Research-Based Theater in the Pediatric Oncology Setting: Balancing Ethical Tensions

Research-based theater (RbT) in health care and medical education settings generates unique ethical discourses, particularly when involving pediatric patients. Ed’s Story: The Dragon Chronicles (Ed’s Story) is a verbatim play based on the journal of a teenaged oncology patient, and 25 interviews con...

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Published inQualitative inquiry Vol. 29; no. 2; pp. 305 - 313
Main Author D’Alessandro, Paul Robert
Format Journal Article
LanguageEnglish
Published Los Angeles, CA SAGE Publications 01.02.2023
SAGE PUBLICATIONS, INC
Subjects
Adolescents
Curricula
Discourses
Dissemination
Ethics
Health care
Health education
Health services
Interdisciplinary aspects
Interviews
Medical education
Medical personnel
Medical schools
Medicine
Moral education
Multidisciplinary teams
Oncology
Pediatrics
Research ethics
Researcher subject relations
Theater
Theaters & cinemas
Trainees
methods of inquiry
qualitative health research
qualitative research
methodologies
narrative
arts-based inquiry
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Abstract Research-based theater (RbT) in health care and medical education settings generates unique ethical discourses, particularly when involving pediatric patients. Ed’s Story: The Dragon Chronicles (Ed’s Story) is a verbatim play based on the journal of a teenaged oncology patient, and 25 interviews conducted after his death with his family and multidisciplinary health professional team. The development, dissemination, and evaluation of Ed’s Story will be retrospectively analyzed in order to highlight and discuss ethical tensions, with specific focus on tensions related to participants, including Ed and the interviewees; RbT practitioners and researchers; and audiences, namely, medical trainees who participated in mandatory curriculum viewing. Where applicable, similar projects described in the literature will be reviewed in order to highlight strategies to mitigate these tensions.
AbstractList Research-based theater (RbT) in health care and medical education settings generates unique ethical discourses, particularly when involving pediatric patients. Ed’s Story: The Dragon Chronicles (Ed’s Story) is a verbatim play based on the journal of a teenaged oncology patient, and 25 interviews conducted after his death with his family and multidisciplinary health professional team. The development, dissemination, and evaluation of Ed’s Story will be retrospectively analyzed in order to highlight and discuss ethical tensions, with specific focus on tensions related to participants, including Ed and the interviewees; RbT practitioners and researchers; and audiences, namely, medical trainees who participated in mandatory curriculum viewing. Where applicable, similar projects described in the literature will be reviewed in order to highlight strategies to mitigate these tensions.
Author D’Alessandro, Paul Robert
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qualitative health research
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SubjectTerms Adolescents
Curricula
Discourses
Dissemination
Ethics
Health care
Health education
Health services
Interdisciplinary aspects
Interviews
Medical education
Medical personnel
Medical schools
Medicine
Moral education
Multidisciplinary teams
Oncology
Pediatrics
Research ethics
Researcher subject relations
Theater
Theaters & cinemas
Trainees
Title Research-Based Theater in the Pediatric Oncology Setting: Balancing Ethical Tensions
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Volume 29
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