Determining the minimally clinically important difference for the pediatric liver transplant quality of life questionnaire

• Published in: Journal of pediatric gastroenterology and nutrition
• Main Authors: Kortbeek, Simone, Johara, Fatema T, Kwan, Karina, John, Tomisin, Ng, Vicky L
• Format: Journal Article
• Language: English
• Published: United States 01.07.2024
• Subjects: minimum important difference; patient reported outcome; patient reported outcome measure; anchor‐based methods; distribution‐based methods

The Pediatric Liver Transplant Quality of Life (PeLTQL) questionnaire is a disease-specific patient reported outcome measure for pediatric liver transplant (LT) recipients. To-date, threshold values above which a change in PeLTQL score is considered meaningful to patients are unavailable. This study...