Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disorder (ASD). Method: An integrative literature review carried out in six databases with specific descriptors for each one. Studies published on the theme between January 20...
Saved in:
| Published in | Aquichan Vol. 20; no. 2; pp. 1 - 18 |
|---|---|
| Main Authors | , , , |
| Format | Journal Article |
| Language | English |
| Published |
Chia
Universidad de La Sabana
13.07.2020
|
| Subjects | |
| Online Access | Get full text |
Cover
Loading…
| Abstract | Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disorder (ASD). Method: An integrative literature review carried out in six databases with specific descriptors for each one. Studies published on the theme between January 2014 and February 2020 available in full and free of charge were selected. For synthesis and analysis of data, thematic categorization was performed. 41 articles were included. Results: Two thematic categories were obtained. In the first category (“need for information”), the families’ lack of knowledge about ASD (treatment, how to deal with the child’s behavior, and future perspectives), rights of the child with ASD, and resources to obtain information were identified. The second category (“information support sources accessed by the families”) comprised informal sources (family members, friends, neighbors, and parents of children with ASD), formal sources (professionals and institutions), the Internet, and other resources (books, workshops, podcasts). Positive and negative aspects were found in the use of these sources. Conclusions: A pattern of information requested by the family was verified, as well as sources used to obtain it. These data are relevant to support the organization of sources of informational support for the families and the community. |
|---|---|
| AbstractList | Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disorder (ASD). Method: An integrative literature review carried out in six databases with specific descriptors for each one. Studies published on the theme between January 2014 and February 2020 available in full and free of charge were selected. For synthesis and analysis of data, thematic categorization was performed. 41 articles were included. Results: Two thematic categories were obtained. In the first category (“need for information”), the families’ lack of knowledge about ASD (treatment, how to deal with the child’s behavior, and future perspectives), rights of the child with ASD, and resources to obtain information were identified. The second category (“information support sources accessed by the families”) comprised informal sources (family members, friends, neighbors, and parents of children with ASD), formal sources (professionals and institutions), the Internet, and other resources (books, workshops, podcasts). Positive and negative aspects were found in the use of these sources. Conclusions: A pattern of information requested by the family was verified, as well as sources used to obtain it. These data are relevant to support the organization of sources of informational support for the families and the community. ABSTRACT Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disorder (ASD). Method: An integrative literature review carried out in six databases with specific descriptors for each one. Studies published on the theme between January 2014 and February 2020 available in full and free of charge were selected. For synthesis and analysis of data, thematic categorization was performed. 41 articles were included. Results: Two thematic categories were obtained. In the first category (“need for information”), the families’ lack of knowledge about ASD (treatment, how to deal with the child’s behavior, and future perspectives), rights of the child with ASD, and resources to obtain information were identified. The second category (“information support sources accessed by the families”) comprised informal sources (family members, friends, neighbors, and parents of children with ASD), formal sources (professionals and institutions), the Internet, and other resources (books, workshops, podcasts). Positive and negative aspects were found in the use of these sources. Conclusions: A pattern of information requested by the family was verified, as well as sources used to obtain it. These data are relevant to support the organization of sources of informational support for the families and the community. |
| Author | Santana, Julia Mazul Mazza, Verônica De Azevedo Ruthes, Victória Beatriz Trevisan Nóbrega Martins Weissheimer, Gisele |
| AuthorAffiliation | Universidade Federal do Paraná |
