Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study
IntroductionAdequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality personalised care at the end of life in different countr...
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| Published in | BMJ open Vol. 12; no. 8; p. e057229 |
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| Main Authors | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
| Format | Journal Article |
| Language | English |
| Published |
London
British Medical Journal Publishing Group
01.08.2022
BMJ Publishing Group LTD BMJ Publishing Group |
| Series | Protocol |
| Subjects | |
| Online Access | Get full text |
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| Abstract | IntroductionAdequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality personalised care at the end of life in different countries and cultures, by investigating the experiences, concerns, preferences and use of care of terminally ill patients and their families.Methods and analysisThe iLIVE study is an international cohort study in which patients with an estimated life expectancy of 6 months or less are followed up until they die. In total, 2200 patients will be included in 11 countries, that is, 200 per country. In addition, one relative per patient is invited to participate. All participants will be asked to fill in a questionnaire, at baseline and after 4 weeks. If a patient dies within 6 months of follow-up, the relative will be asked to fill in a post-bereavement questionnaire. Healthcare use in the last week of life will be evaluated as well; healthcare staff who attended the patient will be asked to fill in a brief questionnaire to evaluate the care that was provided. Qualitative interviews will be conducted with patients, relatives and healthcare professionals in all countries to gain more in-depth insights.Ethics and disseminationThe cohort study has been approved by ethics committees and the institutional review boards (IRBs) of participating institutes in all countries. Results will be disseminated through the project website, publications in scientific journals and at conferences. Within the project, there will be a working group focusing on enhancing the engagement of the community at large with the reality of death and dying.Trial registration numberNCT04271085. |
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| AbstractList | Introduction
Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality personalised care at the end of life in different countries and cultures, by investigating the experiences, concerns, preferences and use of care of terminally ill patients and their families.
Methods and analysis
The iLIVE study is an international cohort study in which patients with an estimated life expectancy of 6 months or less are followed up until they die. In total, 2200 patients will be included in 11 countries, that is, 200 per country. In addition, one relative per patient is invited to participate. All participants will be asked to fill in a questionnaire, at baseline and after 4 weeks. If a patient dies within 6 months of follow-up, the relative will be asked to fill in a post-bereavement questionnaire. Healthcare use in the last week of life will be evaluated as well; healthcare staff who attended the patient will be asked to fill in a brief questionnaire to evaluate the care that was provided. Qualitative interviews will be conducted with patients, relatives and healthcare professionals in all countries to gain more in-depth insights.
Ethics and dissemination
The cohort study has been approved by ethics committees and the institutional review boards (IRBs) of participating institutes in all countries. Results will be disseminated through the project website, publications in scientific journals and at conferences. Within the project, there will be a working group focusing on enhancing the engagement of the community at large with the reality of death and dying.
Trial registration number
NCT04271085
. Introduction Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality personalised care at the end of life in different countries and cultures, by investigating the experiences, concerns, preferences and use of care of terminally ill patients and their families. Methods and analysis The iLIVE study is an international cohort study in which patients with an estimated life expectancy of 6 months or less are followed up until they die. In total, 2200 patients will be included in 11 countries, that is, 200 per country. In addition, one relative per patient is invited to participate. All participants will be asked to fill in a questionnaire, at baseline and after 4 weeks. If a patient dies within 6 months of follow-up, the relative will be asked to fill in a post-bereavement questionnaire. Healthcare use in the last week of life will be evaluated as well; healthcare staff who attended the patient will be asked to fill in a brief questionnaire to evaluate the care that was provided. Qualitative interviews will be conducted with patients, relatives and healthcare professionals in all countries to gain more in-depth insights. Ethics and dissemination The cohort study has been approved by ethics committees and the