The European Health Data Space as a Case Study

• Published in: Ethics & human research Vol. 46; no. 6; p. 29
• Main Author: Dove, Edward S
• Format: Journal Article
• Language: English
• Published: United States 01.11.2024
• Subjects: Electronic Health Records - ethics; Electronic Health Records - standards; Europe; Humans; Information Dissemination - ethics; Europe; health data sharing; health equity; translational bioethics; electronic health data; translational research ethics; translational science

In May 2022, the European Commission proposed the launch of a health-specific data sharing framework called the European Health Data Space (EHDS), underpinned by legislation, for the use of electronic health data by patients and for research, innovation, policy-making, patient safety, statistics, or...