| AuthorAffiliation_xml | – name: Universidade Federal do Paraná |
| Author_xml | – sequence: 1 givenname: Gisele orcidid: 0000-0002-3054-3642 surname: Weissheimer fullname: Weissheimer, Gisele organization: Universidade Federal do Paraná – sequence: 2 givenname: Julia Mazul orcidid: 0000-0002-3419-8727 surname: Santana fullname: Santana, Julia Mazul organization: Universidade Federal do Paraná – sequence: 3 givenname: Victória Beatriz Trevisan Nóbrega Martins orcidid: 0000-0003-1525-580X surname: Ruthes fullname: Ruthes, Victória Beatriz Trevisan Nóbrega Martins organization: Universidade Federal do Paraná – sequence: 4 givenname: Verônica De Azevedo orcidid: 0000-0002-1264-7149 surname: Mazza fullname: Mazza, Verônica De Azevedo organization: Universidade Federal do Paraná |
| BookMark | eNpFkF1LwzAUhoMouE3vvQx43ZqmTZp4N6bTwVBweh269HTLaJstaTf896ZOMBxyPjjve-AZo8vWtoDQXUJiRmX2UBx6E1NCSTxELC7QKHR5xNI8u0SjhLNQS5lfo7H3O0K4YEKO0OYNNHhfuG-8aCvrmqIztsWhwt0W8LxoTG3AY1vh2dbUpYMWn0y3xdO-M77Bqz3ozvUNfjLeuhLcI562waqDjQtWR8AfcDRwukFXVVF7uP3LE_Q1f_6cvUbL95fFbLqMNKWsiyrBJCkTwXlBU54QnXIi1sBIKVNeZRnhWar5WmaCQRglaZlQUUKm86TSRZhMUHz29dpAbdXO9q4NB9VqIKAGAgOk8H4_EQT3Z8He2UMPvvuX0IxKQYkULGyR85Z21nsHldo70wRqKiFq4K8G_mqwVkMokf4ATnV4oQ |
| CitedBy_id | crossref_primary_10_4103_njcp_njcp_607_23 crossref_primary_10_1111_1467_9566_13775 crossref_primary_10_5902_1984686X84906 crossref_primary_10_1108_OIR_04_2022_0247 crossref_primary_10_1590_1518_8345_5028_3483 crossref_primary_10_5812_ijpbs_127300 crossref_primary_10_1111_jcap_12450 |
| Cites_doi | 10.1080/0312407x.2017.1324885 10.1590/2177-9465-ean-2018-0116 10.11114/jets.v6i3.2920 10.1007/s10803-017-3127-z 10.1080/08856257.2016.1223399 10.1590/s0104-12902019170783 10.1007/s10826-014-9917-4 10.1007/s10882-018-9653-6 10.1007/s10803-018-3720-9 10.5114/hpr.2017.63558 10.1007/s10995-015-1688-z 10.1016/j.jfma.2012.07.040 10.1007/s10803-018-3473-5 10.1016/j.medcle.2016.10.003 10.14201/scero2015464724 10.1177/1362361314543531 10.1016/j.ijmedinf.2015.01.015 10.1002/nur.4770100103 10.5935/1415-2762.20140001 10.11114/jets.v6i12.3692 10.15585/mmwr.mm6745a7 10.1177/1074840716684228 10.1111/jpc.13157 10.1007/s10803-015-2650-z 10.1080/1536710x.2017.1392395 10.3109/13668250.2015.1023707 10.1177/1362361315569745 10.1007/s10803-019-03946-w 10.1111/cch.12296 10.1007/s10803-019-04295-4 10.1007/s10803-018-3753-0 10.1016/j.childyouth.2019.104464 10.1016/j.pec.2015.12.023 10.1016/j.amp.2015.06.003 10.1007/s40489-016-0083-z 10.1177/1362361317744078 10.3109/13668250.2016.1262534 10.1111/1460-6984.12210 10.1080/10570314.2017.1398834 10.1590/1983-1447.2015.01.43623 10.1007/s10803-015-2649-5 10.1080/15017419.2016.1167773 10.18226/21789061.v10i1p169 10.1016/j.pedhc.2015.10.012 10.1111/jar.12354 10.1177/1053815118760313 10.1352/1934-9556-55.5.347 10.1007/s10826-014-0041-2 |
| ContentType | Journal Article |
| Copyright | 2020. This work is published under https://creativecommons.org/licenses/by-nc-nd/4.0 (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. This work is licensed under a Creative Commons Attribution 4.0 International License. |
| Copyright_xml | – notice: 2020. This work is published under https://creativecommons.org/licenses/by-nc-nd/4.0 (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. – notice: This work is licensed under a Creative Commons Attribution 4.0 International License. |
| DBID | AAYXX CITATION 0-V 3V. 7X5 7XB 88J 89V 8A3 8BY 8FK ABUWG AFKRA ALSLI AZQEC BENPR BEZIV CCPQU CLZPN DWQXO FRNLG GNUQQ K60 K6~ L.- M2R PQBIZ PQBZA PQEST PQQKQ PQUKI PRINS Q9U GPN |
| DOI | 10.5294/aqui.2020.20.2.8 |
| DatabaseName | CrossRef ProQuest Social Sciences Premium Collection【Remote access available】 ProQuest Central (Corporate) Proquest Entrepreneurship ProQuest Central (purchase pre-March 2016) Social Science Database (Alumni Edition) PRISMA Database Entrepreneurship Database (Alumni Edition) PRISMA Database with HAPI Index ProQuest Central (Alumni) (purchase pre-March 2016) ProQuest Central (Alumni) ProQuest Central UK/Ireland Social Science Premium Collection (Proquest) (PQ_SDU_P3) ProQuest Central Essentials AUTh Library subscriptions: ProQuest Central ProQuest Business Premium Collection ProQuest One Community College Latin America & Iberia Database ProQuest Central Business Premium Collection (Alumni) ProQuest Central Student ProQuest Business Collection (Alumni Edition) ProQuest Business Collection ABI/INFORM Professional Advanced Social Science Database (ProQuest) ProQuest One Business ProQuest One Business (Alumni) ProQuest One Academic Eastern Edition (DO NOT USE) ProQuest One Academic ProQuest One Academic UKI Edition ProQuest Central China ProQuest Central Basic SciELO |