institutional review boards (IRBs) of participating institutes in all countries. Results will be disseminated through the project website, publications in scientific journals and at conferences. Within the project, there will be a working group focusing on enhancing the engagement of the community at large with the reality of death and dying. Trial registration number NCT04271085. © Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY. Published by BMJ. IntroductionAdequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality personalised care at the end of life in different countries and cultures, by investigating the experiences, concerns, preferences and use of care of terminally ill patients and their families.Methods and analysisThe iLIVE study is an international cohort study in which patients with an estimated life expectancy of 6 months or less are followed up until they die. In total, 2200 patients will be included in 11 countries, that is, 200 per country. In addition, one relative per patient is invited to participate. All participants will be asked to fill in a questionnaire, at baseline and after 4 weeks. If a patient dies within 6 months of follow-up, the relative will be asked to fill in a post-bereavement questionnaire. Healthcare use in the last week of life will be evaluated as well; healthcare staff who attended the patient will be asked to fill in a brief questionnaire to evaluate the care that was provided. Qualitative interviews will be conducted with patients, relatives and healthcare professionals in all countries to gain more in-depth insights.Ethics and disseminationThe cohort study has been approved by ethics committees and the institutional review boards (IRBs) of participating institutes in all countries. Results will be disseminated through the project website, publications in scientific journals and at conferences. Within the project, there will be a working group focusing on enhancing the engagement of the community at large with the reality of death and dying.Trial registration numberNCT04271085. Introduction Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality personalised care at the end of life in different countries and cultures, by investigating the experiences, concerns, preferences and use of care of terminally ill patients and their families.Methods and analysis The iLIVE study is an international cohort study in which patients with an estimated life expectancy of 6 months or less are followed up until they die. In total, 2200 patients will be included in 11 countries, that is, 200 per country. In addition, one relative per patient is invited to participate. All participants will be asked to fill in a questionnaire, at baseline and after 4 weeks. If a patient dies within 6 months of follow-up, the relative will be asked to fill in a post-bereavement questionnaire. Healthcare use in the last week of life will be evaluated as well; healthcare staff who attended the patient will be asked to fill in a brief questionnaire to evaluate the care that was provided. Qualitative interviews will be conducted with patients, relatives and healthcare professionals in all countries to gain more in-depth insights.Ethics and dissemination The cohort study has been approved by ethics committees and the institutional review boards (IRBs) of participating institutes in all countries. Results will be disseminated through the project website, publications in scientific journals and at conferences. Within the project, there will be a working group focusing on enhancing the engagement of the community at large with the reality of death and dying.Trial registration number NCT04271085. |
| Author | Tripodoro, Vilma Hughes, Rosemary Allan, Simon Goossensen, Anne Strupp, Julia Kodba-Ceh, Hana Korfage, Ida J Ruiz-Torreras, Inmaculada Yildiz, Berivan Goldraij, Gabriel Schelin, Maria E C Joshi, Melanie Ellershaw, John Veloso, Verónica I Sigurdardottir, Katrin Ruth Fischer, Claudia Rasmussen, Birgit H De Simone, Gustavo G Simon, Judit Barnestein-Fonseca, Pilar van der Heide, Agnes Egloff, Martina Mason, Stephen Solvåg, Kjersti Zambrano, Sofia C Eychmüller, Steffen Christen, Andri Martín-Roselló, Maria Luisa Haugen, Dagny Faksvåg Hedman, Christel Montilla, Silvi Vibora-Martin, Eva Boughey, Mark Lunder, Urska Halfdanardottir, Svandis Iris Lüthi, Nora Sigurdardottir, Valgerdur van der Rijt, Carin C D McGlinchey, Tamsin Berger, Michael Hoppe, Tanja Iversen, Grethe Skorpen Fürst, Carl Johan van der Kuy, Hugo M Bakan, Misa Smeding, Ruthmarijke Voltz, Raymond Elsten, Eline E C M Geijteman, Eric C T van Zuylen, Lia |
| AuthorAffiliation | 21 Group CA15: Palliative Care , IBIMA Institute , Malaga , Spain 12 Institute for Palliative Care at Lund University and Region Skåne , Lund University , Lund , Sweden 2 Arohanui Hospice , Palmerston North , New Zealand 11 Department of Medical Oncology, Erasmus MC Cancer Institute , Erasmus MC University Medical Center Rotterdam , Rotterdam , The Netherlands 20 Department of Palliative Medicine , Faculty of Medicine and University Hospital, University of Cologne , Cologne , Germany 24 Department of Clinical Pharmacy , Erasmus MC, University Medical Center , Rotterdam , The Netherlands 10 Palliative Care Unit, Institute of Life Course and Medical Sciences , University of Liverpool , Liverpool , UK 17 Regional Centre of Excellence for Palliative Care , Haukeland University Hospital, Western Norway , Bergen , Norway 6 Department of Health Economics, Center for Public Health , Medical University of Vienna , Wien , Austria 9 Research Network RED-InPal , Institute Pallium Latinoamérica , Buenos Air |
