“I'm So Passive, Every Visit Is a Challenge”: Stigma Experienced by Older People Living With HIV During Follow-up Health Care Visits in Wuxi, China—A Qualitative Study

HIV-related stigma remains a significant challenge for older people living with HIV (PLWH), particularly during routine health care visits. Our qualitative study explores the perceptions and experiences of stigma among 12 older PLWH in Wuxi, China, through semi-structured interviews. Using Braun and...

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Published inThe Journal of the Association of Nurses in AIDS Care
Main Authors Hao, Jiaxin, Feng, Limei, Zhang, Dan, Chen, Judi
Format Journal Article
LanguageEnglish
Published United States 14.05.2025
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ISSN1055-3290
1552-6917
1552-6917
DOI10.1097/JNC.0000000000000557

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Abstract HIV-related stigma remains a significant challenge for older people living with HIV (PLWH), particularly during routine health care visits. Our qualitative study explores the perceptions and experiences of stigma among 12 older PLWH in Wuxi, China, through semi-structured interviews. Using Braun and Clarke's thematic analysis, 4 primary themes emerged: (a) self-psychological emotional experiences, including both negative and positive encounters; (b) personal stigma-related medical behaviors, such as voluntary disclosure and seeking care for non–HIV-related conditions; (c) medical expectations regarding HIV treatment and health care providers; and (d) insufficient medical support, including digital divide and economic constraints. Participants faced diverse challenges, highlighting the need for comprehensive strategies to address stigma in health care visits for older PLWH.
AbstractList HIV-related stigma remains a significant challenge for older people living with HIV (PLWH), particularly during routine health care visits. Our qualitative study explores the perceptions and experiences of stigma among 12 older PLWH in Wuxi, China, through semi-structured interviews. Using Braun and Clarke's thematic analysis, 4 primary themes emerged: (a) self-psychological emotional experiences, including both negative and positive encounters; (b) personal stigma-related medical behaviors, such as voluntary disclosure and seeking care for non–HIV-related conditions; (c) medical expectations regarding HIV treatment and health care providers; and (d) insufficient medical support, including digital divide and economic constraints. Participants faced diverse challenges, highlighting the need for comprehensive strategies to address stigma in health care visits for older PLWH.
HIV-related stigma remains a significant challenge for older people living with HIV (PLWH), particularly during routine health care visits. Our qualitative study explores the perceptions and experiences of stigma among 12 older PLWH in Wuxi, China, through semi-structured interviews. Using Braun and Clarke's thematic analysis, 4 primary themes emerged: (a) self-psychological emotional experiences, including both negative and positive encounters; (b) personal stigma-related medical behaviors, such as voluntary disclosure and seeking care for non-HIV-related conditions; (c) medical expectations regarding HIV treatment and health care providers; and (d) insufficient medical support, including digital divide and economic constraints. Participants faced diverse challenges, highlighting the need for comprehensive strategies to address stigma in health care visits for older PLWH.ABSTRACTHIV-related stigma remains a significant challenge for older people living with HIV (PLWH), particularly during routine health care visits. Our qualitative study explores the perceptions and experiences of stigma among 12 older PLWH in Wuxi, China, through semi-structured interviews. Using Braun and Clarke's thematic analysis, 4 primary themes emerged: (a) self-psychological emotional experiences, including both negative and positive encounters; (b) personal stigma-related medical behaviors, such as voluntary disclosure and seeking care for non-HIV-related conditions; (c) medical expectations regarding HIV treatment and health care providers; and (d) insufficient medical support, including digital divide and economic constraints. Participants faced diverse challenges, highlighting the need for comprehensive strategies to address stigma in health care visits for older PLWH.
Author Feng, Limei
Hao, Jiaxin
Zhang, Dan
Chen, Judi
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Keywords descriptive qualitative research
intersectional stigma
older people living with HIV
China
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Title “I'm So Passive, Every Visit Is a Challenge”: Stigma Experienced by Older People Living With HIV During Follow-up Health Care Visits in Wuxi, China—A Qualitative Study
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