H49 The Huntington’s disease quality of life battery for carers (HDQOL-CS): evidence from the Huntington’s disease burden of illness (HDBOI) study for Europe

• Published in: Journal of neurology, neurosurgery and psychiatry Vol. 93; no. Suppl 1; p. A80
• Main Authors: Rodriguez-Santana, Idaira, Willock, Rosa, Frank, Samuel, Mestre, Tiago, Hamilton, Jamie L, Stanley, Cath, Vetter, Louise, Hernandez-Jimenez, Elena, Dolmetsch, Ricardo, Ratsch, Sarah, Ali, Talaha M
• Format: Journal Article
• Language: English
• Published: London BMJ Publishing Group Ltd 12.09.2022; BMJ Publishing Group LTD
• Subjects: Caregiver; Caregivers; H: Clinical care and clinical services; HDQoL-Cs; Humanistic Burden; Huntingtons disease; Huntington’s disease; Quality of life; quality of life (QoL)

BackgroundHuntington’s Disease (HD) progresses over time, impacting mental health, work productivity and inter-personal relationships of the person with HD (PwHD) and their caregivers. We explore the impact of HD on caregiver’s quality of life (QoL) using the Huntington’s Disease Quality of Life Bat...