| AuthorAffiliation_xml | – name: 5 Group C08: Pharma Economy: Clinical and Economic Evaluation of Medication and Palliative Care , Ibima Institute , Malaga , Spain – name: 6 Department of Health Economics, Center for Public Health , Medical University of Vienna , Wien , Austria – name: 13 Division of Oncology and Pathology, Department of Clinical Sciences , Lund University , Lund , Sweden – name: 14 Internal Medicine/Palliative Care Program , Hospital Privado Universitario de Córdoba , Cordoba , Argentina – name: 24 Department of Clinical Pharmacy , Erasmus MC, University Medical Center , Rotterdam , The Netherlands – name: 25 Department of Medical Oncology , Amsterdam University Medical Center , Amsterdam , The Netherlands – name: 26 Center for Integrated Oncology Aachen Bonn Cologne Dusseldorf (CIO ABCD) , Faculty of Medicine and University Hospital, University of Cologne , Cologne , Germany – name: 4 CUDECA Institute for Training and Research in Palliative Care , CUDECA Hospice Foundation , Malaga , Spain – name: 27 Clinical Trials Center (ZKS) , Faculty of Medicine and University Hospital, University of Cologne , Cologne , Germany – name: 9 Research Network RED-InPal , Institute Pallium Latinoamérica , Buenos Aires , Argentina – name: 1 Department of Public Health , Erasmus MC, University Medical Center Rotterdam , Rotterdam , The Netherlands – name: 20 Department of Palliative Medicine , Faculty of Medicine and University Hospital, University of Cologne , Cologne , Germany – name: 2 Arohanui Hospice , Palmerston North , New Zealand – name: 17 Regional Centre of Excellence for Palliative Care , Haukeland University Hospital, Western Norway , Bergen , Norway – name: 23 Specialist Palliative Care Team, Department of Anaesthesia and Surgical Services , Haukeland University Hospital , Bergen , Norway – name: 11 Department of Medical Oncology, Erasmus MC Cancer Institute , Erasmus MC University Medical Center Rotterdam , Rotterdam , The Netherlands – name: 18 Department of Clinical Medicine K1 , University of Bergen , Bergen , Norway – name: 29 Institute for Social and Preventive Medicine (ISPM) , University of Bern , Bern , Switzerland – name: 7 Department of Palliative Care , St Vincent's Hospital Melbourne , Fitzroy , Victoria , Australia – name: 21 Group CA15: Palliative Care , IBIMA Institute , Malaga , Spain – name: 12 Institute for Palliative Care at Lund University and Region Skåne , Lund University , Lund , Sweden – name: 22 Institute of Medical Research A. Lanari , University of Buenos Aires , Buenos Aires , Argentina – name: 3 Research Department , University Clinic of Respiratory and Allergic Diseases Golnik , Golnik , Slovenia – name: 8 University Center for Palliative Care , Inselspital University Hospital Bern, University of Bern , Bern , Switzerland – name: 28 Center for Health Services Research (ZVFK) , Faculty of Medicine and University Hospital , Cologne , Germany – name: 19 Research Department , Stiftelsen Stockholms Sjukhem , Stockholm , Sweden – name: 10 Palliative Care Unit, Institute of Life Course and Medical Sciences , University of Liverpool , Liverpool , UK – name: 15 Informal Care and Care Ethics , University of Humanistic Studies , Utrecht , The Netherlands – name: 16 Palliative Care Unit , Landspitali - National University Hospital , Reykjavik , Iceland |
| Author_xml | – sequence: 1 givenname: Berivan orcidid: 0000-0002-2385-213X surname: Yildiz fullname: Yildiz, Berivan email: b.yildiz@erasmusmc.nl organization: Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands – sequence: 2 givenname: Simon surname: Allan fullname: Allan, Simon organization: Arohanui Hospice, Palmerston North, New Zealand – sequence: 3 givenname: Misa surname: Bakan fullname: Bakan, Misa organization: Research Department, University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia – sequence: 4 givenname: Pilar surname: Barnestein-Fonseca fullname: Barnestein-Fonseca, Pilar organization: Group C08: Pharma Economy: Clinical and Economic Evaluation of Medication and Palliative Care, Ibima Institute, Malaga, Spain – sequence: 5 givenname: Michael surname: Berger fullname: Berger, Michael organization: Department of Health Economics, Center for Public Health, Medical University of Vienna, Wien, Austria – sequence: 6 givenname: Mark surname: Boughey fullname: Boughey, Mark organization: Department of Palliative Care, St Vincent's Hospital Melbourne, Fitzroy, Victoria, Australia – sequence: 7 givenname: Andri surname: Christen fullname: Christen, Andri organization: University Center for Palliative Care, Inselspital University Hospital Bern, University of Bern, Bern, Switzerland – sequence: 8 givenname: Gustavo G surname: De Simone fullname: De Simone, Gustavo G organization: Research Network RED-InPal, Institute Pallium Latinoamérica, Buenos Aires, Argentina – sequence: 9 givenname: Martina surname: Egloff fullname: Egloff, Martina organization: University Center for Palliative Care, Inselspital University Hospital Bern, University of Bern, Bern, Switzerland – sequence: 10 givenname: John surname: Ellershaw fullname: Ellershaw, John organization: Palliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK – sequence: 11 givenname: Eline E C M surname: Elsten fullname: Elsten, Eline E C M organization: Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands – sequence: 12 givenname: Steffen surname: Eychmüller fullname: Eychmüller, Steffen organization: University Center for Palliative Care, Inselspital University Hospital Bern, University of Bern, Bern, Switzerland – sequence: 13 givenname: Claudia orcidid: 0000-0001-7574-8097 surname: Fischer fullname: Fischer, Claudia organization: Department of Health Economics, Center for Public Health, Medical University of Vienna, Wien, Austria – sequence: 14 givenname: Carl Johan surname: Fürst fullname: Fürst, Carl Johan organization: Division of Oncology and Pathology, Department of Clinical Sciences, Lund University, Lund, Sweden – sequence: 15 givenname: Eric C T surname: Geijteman fullname: Geijteman, Eric C T organization: Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands – sequence: 16 givenname: Gabriel surname: Goldraij fullname: Goldraij, Gabriel organization: Internal Medicine/Palliative Care Program, Hospital Privado Universitario de Córdoba, Cordoba, Argentina – sequence: 17 givenname: Anne surname: Goossensen fullname: Goossensen, Anne organization: Informal Care and Care Ethics, University of Humanistic Studies, Utrecht, The Netherlands – sequence: 18 givenname: Svandis Iris surname: Halfdanardottir fullname: Halfdanardottir, Svandis Iris organization: Palliative Care Unit, Landspitali - 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Lanari, University of Buenos Aires, Buenos Aires, Argentina – sequence: 33 givenname: Birgit H surname: Rasmussen fullname: Rasmussen, Birgit H organization: Institute for Palliative Care at Lund University and Region Skåne, Lund University, Lund, Sweden – sequence: 34 givenname: Inmaculada surname: Ruiz-Torreras fullname: Ruiz-Torreras, Inmaculada organization: Group CA15: Palliative Care, IBIMA Institute, Malaga, Spain – sequence: 35 givenname: Maria E C surname: Schelin fullname: Schelin, Maria E C organization: Division of Oncology and Pathology, Department of Clinical Sciences, Lund University, Lund, Sweden – sequence: 36 givenname: Katrin Ruth surname: Sigurdardottir fullname: Sigurdardottir, Katrin Ruth organization: Specialist Palliative Care Team, Department of Anaesthesia and Surgical Services, Haukeland University Hospital, Bergen, Norway – sequence: 37 givenname: Valgerdur surname: Sigurdardottir fullname: Sigurdardottir, Valgerdur organization: Palliative Care Unit, Landspitali - National University Hospital, Reykjavik, Iceland – sequence: 38 givenname: Judit surname: Simon fullname: Simon, Judit organization: Department of Health Economics, Center for Public Health, Medical University of Vienna, Wien, Austria – sequence: 39 givenname: Ruthmarijke surname: Smeding fullname: Smeding, Ruthmarijke organization: Palliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK – sequence: 40 givenname: Kjersti surname: Solvåg fullname: Solvåg, Kjersti organization: Regional Centre of Excellence for Palliative Care, Haukeland University Hospital, Western Norway, Bergen, Norway – sequence: 41 givenname: Julia orcidid: 0000-0003-3135-2693 surname: Strupp fullname: Strupp, Julia organization: Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany – sequence: 42 givenname: Vilma surname: Tripodoro fullname: Tripodoro, Vilma organization: Institute of Medical Research A. Lanari, University of Buenos Aires, Buenos Aires, Argentina – sequence: 43 givenname: Hugo M orcidid: 0000-0002-7128-8801 surname: van der Kuy fullname: van der Kuy, Hugo M organization: Department of Clinical Pharmacy, Erasmus MC, University Medical Center, Rotterdam, The Netherlands – sequence: 44 givenname: Carin C D surname: van der Rijt fullname: van der Rijt, Carin C D organization: Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands – sequence: 45 givenname: Lia surname: van Zuylen fullname: van Zuylen, Lia organization: Department of Medical Oncology, Amsterdam University Medical Center, Amsterdam, The Netherlands – sequence: 46 givenname: Verónica I surname: Veloso fullname: Veloso, Verónica I organization: Institute of Medical Research A. Lanari, University of Buenos Aires, Buenos Aires, Argentina – sequence: 47 givenname: Eva surname: Vibora-Martin fullname: Vibora-Martin, Eva organization: CUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice Foundation, Malaga, Spain – sequence: 48 givenname: Raymond surname: Voltz fullname: Voltz, Raymond organization: Center for Health Services Research (ZVFK), Faculty of Medicine and University Hospital, Cologne, Germany – sequence: 49 givenname: Sofia C surname: Zambrano fullname: Zambrano, Sofia C organization: Institute for Social and Preventive Medicine (ISPM), University of Bern, Bern, Switzerland – sequence: 50 givenname: Agnes surname: van der Heide fullname: van der Heide, Agnes organization: Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands |
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| Cites_doi | 10.1503/cmaj.050626 10.1016/j.jpainsymman.2017.12.485 10.1002/mpr.329 10.1007/s40258-018-0418-2 10.1177/0269216315624890 10.2190/FGHE-YXHX-QJEA-MTM0 10.1177/0269216318818299 10.1136/bmjopen-2019-035760 10.1093/geront/45.5.651 10.1056/NEJMsa0907901 10.1186/1472-684X-4-7 10.1001/jama.2013.281053 10.1080/074811801750058609 10.1177/0269216314557882 10.1136/bmjopen-2015-009032 10.1089/jpm.2017.0179 10.1016/j.ejca.2009.02.008 10.1177/0269216315616759 10.1089/jpm.2012.0303 10.1016/S0140-6736(98)90329-4 10.1108/17570980200800005 10.1177/0269216316650616 10.1093/annonc/mdw654 10.1186/s12904-020-00654-6 10.1186/s12877-017-0426-3 10.1007/s00520-018-4181-6 10.1001/archinte.164.9.977 10.1097/00007632-200012150-00014 10.1186/s12904-018-0345-x 10.1136/bmjspcare-2013-000551 10.1016/j.jpainsymman.2011.05.013 10.1177/082585979100700202 10.1001/jamainternmed.2013.180 10.1016/j.jpainsymman.2014.09.003 10.1186/1741-7015-11-111 10.3109/0284186X.2011.554434 10.1016/S0140-6736(02)12022-8 10.1046/j.1532-5415.2002.50410.x 10.1136/bmjspcare-2013-000488 10.1111/j.1365-2753.2010.01434.x 10.1007/s11096-015-0148-6 10.1016/j.socscimed.2003.09.005 10.1186/1471-2288-12-123 10.1016/j.ejca.2005.06.022 10.1186/s12916-017-0907-4 10.1177/10459602013003004 10.1191/0269216305pm1036oa 10.1016/B978-0-12-803831-4.00003-8 10.1080/07481180125831 |
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| DOI | 10.1136/bmjopen-2021-057229 |
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| References | (R39) 2013; 310 Gysels, Evans, Higginson (R41) 2012; 12 Vig, Pearlman (R5) 2004; 164 Fischer, Chwala, Simon (R34) 2020; 10 Lee (R12) 2002; 4 White, Kupeli, Vickerstaff (R23) 2017; 15 Mestres Gonzalvo, de Wit, van Oijen (R37) 2017; 17 Catt, Blanchard, Addington-Hall (R45) 2005; 19 Emanuel, Emanuel (R11) 1998; 351 Bruera, Kuehn, Miller (R46) 1991; 7 Hogan, Greenfield, Schmidt (R55) 2001; 25 Rochigneux, Raoul, Beaussant (R14) 2017; 28 Martinsson, Heedman, Lundström (R58) 2011; 50 Highet, Crawford, Murray (R24) 2014; 4 Srivastava (R26) 2008; 1 Zambrano, Haugen, van der Heide (R38) 2020; 19 Chochinov, Hack, Hassard (R2) 2002; 360 Landfeldt, Zethraeus, Lindgren (R54) 2019; 17 Heyland, Dodek, Rocker (R1) 2006; 174 Silveira, Kim, Langa (R9) 2010; 362 Winter (R3) 2013; 16 Mayland, Gerlach, Sigurdardottir (R56) 2019; 33 Todd, Holmes (R35) 2015; 37 Heyland, Barwich, Pichora (R10) 2013; 173 Sousa, Rojjanasrirat (R29) 2011; 17 Sampson, Finlay, Byrne (R19) 2014; 4 Canaway, Al-Janabi, Kinghorn (R52) 2017; 31 Groenvold, Petersen, Aaronson (R47) 2006; 42 Price, Goodwin, Rayner (R27) 2012; 43 Jonasson, Hauksdóttir, Valdimarsdóttir (R16) 2009; 45 Wasserman, Clair, Ritchey (R50) 2005; 51 Abernethy, Shelby-James, Fazekas (R57) 2005; 4 Thomas, Morris, Clark (R6) 2004; 58 Kars, van Thiel, van der Graaf (R43) 2016; 30 Bailey, Kinghorn, Orlando (R49) 2016; 30 Sandsdalen, Hov, Høye (R4) 2015; 29 Black, McGlinchey, Gambles (R18) 2018; 17 Hui, dos Santos, Chisholm (R7) 2015; 50 Beaton, Bombardier, Guillemin (R30) 2000; 25 Kramer, Auer (R8) 2005; 45 Tang, Chen, Wen (R13) 2018; 55 Giger, Davidhizar (R25) 2002; 13 Arevalo, Geijteman, Huisman (R36) 2018; 21 Bernacki, Hutchings, Vick (R44) 2015; 5 Vig, Davenport, Pearlman (R22) 2002; 50 Raijmakers, Zijlstra, van Roij (R15) 2018; 26 Azur, Stuart, Frangakis (R33) 2011; 20 Higginson, Evans, Grande (R42) 2013; 11 Rochigneux (2022090110202428000_12.8.e057229.14) 2017; 28 Hui (2022090110202428000_12.8.e057229.7) 2015; 50 Zambrano (2022090110202428000_12.8.e057229.38) 2020; 19 Bruera (2022090110202428000_12.8.e057229.46) 1991; 7 Jonasson (2022090110202428000_12.8.e057229.16) 2009; 45 Wasserman (2022090110202428000_12.8.e057229.50) 2005; 51 2022090110202428000_12.8.e057229.9 2022090110202428000_12.8.e057229.6 2022090110202428000_12.8.e057229.40 2022090110202428000_12.8.e057229.5 2022090110202428000_12.8.e057229.8 2022090110202428000_12.8.e057229.42 2022090110202428000_12.8.e057229.41 2022090110202428000_12.8.e057229.2 2022090110202428000_12.8.e057229.1 2022090110202428000_12.8.e057229.4 2022090110202428000_12.8.e057229.48 2022090110202428000_12.8.e057229.47 2022090110202428000_12.8.e057229.49 2022090110202428000_12.8.e057229.44 2022090110202428000_12.8.e057229.43 Tang (2022090110202428000_12.8.e057229.13) 2018; 55 2022090110202428000_12.8.e057229.45 Mayland (2022090110202428000_12.8.e057229.56) 2019; 33 Srivastava (2022090110202428000_12.8.e057229.26) 2008; 1 Winter (2022090110202428000_12.8.e057229.3) 2013; 16 Mestres Gonzalvo (2022090110202428000_12.8.e057229.37) 2017; 17 2022090110202428000_12.8.e057229.31 2022090110202428000_12.8.e057229.30 2022090110202428000_12.8.e057229.39 2022090110202428000_12.8.e057229.33 2022090110202428000_12.8.e057229.32 2022090110202428000_12.8.e057229.35 2022090110202428000_12.8.e057229.34 Arevalo (2022090110202428000_12.8.e057229.36) 2018; 21 Canaway (2022090110202428000_12.8.e057229.52) 2017; 31 2022090110202428000_12.8.e057229.29 2022090110202428000_12.8.e057229.20 Heyland (2022090110202428000_12.8.e057229.10) 2013; 173 Raijmakers (2022090110202428000_12.8.e057229.15) 2018; 26 Lee (2022090110202428000_12.8.e057229.12) 2002; 4 2022090110202428000_12.8.e057229.25 2022090110202428000_12.8.e057229.28 2022090110202428000_12.8.e057229.27 2022090110202428000_12.8.e057229.22 2022090110202428000_12.8.e057229.21 2022090110202428000_12.8.e057229.24 2022090110202428000_12.8.e057229.23 2022090110202428000_12.8.e057229.19 2022090110202428000_12.8.e057229.18 2022090110202428000_12.8.e057229.51 2022090110202428000_12.8.e057229.53 Emanuel (2022090110202428000_12.8.e057229.11) 1998; 351 2022090110202428000_12.8.e057229.58 2022090110202428000_12.8.e057229.17 2022090110202428000_12.8.e057229.55 Landfeldt (2022090110202428000_12.8.e057229.54) 2019; 17 2022090110202428000_12.8.e057229.57 |