| DatabaseTitle | CrossRef ProQuest Business Collection (Alumni Edition) ProQuest One Business ProQuest Central Student ProQuest Central Essentials PRISMA (without HAPI) ProQuest Social Science Journals (Alumni Edition) ProQuest Central (Alumni Edition) ProQuest One Community College ProQuest Central China ProQuest Central ABI/INFORM Professional Advanced ProQuest Central Korea ProQuest Entrepreneurship Business Premium Collection Social Science Premium Collection ProQuest Central Basic ProQuest Entrepreneurship (Alumni Edition) ProQuest One Academic Eastern Edition ProQuest Business Collection ProQuest Social Science Journals Latin America & Iberian Database ProQuest Social Sciences Premium Collection ProQuest One Academic UKI Edition ProQuest One Business (Alumni) PRISMA (with HAPI) ProQuest One Academic ProQuest Central (Alumni) Business Premium Collection (Alumni) |
| DatabaseTitleList | CrossRef ProQuest Business Collection (Alumni Edition) |
| Database_xml | – sequence: 1 dbid: BENPR name: AUTh Library subscriptions: ProQuest Central url: https://www.proquest.com/central sourceTypes: Aggregation Database |
| DeliveryMethod | fulltext_linktorsrc |
| Discipline | Nursing |
| DocumentTitleAlternate | Informações necessárias às famílias de crianças com transtorno do espectro autista: uma revisão integrativa |
| EISSN | 2027-5374 |
| EndPage | 18 |
| ExternalDocumentID | S1657_59972020000200008 10_5294_aqui_2020_20_2_8 |
| GeographicLocations | United States--US |
| GeographicLocations_xml | – name: United States--US |
| GroupedDBID | 0-V 23M 2WC 3V. 5GY 5VS 635 7X5 89V 8BY 8R4 8R5 AAYXX ABDBF ABUWG ABXHO ACIHN ADBBV AEAQA AFKRA ALMA_UNASSIGNED_HOLDINGS ALSLI APOWU ARALO AZFZN AZQEC B14 BAWUL BCNDV BENPR BEZIV BPHCQ CCPQU CITATION CLZPN DIK DWQXO E3Z EFA ESX FAEIB FRNLG GNUQQ GROUPED_DOAJ K60 K6~ KQ8 KWQ M2R M~E OK1 PIMPY PQBIZ PQBZA PQQKQ PROAC Q2X RNS RTK SCD TUS ~8M 7XB 8FK L.- PQEST PQUKI PRINS Q9U GPN |
| ID | FETCH-LOGICAL-c225t-f8590d1866a23610c3608be50d936f440643c6b9485ed9313d128de4c71fcad93 |
| IEDL.DBID | BENPR |
| ISSN | 1657-5997 2027-5374 |
| IngestDate | Fri Oct 18 20:36:39 EDT 2024 Thu Oct 10 18:47:13 EDT 2024 Wed Jul 24 12:28:32 EDT 2024 |
| IsDoiOpenAccess | true |
| IsOpenAccess | true |
| IsPeerReviewed | true |
| IsScholarly | true |
| Issue | 2 |
| Keywords | social support família criança Autism Spectrum Disorder niño Transtorno do espectro autista apoyo social acceso a la información access to information family acesso à informação apoio social familia child Desorden del espectro autista |
| Language | English |
| License | This work is licensed under a Creative Commons Attribution 4.0 International License. http://creativecommons.org/licenses/by/4.0 |
| LinkModel | DirectLink |
| MergedId | FETCHMERGED-LOGICAL-c225t-f8590d1866a23610c3608be50d936f440643c6b9485ed9313d128de4c71fcad93 |
| ORCID | 0000-0003-1525-580X 0000-0002-3054-3642 0000-0002-1264-7149 0000-0002-3419-8727 |
| OpenAccessLink | http://dx.doi.org/10.5294/aqui.2020.20.2.8 |
| PQID | 2429820985 |
| PQPubID | 186317 |
| PageCount | 18 |
| ParticipantIDs | scielo_journals_S1657_59972020000200008 proquest_journals_2429820985 crossref_primary_10_5294_aqui_2020_20_2_8 |
| PublicationCentury | 2000 |
| PublicationDate | 2020-7-13 |
| PublicationDateYYYYMMDD | 2020-07-13 |
| PublicationDate_xml | – month: 07 year: 2020 text: 2020-7-13 day: 13 |
| PublicationDecade | 2020 |
| PublicationPlace | Chia |
| PublicationPlace_xml | – name: Chia |
| PublicationTitle | Aquichan |
| PublicationTitleAlternate | Aquichan |
| PublicationYear | 2020 |
| Publisher | Universidad de La Sabana |
| Publisher_xml | – name: Universidad de La Sabana |
| References | ref13 ref57 ref12 ref56 ref15 ref14 ref58 ref53 ref52 ref11 ref55 ref10 ref54 ref17 ref16 ref19 ref18 ref51 ref50 ref46 ref45 ref48 ref47 ref42 ref41 ref44 ref43 ref49 ref8 ref7 ref9 ref4 ref3 ref6 ref5 ref40 ref35 ref34 ref37 ref36 ref31 ref30 ref33 ref32 ref0 ref2 ref1 ref39 ref38 ref24 ref23 ref26 ref25 ref20 ref22 ref21 ref28 ref27 ref29 Hall, CM; Culler, ED; Frank-Webb, A. 2016; 3 Kocabiyik, OO; Fazlioğlu, Y. 2018; 6 Ryan, C; Quinlan, E. 2018 Mapelli, LD; Baribieri, MC; Castro, GVDZB; Bonelli, MA 2018; 22 Frye, L. 2016; 30 Frame, KN; Casey, LB. 2019 Dinora, P; Bogenschutz, M. 2018; 40 Mcintyre, LL; Brown, M. 2016; 43 Rogers, SL; Dawson, G; Vismara, LA. 2015 Blauth, LK. 2017; 5 Lopez, K; Magaña, S; Xu, Y; Guzman, J. 2018; 84 Tait, K; Hu, FFA; Sweller, N; Wang, W. 2016; 46 Zanatta, EA; Menegazzo, E; Guimarães, AN; Ferraz, L; Motta, MGC. 2014; 28 Prendeville, P; Kinsella, W. 2019 Roffeei, SHM; Abdullah, N; Basar, SKR. 2015; 84 Ntre, V; Papanikolauo, K; Triantafyllou, K; Giannakopoulos, G; Kokkosi, M; Kolaitis, G. 