of Life (PeLTQL) questionnaire: A patient-reported outcome measure for children and teens
URI https://www.ncbi.nlm.nih.gov/pubmed/36940170
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