| References_xml | – volume: 174 start-page: 627 year: 2006 ident: R1 article-title: What matters most in end-of-life care: perceptions of seriously ill patients and their family members publication-title: CMAJ doi: 10.1503/cmaj.050626 contributor: fullname: Rocker – volume: 55 start-page: 1068 year: 2018 ident: R13 article-title: Accurate Prognostic Awareness Facilitates, Whereas Better Quality of Life and More Anxiety Symptoms Hinder End-of-Life Care Discussions: A Longitudinal Survey Study in Terminally Ill Cancer Patients’ Last Six Months of Life publication-title: J Pain Symptom Manage doi: 10.1016/j.jpainsymman.2017.12.485 contributor: fullname: Wen – volume: 20 start-page: 40 year: 2011 ident: R33 article-title: Multiple imputation by chained equations: what is it and how does it work? publication-title: Int J Methods Psychiatr Res doi: 10.1002/mpr.329 contributor: fullname: Frangakis – volume: 17 start-page: 15 year: 2019 ident: R54 article-title: Standardized questionnaire for the measurement, valuation, and estimation of costs of informal care based on the opportunity cost and proxy good method publication-title: Appl Health Econ Health Policy doi: 10.1007/s40258-018-0418-2 contributor: fullname: Lindgren – volume: 30 start-page: 642 year: 2016 ident: R49 article-title: ‘The ICECAP-SCM tells you more about what I’m going through’: A think-aloud study measuring quality of life among patients receiving supportive and palliative care publication-title: Palliat Med doi: 10.1177/0269216315624890 contributor: fullname: Orlando – volume: 51 start-page: 229 year: 2005 ident: R50 article-title: A scale to assess attitudes toward euthanasia publication-title: Omega doi: 10.2190/FGHE-YXHX-QJEA-MTM0 contributor: fullname: Ritchey – volume: 4 start-page: 98 year: 2002 ident: R12 article-title: Approach to end of life care publication-title: Ochsner J contributor: fullname: Lee – volume: 33 start-page: 357 year: 2019 ident: R56 article-title: Assessing quality of care for the dying from the bereaved relatives' perspective: using pre-testing survey methods across seven countries to develop an international outcome measure publication-title: Palliat Med doi: 10.1177/0269216318818299 contributor: fullname: Sigurdardottir – volume: 10 year: 2020 ident: R34 article-title: Methodological aspects of economic evaluations conducted in the palliative or end of life care settings: a systematic review protocol publication-title: BMJ Open doi: 10.1136/bmjopen-2019-035760 contributor: fullname: Simon – volume: 45 start-page: 651 year: 2005 ident: R8 article-title: Challenges to providing end-of-life care to low-income elders with advanced chronic disease: lessons learned from a model program publication-title: Gerontologist doi: 10.1093/geront/45.5.651 contributor: fullname: Auer – volume: 362 start-page: 1211 year: 2010 ident: R9 article-title: Advance directives and outcomes of surrogate decision making before death publication-title: N Engl J Med doi: 10.1056/NEJMsa0907901 contributor: fullname: Langa – volume: 4 year: 2005 ident: R57 article-title: The Australia-modified Karnofsky Performance Status (AKPS) scale: a revised scale for contemporary palliative care clinical practice [ISRCTN81117481] publication-title: BMC Palliat Care doi: 10.1186/1472-684X-4-7 contributor: fullname: Fazekas – volume: 310 start-page: 2191 year: 2013 ident: R39 article-title: World Medical association Declaration of Helsinki: ethical principles for medical research involving human subjects publication-title: JAMA doi: 10.1001/jama.2013.281053 – volume: 25 start-page: 1 year: 2001 ident: R55 article-title: Development and validation of the Hogan grief reaction checklist publication-title: Death Stud doi: 10.1080/074811801750058609 contributor: fullname: Schmidt – volume: 29 start-page: 399 year: 2015 ident: R4 article-title: Patients’ preferences in palliative care: A systematic mixed studies review publication-title: Palliat Med doi: 10.1177/0269216314557882 contributor: fullname: Høye – volume: 5 year: 2015 ident: R44 article-title: Development of the serious illness care program: a randomised controlled trial of a palliative care communication intervention publication-title: BMJ Open doi: 10.1136/bmjopen-2015-009032 contributor: fullname: Vick – volume: 21 start-page: 149 year: 2018 ident: R36 article-title: Medication use in the last days of life in hospital, hospice, and home settings in the Netherlands publication-title: J Palliat Med doi: 10.1089/jpm.2017.0179 contributor: fullname: Huisman – volume: 45 start-page: 1839 year: 2009 ident: R16 article-title: Unrelieved symptoms of