Community Perceptions of Barriers to Stroke Recovery and Prevention in Greater Kampala, Uganda: Implications for Policy and Practice

Stroke risk and stroke burden are increasing in Sub Saharan Africa. Qualitative analysis was used to assess perceived barriers to stroke recovery and prevention in an urban/suburban Ugandan population in order to refine and implement a promising nurse and peer-led self-management intervention previo...

Full description

Saved in:
Bibliographic Details
Published inInternational journal of healthcare Vol. 3; no. 2; p. 8
Main Authors Blixen, Carol, Nakibuuka, Jane, Kaddumukasa, Mark, Nalubwama, Haddy, Amollo, Mathew, Katabira, Elly, Sajatovic, Martha
Format Journal Article
LanguageEnglish
Published United States 01.11.2017
Subjects
Online AccessGet more information

Cover

Loading…
Abstract Stroke risk and stroke burden are increasing in Sub Saharan Africa. Qualitative analysis was used to assess perceived barriers to stroke recovery and prevention in an urban/suburban Ugandan population in order to refine and implement a promising nurse and peer-led self-management intervention previously conducted in the United States. In depth nterviews and focus groups were conducted with 48 participants (stroke survivors, caretakers, and those at risk for stroke. All interviews and focus groups were audiotaped, transcribed verbatim, and analyzed using content analysis, with an emphasis on dominant themes. Three major domains of perceived barriers to stroke recovery and prevention emerged from the data: (1) Individual barriers (PTSD, stress, resistance to seeking care, medication non-adherence, unhealthy lifestyles, functional impairment, and a paucity of stroke knowledge); (2) Family/community barriers (lack of family and community support and caretaker burden); and (3) Provider and healthcare system barriers (lack of access and inadequate follow-up). Importantly, participants in this study identified a pressing need for increasing stroke awareness in the community as part of recovery and prevention efforts. Stroke risk reduction efforts implemented at the patient, community, and healthcare system levels are needed. These efforts could, perhaps, be modeled along the lines of a previous very successful public health initiative to reduce HIV burden in Uganda.
AbstractList Stroke risk and stroke burden are increasing in Sub Saharan Africa. Qualitative analysis was used to assess perceived barriers to stroke recovery and prevention in an urban/suburban Ugandan population in order to refine and implement a promising nurse and peer-led self-management intervention previously conducted in the United States. In depth nterviews and focus groups were conducted with 48 participants (stroke survivors, caretakers, and those at risk for stroke. All interviews and focus groups were audiotaped, transcribed verbatim, and analyzed using content analysis, with an emphasis on dominant themes. Three major domains of perceived barriers to stroke recovery and prevention emerged from the data: (1) Individual barriers (PTSD, stress, resistance to seeking care, medication non-adherence, unhealthy lifestyles, functional impairment, and a paucity of stroke knowledge); (2) Family/community barriers (lack of family and community support and caretaker burden); and (3) Provider and healthcare system barriers (lack of access and inadequate follow-up). Importantly, participants in this study identified a pressing need for increasing stroke awareness in the community as part of recovery and prevention efforts. Stroke risk reduction efforts implemented at the patient, community, and healthcare system levels are needed. These efforts could, perhaps, be modeled along the lines of a previous very successful public health initiative to reduce HIV burden in Uganda.
Author Kaddumukasa, Mark
Katabira, Elly
Nakibuuka, Jane
Nalubwama, Haddy
Blixen, Carol
Amollo, Mathew
Sajatovic, Martha
Author_xml – sequence: 1
  givenname: Carol
  surname: Blixen
  fullname: Blixen, Carol
  organization: Neurological and Behavioral Outcomes Center, University Hospitals Cleveland Medical Center, 11100 Euclid Avenue, Cleveland, OH 44106, USA
– sequence: 2
  givenname: Jane
  surname: Nakibuuka
  fullname: Nakibuuka, Jane
  organization: Department of Medicine, School of Medicine, Makerere University College of Health Sciences, P.O. Box 7072, Kampala, Uganda
– sequence: 3
  givenname: Mark
  surname: Kaddumukasa
  fullname: Kaddumukasa, Mark
  organization: Department of Medicine, School of Medicine, Makerere University College of Health Sciences, P.O. Box 7072, Kampala, Uganda
– sequence: 4
  givenname: Haddy
  surname: Nalubwama
  fullname: Nalubwama, Haddy