2018; 11 Ercole, FF; Melo, LS de; Alcoforado, CLGC. 2014; 18 Moro, GL; Jenaro, RC; Solano, SM. 2015; 46 Zajicek-Farber, ML; Lotrecchiano, GR; Long, TM; Farber, JM. 2015; 19 Gibson, AN; Kaplan, S; Vardell, E. 2017; 47 Schroeder, WK. 2017; 23 Cappe, É; Poirier, N. 2016; 174 Curtiss, SL; Ebata, AT. 2019; 49 Pearson, JN; Traficante, AL; Denny, LM; Malone, K; Codd, E. 2020; 50 Ganong, LH. 1987; 10 Pickard, K; Rowless, S; Ingersoll, B. 2019; 23 Ebert, M; Lorenzini, E; Silva, EF da. 2015; 36 Bardin, L. 2010 Liu, Y; Fisher, K. 2017; 70 Tekinarslan, İÇ. 2018; 6 Hennel, S; Coates, C; Symeonides, C; Gulenc, A; Smith, L; Price, AMH 2016; 52 Eds, JB. 2018; 67 Wallace, LR. 2016; 21 Lajonchere, CM; Valente, TW; Kreutzer, C; Munsou, A; Narayanan, S; Kazemzadeh, A 2016; 46 Rivard, M; Millau, M; Magnan, C; Mello, C; Boulé, M. 2019 Pickard, KE; Ingersoll, BR. 2016; 20 Derguy, C; Michel, G; M’bailara, K; Roux, S; Bouvard, M. 2015; 40 Edwards, AG; Brebner, CM; McCormack, PF; MacDougall, CJ. 2018; 48 Hutton, B; Catalá-López, F; Moher, D. 2016 Grant, N; Rodger, S; Hoffmann, T. 2016; 42 Dinora, P; Bogenschutz, M; Lynch, K. 2017; 16 Gilson, CB; Bethune, LK; Carter, EW; Mcmillan, ED. 2017; 55 Hays, A; Butauski, M. 2018; 82 Beck, RG. 2017 Zakirova-Engstrand, R; Roll-Pettersson, L; Westling-Allodi, M; Hirvikoski, T. 2020 Molteni, P; Maggiolini, S. 2015; 24 Chiu, Y-N; Chou, M-C; Lee, J-C; Wong, C-C; Chou, W-J; Wu, Y-Y; Chien, Y-L 2014; 113 Huus, K; Olsson, LM; Andersson, EE; Granlund, M; Augustine, L. 2017; 19 Li, M; Amuta, A; Xu, L; Dhar, S; Talwar, D; Jung, E; Chen, LS. 2016; 99 Pejovic-Milovancevic, M; Stankovic, M; Mitkovic-Voncina, M; Rudic, N; Grujicic, R; Herrare, AS 2018; 30 Wuo, AS. 2019; 28 Mereoiu, M; Bland, C; Dobbins, N; Niemeyer, JA. 2015; 17 Rivard, M; Lépine, A; Mercier, C; Morin, M. 2015; 24 Preece, D; Symeou, L; Stosic, J; Troshanska, J; Mavrou, K; Theodorou, E. 2016; 32 2014 Carlsson, E; Miniscalco, C; Kadesjö, B; Laakso, K. 2016; 51 Hodgetts, S; Zwaigenbaum, L; Nicholas, D 2015; 19 |
| References_xml | – ident: ref34 doi: 10.1080/0312407x.2017.1324885 – ident: ref57 doi: 10.1590/2177-9465-ean-2018-0116 – ident: ref31 doi: 10.11114/jets.v6i3.2920 – ident: ref25 doi: 10.1007/s10803-017-3127-z – ident: ref44 doi: 10.1080/08856257.2016.1223399 – ident: ref53 – ident: ref1 doi: 10.1590/s0104-12902019170783 – ident: ref37 doi: 10.1007/s10826-014-9917-4 – ident: ref47 doi: 10.1007/s10882-018-9653-6 – ident: ref19 doi: 10.1007/s10803-018-3720-9 – ident: ref36 – ident: ref16 doi: 10.5114/hpr.2017.63558 – ident: ref6 – ident: ref54 doi: 10.1007/s10995-015-1688-z – ident: ref18 doi: 10.1016/j.jfma.2012.07.040 – ident: ref10 doi: 10.1007/s10803-018-3473-5 – ident: ref14 doi: 10.1016/j.medcle.2016.10.003 – ident: ref38 doi: 10.14201/scero2015464724 – ident: ref29 doi: 10.1177/1362361314543531 – ident: ref49 doi: 10.1016/j.ijmedinf.2015.01.015 – ident: ref13 doi: 10.1002/nur.4770100103 – ident: ref12 doi: 10.5935/1415-2762.20140001 – ident: ref39 – ident: ref52 doi: 10.11114/jets.v6i12.3692 – ident: ref0 doi: 10.15585/mmwr.mm6745a7 – ident: ref3 – ident: ref58 doi: 10.1177/1074840716684228 – ident: ref28 doi: 10.1111/jpc.13157 – ident: ref51 doi: 10.1007/s10803-015-2650-z – ident: ref21 doi: 10.1080/1536710x.2017.1392395 – ident: ref41 – ident: ref20 doi: 10.3109/13668250.2015.1023707 – ident: ref48 – ident: ref42 doi: 10.1177/1362361315569745 – ident: ref55 doi: 10.1007/s10803-019-03946-w – ident: ref26 doi: 10.1111/cch.12296 – ident: ref40 doi: 10.1007/s10803-019-04295-4 – ident: ref45 doi: 10.1007/s10803-018-3753-0 – ident: ref23 doi: 10.1016/j.childyouth.2019.104464 – ident: ref33 doi: 10.1016/j.pec.2015.12.023 – ident: ref15 – ident: ref4 – ident: ref7 doi: 10.1016/j.amp.2015.06.003 – ident: ref9 doi: 10.1007/s40489-016-0083-z – ident: ref43 doi: 10.1177/1362361317744078 – ident: ref11 doi: 10.3109/13668250.2016.1262534 – ident: ref17 doi: 10.1111/1460-6984.12210 – ident: ref27 doi: 10.1080/10570314.2017.1398834 – ident: ref5 doi: 10.1590/1983-1447.2015.01.43623 – ident: ref32 doi: 10.1007/s10803-015-2649-5 – ident: ref30 doi: 10.1080/15017419.2016.1167773 – ident: ref2 doi: 10.18226/21789061.v10i1p169 – ident: ref24 doi: 10.1016/j.pedhc.2015.10.012 – ident: ref50 doi: 10.1111/jar.12354 – ident: ref22 doi: 10.1177/1053815118760313 – ident: ref56 – ident: ref8 doi: 10.1352/1934-9556-55.5.347 – ident: ref46 doi: 10.1007/s10826-014-0041-2 – ident: ref35 – volume: 84 start-page: 41 issue: 1 year: 2018 end-page: 50 article-title: Mother’s Reaction to autism diagnosis: A qualitative analysis comparing Latino and white parents. publication-title: J. Rehabil. contributor: fullname: Lopez, K; Magaña, S; Xu, Y; Guzman, J. – volume: 43 start-page: 93 issue: 1 year: 2016 end-page: 101 article-title: Examining the utilisation and usefulness of social support for mothers with young children with autism spectrum disorder. publication-title: Am J Intellect Dev Disabil contributor: fullname: Mcintyre, LL; Brown, M. – volume: 16 start-page: 377 issue: 3-4 year: 2017 end-page: 395 article-title: Factors That May Influence Parent Treatment Decision Making for Young Children with Autism Spectrum Disorder. publication-title: J Soc Work Disabil Rehabil. contributor: fullname: Dinora, P; Bogenschutz, M; Lynch, K. – start-page: 1 issue: 31 year: 2018 end-page: 12 article-title: Whoever shouts the loudest: Listening to parents of children with disabilities. publication-title: J Appl Res Intellect Disabil. contributor: fullname: Ryan, C; Quinlan, E. – volume: 23 start-page: 338 issue: 2 year: 2019 end-page: 349 article-title: Understanding the impact of adaptations to a parent-mediated intervention on parents’ ratings of perceived barriers, program attributes, and intent to use. publication-title: Autism. contributor: fullname: Pickard, K; Rowless, S; Ingersoll, B. – volume: 46 start-page: 1038 issue: 3 year: 2016 end-page: 1050 article-title: Strategies for disseminating information on biomedical research on autism to Hispanic parents. publication-title: J Autism Dev Disord. contributor: fullname: Lajonchere, CM; Valente, TW; Kreutzer, C; Munsou, A; Narayanan, S; Kazemzadeh, A – volume: 40 start-page: 156 issue: 2 year: 2015 end-page: 166 article-title: Assessing needs in parents of children with autism spectrum disorder: A crucial preliminary step to target relevant issues for support programs. publication-title: Intellect Dev Disabil contributor: fullname: Derguy, C; Michel, G; M’bailara, K; Roux, S; Bouvard, M. – volume: 30 start-page: 354 year: 2018 end-page: 354 article-title: Perceptions on support, challenges and needs among parents of children with autism: The Serbian experience. publication-title: Psychiatr Danub. contributor: fullname: Pejovic-Milovancevic, M; Stankovic, M; Mitkovic-Voncina, M; Rudic, N; Grujicic, R; Herrare, AS – volume: 24 start-page: 1088 issue: 4 year: 2015 end-page: 1096 article-title: Parents’ perspectives towards the diagnosis of autism: An Italian case study research. publication-title: JCFS. contributor: fullname: Molteni, P; Maggiolini, S. – volume: 3 start-page: 273 issue: 4 year: 2016 end-page: 285 article-title: Online Dissemination of Resources and Services for Parents of Children with Autism Spectrum Disorders (ASDs): A Systematic Review of Evidence publication-title: J Autism Dev Disord. contributor: fullname: Hall, CM; Culler, ED; Frank-Webb, A. – volume: 30 start-page: 453 issue: 5 year: 2016 end-page: 463 article-title: Fathers’ experience with autism spectrum disorder: Nursing implications. publication-title: J Pediatr Health Care. contributor: fullname: Frye, L. – volume: 24 start-page: 2388 issue: 8 year: 2015 end-page: 2397 article-title: Quality determinants of services for parents of young children with autism spectrum disorders. publication-title: IJCYF. contributor: fullname: Rivard, M; Lépine, A; Mercier, C; Morin, M. – volume: 6 start-page: 26 issue: 3 year: 2018 end-page: 37 article-title: Life Stories of Parents with Autistic Children. publication-title: J Educ Train Stud. contributor: fullname: Kocabiyik, OO; Fazlioğlu, Y. – volume: 23 start-page: 55 issue: 1 year: 2017 end-page: 72 article-title: Leveraging Social Media in #FamilyNursing Practice publication-title: J Fam Nurs. contributor: fullname: Schroeder, WK. – volume: 51 start-page: 328 issue: 3 year: 2016 end-page: 338 article-title: Negotiating knowledge: Parents’ experience of the neuropsychiatric diagnostic process for children with autism. publication-title: Int J Lang Commun Disord. contributor: fullname: Carlsson, E; Miniscalco, C; Kadesjö, B; Laakso, K. – volume: 55 start-page: 347 issue: 5 year: 2017 end-page: 360 article-title: Informing and equipping parents of people with intellectual and developmental disabilities. publication-title: Intellect Dev Disabil. contributor: fullname: Gilson, CB; Bethune, LK; Carter, EW; Mcmillan, ED. – volume: 84 start-page: 375 issue: 5 year: 2015 end-page: 385 article-title: Seeking social support on Facebook for children with Autism Spectrum Disorders (ASDs publication-title: Int J Med Inform. contributor: fullname: Roffeei, SHM; Abdullah, N; Basar, SKR. – year: 2016 article-title: The PRISMA Extension Statement for Reporting of Systematic Reviews Incorporating Network Meta-analyses PRISMA-NMA