female cancer patients during their last months of life and long-term psychological morbidity in their widowers: a nationwide population-based study publication-title: Eur J Cancer doi: 10.1016/j.ejca.2009.02.008 contributor: fullname: Valdimarsdóttir – volume: 30 start-page: 533 year: 2016 ident: R43 article-title: A systematic review of reasons for gatekeeping in palliative care research publication-title: Palliat Med doi: 10.1177/0269216315616759 contributor: fullname: van der Graaf – volume: 16 start-page: 362 year: 2013 ident: R3 article-title: Patient values and preferences for end-of-life treatments: are values better predictors than a living will? publication-title: J Palliat Med doi: 10.1089/jpm.2012.0303 contributor: fullname: Winter – volume: 351 start-page: SII21 year: 1998 ident: R11 article-title: The promise of a good death publication-title: The Lancet doi: 10.1016/S0140-6736(98)90329-4 contributor: fullname: Emanuel – volume: 1 start-page: 27 year: 2008 ident: R26 article-title: The ABC (and de) of cultural competence in clinical care publication-title: Ethn Inequal Health Soc Care doi: 10.1108/17570980200800005 contributor: fullname: Srivastava – volume: 31 start-page: 53 year: 2017 ident: R52 article-title: Development of a measure (ICECAP-Close person measure) through qualitative methods to capture the benefits of end-of-life care to those close to the dying for use in economic evaluation publication-title: Palliat Med doi: 10.1177/0269216316650616 contributor: fullname: Kinghorn – volume: 28 start-page: 809 year: 2017 ident: R14 article-title: Use of chemotherapy near the end of life: what factors matter? publication-title: Ann Oncol doi: 10.1093/annonc/mdw654 contributor: fullname: Beaussant – volume: 19 year: 2020 ident: R38 article-title: Development of an international core outcome set (COS) for best care for the dying person: study protocol publication-title: BMC Palliat Care doi: 10.1186/s12904-020-00654-6 contributor: fullname: van der Heide – volume: 17 year: 2017 ident: R37 article-title: Supporting clinical rules engine in the adjustment of medication (scream): protocol of a multicentre, prospective, randomised study publication-title: BMC Geriatr doi: 10.1186/s12877-017-0426-3 contributor: fullname: van Oijen – volume: 26 start-page: 3397 year: 2018 ident: R15 article-title: Health-Related quality of life among cancer patients in their last year of life: results from the profiles registry publication-title: Supportive Care in Cancer doi: 10.1007/s00520-018-4181-6 contributor: fullname: van Roij – volume: 164 start-page: 977 year: 2004 ident: R5 article-title: Good and bad dying from the perspective of terminally ill men publication-title: Arch Intern Med doi: 10.1001/archinte.164.9.977 contributor: fullname: Pearlman – volume: 25 start-page: 3186 year: 2000 ident: R30 article-title: Guidelines for the process of cross-cultural adaptation of self-report measures publication-title: Spine doi: 10.1097/00007632-200012150-00014 contributor: fullname: Guillemin – volume: 17 year: 2018 ident: R18 article-title: The ‘lived experience’ of palliative care patients in one acute hospital setting – a qualitative study publication-title: BMC Palliat Care doi: 10.1186/s12904-018-0345-x contributor: fullname: Gambles – volume: 4 start-page: 291 year: 2014 ident: R19 article-title: The practice of palliative care from the perspective of patients and carers publication-title: BMJ Support Palliat Care doi: 10.1136/bmjspcare-2013-000551 contributor: fullname: Byrne – volume: 43 start-page: 819 year: 2012 ident: R27 article-title: Illness perceptions, adjustment to illness, and depression in a palliative care population publication-title: J Pain Symptom Manage doi: 10.1016/j.jpainsymman.2011.05.013 contributor: fullname: Rayner – volume: 7 start-page: 6 year: 1991 ident: R46 article-title: The Edmonton symptom assessment system (ESAs): a simple method for the assessment of palliative care patients publication-title: J Palliat Care doi: 10.1177/082585979100700202 contributor: fullname: Miller – volume: 173 start-page: 778 year: 2013 ident: R10 article-title: Failure to engage hospitalized elderly patients and their families in advance care planning publication-title: JAMA Intern Med doi: 10.1001/jamainternmed.2013.180 contributor: fullname: Pichora – volume: 50 start-page: 488 year: 2015 ident: R7 article-title: Symptom expression in the last seven days of life among cancer patients admitted to acute palliative care units publication-title: J Pain Symptom Manage doi: 10.1016/j.jpainsymman.2014.09.003 contributor: fullname: Chisholm – volume: 11 year: 2013 ident: R42 article-title: Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews publication-title: BMC Med doi: 10.1186/1741-7015-11-111 contributor: fullname: Grande – volume: 50 start-page: 642 year: 2011 ident: R58 article-title: Validation study of an end-of-life questionnaire from the Swedish register of palliative care publication-title: Acta Oncol doi: 10.3109/0284186X.2011.554434 contributor: fullname: Lundström – volume: 360 start-page: 2026 year: 2002 ident: R2 article-title: Dignity in the terminally ill: a cross-sectional, cohort study publication-title: Lancet doi: 10.1016/S0140-6736(02)12022-8 