  organization: School of Public Health, Makerere University College of Health Sciences, P.O. Box 7072, Kampala, Uganda
– sequence: 5
  givenname: Mathew
  surname: Amollo
  fullname: Amollo, Mathew
  organization: School of Public Health, Makerere University College of Health Sciences, P.O. Box 7072, Kampala, Uganda
– sequence: 6
  givenname: Elly
  surname: Katabira
  fullname: Katabira, Elly
  organization: Department of Medicine, School of Medicine, Makerere University College of Health Sciences, P.O. Box 7072, Kampala, Uganda
– sequence: 7
  givenname: Martha
  surname: Sajatovic
  fullname: Sajatovic, Martha
  organization: Neurological and Behavioral Outcomes Center, University Hospitals Cleveland Medical Center, 11100 Euclid Avenue, Cleveland, OH 44106, USA
BackLink https://www.ncbi.nlm.nih.gov/pubmed/31080882$$D View this record in MEDLINE/PubMed
BookMark eNo1kNFOwjAYRhujEURufADTB3DYtVv7450uikQSico16bq_WmTt0g0S7n1wMcjVl5OcnIvvgpz64JGQq5SN8kywW7f6Gm2F5w2ckD4XSiVKZLJHhm27YoylEnIAdk56ImXAAHif_BShrjfedTs6x2iw6VzwLQ2WPugYHcaWdoG-dzF8I31DE7YYd1T7is4jbtH_6dR5OomoO4z0RdeNXusbuvjcS_qOTutm7Yw-ZG2IdB72fExo0zmDl-TM6nWLw_8dkMXT40fxnMxeJ9PifpaYFFSe8CyzXCo-zg1DYIi5AMsFGMGthSpDq0pVmkqgyseVzEFZYIqVQkqU0iIfkOtDt9mUNVbLJrpax93yeAf_BWHoZAw
CitedBy_id crossref_primary_10_1186_s12889_023_15832_3
crossref_primary_10_1016_j_jns_2017_12_032
crossref_primary_10_1097_NPT_0000000000000395
crossref_primary_10_1186_s13104_017_3009_7
ContentType Journal Article
DBID NPM
DOI 10.5430/ijh.v3n2p8
DatabaseName PubMed
DatabaseTitle PubMed
DatabaseTitleList PubMed
Database_xml – sequence: 1
  dbid: NPM
  name: PubMed
  url: https://proxy.k.utb.cz/login?url=http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed
  sourceTypes: Index Database
DeliveryMethod no_fulltext_linktorsrc
Discipline Public Health
EISSN 2377-7346
ExternalDocumentID 31080882
Genre Journal Article
GrantInformation_xml – fundername: NINDS NIH HHS
  grantid: R21 NS094022
GroupedDBID AEEAL
ALMA_UNASSIGNED_HOLDINGS
NPM
ID FETCH-LOGICAL-c1875-244f267295c0e80ee538f238c32ff8d4ef7b7bcd3e759d6587f8070b366e66fe2
IngestDate Sat Nov 02 12:12:17 EDT 2024
IsPeerReviewed false
IsScholarly true
Issue 2
Keywords Uganda
barriers
recovery
stroke
prevention
burden
Language English
LinkModel OpenURL
MergedId FETCHMERGED-LOGICAL-c1875-244f267295c0e80ee538f238c32ff8d4ef7b7bcd3e759d6587f8070b366e66fe2
PMID 31080882
ParticipantIDs pubmed_primary_31080882
PublicationCentury 2000
PublicationDate 2017-Nov
PublicationDateYYYYMMDD 2017-11-01
PublicationDate_xml – month: 11
  year: 2017
  text: 2017-Nov
PublicationDecade 2010
PublicationPlace United States
PublicationPlace_xml – name: United States
PublicationTitle International journal of healthcare
PublicationTitleAlternate Int J Healthc
PublicationYear 2017
SSID ssj0001685880
Score 2.0601313
Snippet Stroke risk and stroke burden are increasing in Sub Saharan Africa. Qualitative analysis was used to assess perceived barriers to stroke recovery and...
SourceID pubmed
SourceType Index Database
StartPage 8
Title Community Perceptions of Barriers to Stroke Recovery and Prevention in Greater Kampala, Uganda: Implications for Policy and Practice
URI https://www.ncbi.nlm.nih.gov/pubmed/31080882
Volume 3
hasFullText
inHoldings 1
isFullTextHit
isPrint
link http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwnV3fb9MwELY6kNCkCQFj_NhA98AbZLSxEyd7Ywg0mNQXVmlvU-zYW7c2rboGGM_8SfyBnH8k8aoxAS9RlWutyPf1fP7y3ZmQVzkrdVzqPBrg2hqxRPGoQM_jH08NSt4v81xale8wPRixz8fJca_3K1At1UuxK3_cWFfyP17Fe-hXUyX7D55tB8Ub-Bn9i1f0MF7_yse-usNU-XX6FJP-7RcLcxKd7d7wZbmYXZjTGaRRa1758gAV6BwtTaAWrw9N88WJzSZHp4ZhMHTBp1BybjSJrpOwH8aVWIUZ7nWKMWhMcdYqzVoKYDL-7qJeIztxvDQmtaKuL7yKt3vvf4hRsp6i4bJYLTMaFpNafCum1mCi6VVIZ-ASOWjpDGXDXkw5jzj1xKSP0TSAYhzE2-ymVSBh1Mgmx-dnu19pFc-vfQlnbj61eKBGXpm5o49ut6505G5Ma2SNZ-a4kKFniCyvZxr6Z33XCdc8ydvuOdbJvea3K7sYm80cPSD3_TYE3jlMPSQ9VT0iG47DBVeatkl-tviCAF8w09DgC5YzcPiCBl-AwIAOXzCuwOMLPL7egEPXHoTYAsQWOGz5IRy2HpPRxw9H7w8if2pHJAe4-Y0wX9Rxinu2RPZV1lcKl1SNiaGksdZZyZTmggtZUsWTvMQEmOsM1x1B01SlqVbxFrlTzSr1lIDQPBdGaUBlwjiTgimWC0klBhJWSPWMPHGTeDJ3rVlOmul9_kfLNlnvYLdD7mqMBeoFJpZL8dJ68jd_Nn_i
link.rule.ids 780
linkProvider National Library of Medicine
openUrl ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=Community+Perceptions+of+Barriers+to+Stroke+Recovery+and+Prevention+in+Greater+Kampala%2C+Uganda%3A+Implications+for+Policy+and+Practice&rft.jtitle=International+journal+of+healthcare&rft.au=Blixen%2C+Carol&rft.au=Nakibuuka%2C+Jane&rft.au=Kaddumukasa%2C+Mark&rft.au=Nalubwama%2C+Haddy&rft.date=2017-11-01&rft.eissn=2377-7346&rft.volume=3&rft.issue=2&rft.spage=8&rft_id=info:doi/10.5430%2Fijh.v3n2p8&rft_id=info%3Apmid%2F31080882&rft_id=info%3Apmid%2F31080882&rft.externalDocID=31080882