publication-title: Med Clin. contributor: fullname: Hutton, B; Catalá-López, F; Moher, D. – volume: 17 start-page: 1 issue: 1 year: 2015 end-page: 28 article-title: Exploring perspectives on child care with families of children with autism. publication-title: Early Child Res Pract. contributor: fullname: Mereoiu, M; Bland, C; Dobbins, N; Niemeyer, JA. – volume: 82 start-page: 376 issue: 3 year: 2018 end-page: 391 article-title: Privacy, disability, and family: Exploring the privacy management behaviors of parents with a child with autism. publication-title: West J Commun. contributor: fullname: Hays, A; Butauski, M. – volume: 19 start-page: 1744 issue: 8 year: 2015 end-page: 1755 article-title: Parental perceptions of family centered care in medical homes of children with neurodevelopmental disabilities. publication-title: JMCH. contributor: fullname: Zajicek-Farber, ML; Lotrecchiano, GR; Long, TM; Farber, JM. – year: 2010 publication-title: Análise de conteúdo contributor: fullname: Bardin, L. – volume: 70 start-page: 441 issue: 4 year: 2017 end-page: 452 article-title: Engaging with disability services: experiences of families from Chinese backgrounds in Sydney. publication-title: Aust Soc Work. contributor: fullname: Liu, Y; Fisher, K. – start-page: 1 issue: 106 year: 2019 end-page: 9 article-title: Variables influencing parental treatment selection for children with autism spectrum disorder. publication-title: Child. Youth Serv Rev., Elsevier. contributor: fullname: Frame, KN; Casey, LB. – start-page: 519 issue: 31 year: 2019 end-page: 539 article-title: Snakes and ladders: Barriers and facilitators experienced by immigrant families when accessing an autism spectrum disorder diagnosis. publication-title: J Dev Phys Disabil. contributor: fullname: Rivard, M; Millau, M; Magnan, C; Mello, C; Boulé, M. – volume: 47 start-page: 2189 issue: 7 year: 2017 end-page: 2204 article-title: A survey of information source preferences of parents of individuals with Autism Spectrum Disorder. publication-title: J Autism Dev Disord. contributor: fullname: Gibson, AN; Kaplan, S; Vardell, E. – volume: 28 start-page: 271 issue: 3 year: 2014 end-page: 282 article-title: Families that live with child autism on a daily basis publication-title: RASD contributor: fullname: Zanatta, EA; Menegazzo, E; Guimarães, AN; Ferraz, L; Motta, MGC. – volume: 28 start-page: 210 issue: 3 year: 2019 end-page: 223 article-title: Education of people with autism spectrum disorders: State of knowledge in dissertations and theses in the Southern and Southeastern regions of Brazil (2008-2016). publication-title: Saúde soc contributor: fullname: Wuo, AS. – volume: 10 start-page: 1 issue: 1 year: 1987 end-page: 11 article-title: Integrative reviews of nursing research publication-title: Res Nurs Health. contributor: fullname: Ganong, LH. – volume: 40 start-page: 195 issue: 3 year: 2018 end-page: 211 article-title: Narratives on the factors that influence family decision making for young children with autism spectrum disorder. publication-title: J Early Interv. contributor: fullname: Dinora, P; Bogenschutz, M. – volume: 22 issue: 4 year: 2018 article-title: Child with autistic spectrum disorder: Care from the family. publication-title: Esc Anna Nery. contributor: fullname: Mapelli, LD; Baribieri, MC; Castro, GVDZB; Bonelli, MA – volume: 19 start-page: 307 issue: 4 year: 2017 end-page: 317 article-title: Perceived needs among parents of children with a mild intellectual disability in Sweden. publication-title: Scand J Disabil Res. contributor: fullname: Huus, K; Olsson, LM; Andersson, EE; Granlund, M; Augustine, L. – volume: 32 start-page: 252 issue: 2 year: 2016 end-page: 269 article-title: Accessing parental perspectives to inform the development of parent training in autism in south-eastern Europe. publication-title: Eur J Spec Needs Educ. contributor: fullname: Preece, D; Symeou, L; Stosic, J; Troshanska, J; Mavrou, K; Theodorou, E. – year: 2017 publication-title: Estimativa do número de casos de Transtorno do Espectro Autista no Sul do Brasil contributor: fullname: Beck, RG. – volume: 20 issue: 1 year: 2016 article-title: Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use. publication-title: Autism. contributor: fullname: Pickard, KE; Ingersoll, BR. – volume: 42 start-page: 125 issue: 1 year: 2016 end-page: 134 article-title: Intervention decision-making processes and information preferences of parents of children with autism spectrum disorders. publication-title: Child Care Health Dev. contributor: fullname: Grant, N; Rodger, S; Hoffmann, T. – volume: 48 start-page: 2122 issue: 6 year: 2018 end-page: 2138 article-title: From “parent” to “expert”: How parents of children with autism spectrum disorder make decisions about which intervention approaches to access. publication-title: J Autism Dev Disord. contributor: fullname: Edwards, AG; Brebner, CM; McCormack, PF; MacDougall, CJ. – volume: 52 start-page: 506 issue: 5 year: 2016 end-page: 511 article-title: Diagnosing autism: Contemporaneous surveys of parent needs and paediatric practice. publication-title: J Paediatr Child Health. contributor: fullname: Hennel, S; Coates, C; Symeonides, C; Gulenc, A; Smith, L; Price, AMH – start-page: 738 issue: 49 year: 2019 end-page: 749 article-title: The role of grandparents in supporting families of children with autism spectrum disorders: A family systems approach. publication-title: J Autism Dev Disord. contributor: fullname: Prendeville, P; Kinsella, W. – start-page: 1941 issue: 50 year: 2020 end-page: 1957 article-title: Needs of Grandparents of Preschool-Aged Children with ASD in Sweden. publication-title: J Autism Dev Disord. contributor: fullname: Zakirova-Engstrand, R; Roll-Pettersson, L; Westling-Allodi, M; Hirvikoski, T. – volume: 18 start-page: 9 issue: 1 year: 2014 end-page: 12 article-title: Integrative review versus systematic review publication-title: REME rev. min. enferm. contributor: fullname: Ercole, FF; Melo, LS de; Alcoforado, CLGC. – volume: 6 start-page: 68 issue: 12 year: 2018 end-page: 81 article-title: Autism Spectrum Disorder: Experiences of Mothers before and after their children’s diagnosis and implications for early special education services. publication-title: J Educ Train Stud. contributor: fullname: Tekinarslan, İÇ. – year: 2015 publication-title: TEA. Compreender e agir contributor: fullname: Rogers, SL; Dawson, G; Vismara, LA. – volume: 46 start-page: 7 issue: 4 year: 2015 end-page: 24 article-title: Miedos, esperanzas y reivindicaciones de padres de niños con TEA. publication-title: Ediciones Universidad de Salamanca contributor: fullname: Moro, GL; Jenaro, RC; Solano, SM. – volume: 21 start-page: 1441 issue: 8 year: 2016 end-page: 1453 article-title: The impact of family autism camp on families and individuals with ASD publication-title: Qual Rep contributor: fullname: Wallace, LR. – volume: 19 start-page: 673 issue: 6 year: 2015 end-page: 683 article-title: Profile and predictors of service needs for families of children with autism spectrum disorders publication-title: Autism. contributor: fullname: Hodgetts, S; Zwaigenbaum, L; Nicholas, D – volume: 36 start-page: 49 issue: 1 year: 2015 end-page: 55 article-title: Mothers of children with autistic disorder: perceptions and trajectories publication-title: Rev Gaucha Enferm. contributor: fullname: Ebert, M; Lorenzini, E; Silva, EF da. – volume: 113 start-page: 540 issue: 8 year: 2014 end-page: 548 article-title: Determinants of maternal satisfaction with diagnosis disclosure of autism. publication-title: J Formos Med Assoc. contributor: fullname: Chiu, Y-N; Chou, M-C; Lee, J-C; Wong, C-C; Chou, W-J; Wu, Y-Y; Chien, Y-L – volume: 46 start-page: 1164 issue: 4 year: 2016 end-page: 1183 article-title: Understanding Hong Kong Chinese families’ experiences of an autism/ASD diagnosis. publication-title: J Autism Dev Disord. contributor: fullname: Tait, K; Hu, FFA; Sweller, N; Wang, W. – year: 2014 publication-title: DSM-5: Manual diagnóstico e estatístico de transtornos mentais – volume: 49 start-page: 441 issue: 2 year: 2019 end-page: 452 article-title: The nature of family meals: A new vision of families of children with autism. publication-title: J Autism Dev Disord. contributor: fullname: Curtiss, SL; Ebata, AT. – volume: 50 start-page: 1 issue: 1 year: 2020 end-page: 11 article-title: Meeting FACES: Preliminary findings from a community workshop for minority parents of children with autism in Central North Carolina. publication-title: J Autism Dev Disord. contributor: fullname: Pearson, JN; Traficante, AL; Denny, LM; Malone, K; Codd, E. – publication-title: Folha informativa - Transtorno do espetro autista; 2017 – volume: 174 start-page: 63943 issue: 8 year: 2016 end-page: 63943 article-title: Les besoins exprimés par les parents d’enfants ayant un TSA : une étude exploratoire franco-québécoise. publication-title: Ann Med-Psychol contributor: fullname: Cappe, É; Poirier, N. – volume: 5 start-page: 138 issue: 2 year: 2017 end-page: 150 article-title: Improving mental health in families with autistic children: Benefits of using video feedback in parent counselling sessions offered alongside music therapy. publication-title: Health Psychol. contributor: fullname: Blauth, LK. – volume: 11 start-page: 985 issue: 2 year: 2018 end-page: 995 article-title: Psychosocial and Financial Needs, Burdens and Support, and Major Concerns among Greek Families with Children with Autism Spectrum Disorder (ASD). publication-title: IJCS. contributor: fullname: Ntre, V; Papanikolauo, K; Triantafyllou, K; Giannakopoulos, G; Kokkosi, M; Kolaitis, G. – volume: 67 start-page: 1 issue: 6 year: 2018 end-page: 23 article-title: Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014. publication-title: MMWR Surveill. Summ. contributor: fullname: Eds, JB. – volume: 99 start-page: 1011 issue: 6 year: 2016 end-page: 1016 article-title: Autism genetic testing information needs among parents of affected children: A qualitative study. publication-title: Patient Educ Couns. contributor: fullname: Li, M; Amuta, A; Xu, L; Dhar, S; Talwar, D; Jung, E; Chen, LS. |
| SSID | ssj0068589 |
| Score | 2.175242 |
| Snippet | Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disorder (ASD). Method: An... ABSTRACT Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disorder (ASD). Method:... |
| SourceID | scielo proquest crossref |
| SourceType | Open Access Repository Aggregation Database |
| StartPage | 1 |
| SubjectTerms | Autistic children Behavior Digital broadcasting Families & family life Internet Literature reviews NURSING Podcasts Researchers Studies |
| Title | Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review |
| URI | https://www.proquest.com/docview/2429820985 http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S1657-59972020000200008&lng=en&tlng=en |
| Volume | 20 |
| hasFullText | 1 |
| inHoldings | 1 |
| isFullTextHit | |
| isPrint | |
| link | http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwfV1LS8NAEB60RfAiPrFayx4E8ZC6aZ7rRdLaUgWLqIXelk2yEcG-24P_3plkQ-tF2ENIwh6-2Z35ZnZnBuBaBSJG3hFbIhSUkmOnuOeUbQnlZj7XMVcOZSO_DPz-0H0eeSMTcFuaa5WlTswVdTpNKEZ-h6ZEoLUSofcwm1vUNYpOV00LjV2ottBT4BWotruD17dSF1NxdSLAtu8FlidEUBxUei3h3qn5-gv9wxZv0miGfw3TFtskU_S9bXV6h3Bg6CKLCvkewY6eHMOecfFP4HOg6Zq_Wvwwk1dEODN8YkjsWN7VAl1hNs1Yx2RtM4q8sgjX23LMqPv8arEes7II5z2LJuzJlJBARciKs4NTGPa6H52-ZVonWAlu0JWVhZ7gKRWzU1RdhSeOz8NYezwVjp-5LhGRxI-pNIzGV7aTop1KtZsEdpYofHMGlcl0os-BJRkFOx2u_Ji7WjjK4XEaoiOS-VR9MKnBbYmbnBUVMiR6FoSxJIwlYSxpyLAG9RJYafbKUm4kW4ObAuzNx3cSnSTR0TT5wSnRlov_J7qEffqdYrC2U4cKIqmvkDys4gZUo_Zju9cwK6WRO-G_-KDC4A |
| link.rule.ids | 230,315,783,787,867,888,21400,27936,27937,33756,43817,74630 |
| linkProvider | ProQuest |
| linkToHtml | http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwfV1LT8MwDI5gE4IL4ikGA3JAQhy6pUvbNVzQmDZtsFUINmm3KG1ThMS694F_j72m2rgg5VC1ag52Yn924s-E3Km6CAF3hJbwBZbk2DHsOWVbQjmJx3TIFMdq5H7gdYbOy8gdmYTbwlyrzG3i2lDHkwhz5FVwJQK8lfDdp-nMwq5ReLpqWmjskiJSVUHwVXxuBW_vuS1GcnUEwLbn1i1XiHp2UOnWhFNVs9UXxIc1VsFR8f86pi20ia7oe9vrtI_IoYGLtJHp95js6PSE7JkQ_5R8Bhqv-av5DzV1RShnCk8UgB1dd7WAUJhOEto0VdsUM6-0AettMabYfX45X41pTsL5SBsp7RoKCTCENDs7OCPDdmvQ7FimdYIVwQZdWonvChYjmZ1CdhUWcY_5oXZZLLiXOA4CkcgLkRpGwyubx-CnYu1EdTuJFLw5J4V0kuoLQqMEk52cKS9kjhZccRbGPgQiiYfsg1GJPORyk9OMIUNCZIEylihjiTKWOKRfIuVcsNLslYXcaLZE7jNhbz5-oOokqg6nWR-cImy5_H-iW7LfGfR7stcNXq_IAf6K-Vibl0kBpKqvAUgswxuzWn4Bq7TDcw |
| linkToPdf | http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwfV1JS8NAFH5oi-JFXLFadQ6CeEg76SSTjBepS7EuRVzA2zBJJiJoa7eD_973mgnVizCHkJA5fG_m7QvAkYlUgnpH4qlYUUmOn-GdM76nTJBLbhNuBFUj3_fk9Utw8xq-uvynsUurLHnijFFng5R85E0UJQqllYrDZu7SIh4uO2dfQ48mSFGk1Y3TWIRqFEjBK1A9v-o9PJZ8mRqtkzLsyzDyQqWiImgZtlTQNMPpO9qKLd6g1Yj_CqlfmieJpY_fEqizBqtOdWTtgtbrsGD7G7DkzP1NeOtZSvk3o2_maowIc4ZPDJU8NptwgWYxG-TswlVwM_LCsjaevfEno0n0k9H0k5UNOU9Zu8-6rp0EMkVWxBG24KVz9Xxx7bkxCl6Kl3Xi5XGoeEaN7Qx1WuGpkDxObMgzJWQeBKSUpDKhNjEWX_kiQ5mV2SCN_Dw1-GYbKv1B3-4AS3NyfApuZMIDq4QRPMliNEpySZ0I0xqclLjpr6JbhkYrgzDWhLEmjDUtHdegXgKr3b0Z6zmVa3BcgD3_-ESk00Q62mYWRCUVZvf_jQ5hGQ-Kvuv2bvdghf4k16wv6lBBUO0-6hST5MAdlh_KUseh |
| openUrl | ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=Necessary+Information+for+the+Families+of+Children+with+Autism+Spectrum+Disorder%3A+An+Integrative+Review&rft.jtitle=Aquichan&rft.au=Weissheimer%2C+Gisele&rft.au=Santana%2C+Julia+Mazul&rft.au=Ruthes%2C+Vict%C3%B3ria+Beatriz+Trevisan+N%C3%B3brega+Martins&rft.au=Mazza%2C+Ver%C3%B4nica+de+Azevedo&rft.date=2020-07-13&rft.pub=Universidad+de+La+Sabana&rft.issn=1657-5997&rft.eissn=2027-5374&rft.volume=20&rft.issue=2&rft.spage=1&rft.epage=18&rft_id=info:doi/10.5294%2Faqui.2020.20.2.8&rft.externalDBID=HAS_PDF_LINK |
| thumbnail_l | http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/lc.gif&issn=1657-5997&client=summon |
| thumbnail_m | http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/mc.gif&issn=1657-5997&client=summon |
| thumbnail_s | http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/sc.gif&issn=1657-5997&client=summon |