contributor: fullname: Hassard – volume: 50 start-page: 1541 year: 2002 ident: R22 article-title: Good deaths, bad deaths, and preferences for the end of life: a qualitative study of geriatric outpatients publication-title: J Am Geriatr Soc doi: 10.1046/j.1532-5415.2002.50410.x contributor: fullname: Pearlman – volume: 4 start-page: 285 year: 2014 ident: R24 article-title: Development and evaluation of the supportive and palliative care indicators tool (SPICT): a mixed-methods study publication-title: BMJ Support Palliat Care doi: 10.1136/bmjspcare-2013-000488 contributor: fullname: Murray – volume: 17 start-page: 268 year: 2011 ident: R29 article-title: Translation, adaptation and validation of instruments or scales for use in cross-cultural health care research: a clear and user-friendly guideline publication-title: J Eval Clin Pract doi: 10.1111/j.1365-2753.2010.01434.x contributor: fullname: Rojjanasrirat – volume: 37 start-page: 678 year: 2015 ident: R35 article-title: Recommendations to support deprescribing medications late in life publication-title: Int J Clin Pharm doi: 10.1007/s11096-015-0148-6 contributor: fullname: Holmes – volume: 58 start-page: 2431 year: 2004 ident: R6 article-title: Place of death: preferences among cancer patients and their carers publication-title: Soc Sci Med doi: 10.1016/j.socscimed.2003.09.005 contributor: fullname: Clark – volume: 12 year: 2012 ident: R41 article-title: Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature publication-title: BMC Med Res Methodol doi: 10.1186/1471-2288-12-123 contributor: fullname: Higginson – volume: 42 start-page: 55 year: 2006 ident: R47 article-title: The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care publication-title: Eur J Cancer doi: 10.1016/j.ejca.2005.06.022 contributor: fullname: Aaronson – volume: 15 year: 2017 ident: R23 article-title: How accurate is the ‘Surprise Question’ at identifying patients at the end of life? A systematic review and meta-analysis publication-title: BMC Med doi: 10.1186/s12916-017-0907-4 contributor: fullname: Vickerstaff – volume: 13 start-page: 185 year: 2002 ident: R25 article-title: The Giger and Davidhizar transcultural assessment model publication-title: J Transcult Nurs doi: 10.1177/10459602013003004 contributor: fullname: Davidhizar – volume: 19 start-page: 397 year: 2005 ident: R45 article-title: The development of a questionnaire to assess the attitudes of older people to end-of-life issues (AEOLI) publication-title: Palliat Med doi: 10.1191/0269216305pm1036oa contributor: fullname: Addington-Hall – ident: 2022090110202428000_12.8.e057229.42 doi: 10.1186/1741-7015-11-111 – ident: 2022090110202428000_12.8.e057229.17 doi: 10.1016/B978-0-12-803831-4.00003-8 – ident: 2022090110202428000_12.8.e057229.33 doi: 10.1002/mpr.329 – ident: 2022090110202428000_12.8.e057229.44 doi: 10.1136/bmjopen-2015-009032 – ident: 2022090110202428000_12.8.e057229.1 doi: 10.1503/cmaj.050626 – volume: 26 start-page: 3397 year: 2018 ident: 2022090110202428000_12.8.e057229.15 article-title: Health-Related quality of life among cancer patients in their last year of life: results from the profiles registry publication-title: Supportive Care in Cancer doi: 10.1007/s00520-018-4181-6 contributor: fullname: Raijmakers – volume: 33 start-page: 357 year: 2019 ident: 2022090110202428000_12.8.e057229.56 article-title: Assessing quality of care for the dying from the bereaved relatives' perspective: using pre-testing survey methods across seven countries to develop an international outcome measure publication-title: Palliat Med doi: 10.1177/0269216318818299 contributor: fullname: Mayland – volume: 45 start-page: 1839 year: 2009 ident: 2022090110202428000_12.8.e057229.16 article-title: Unrelieved symptoms of female cancer patients during their last months of life and long-term psychological morbidity in their widowers: a nationwide population-based study publication-title: Eur J Cancer doi: 10.1016/j.ejca.2009.02.008 contributor: fullname: Jonasson – volume: 51 start-page: 229 year: 2005 ident: 2022090110202428000_12.8.e057229.50 article-title: A scale to assess attitudes toward euthanasia publication-title: Omega doi: 10.2190/FGHE-YXHX-QJEA-MTM0 contributor: fullname: Wasserman – volume: 31 start-page: 53 year: 2017 ident: 2022090110202428000_12.8.e057229.52 article-title: Development of a measure (ICECAP-Close person measure) through qualitative methods to capture the benefits of end-of-life care to those close to the dying for use in economic evaluation publication-title: Palliat Med doi: 10.1177/0269216316650616 contributor: fullname: Canaway – volume: 7 start-page: 6 year: 1991 ident: 2022090110202428000_12.8.e057229.46 article-title: The Edmonton symptom assessment system (ESAs): a simple method for the assessment of palliative care patients publication-title: J Palliat Care doi: 10.1177/082585979100700202 contributor: fullname: Bruera – volume: 173 start-page: 778 year: 2013 ident: 2022090110202428000_12.8.e057229.10 article-title: Failure to engage hospitalized elderly patients and their families in advance care planning publication-title: JAMA Intern Med doi: 10.1001/jamainternmed.2013.180 contributor: fullname: Heyland – ident: 2022090110202428000_12.8.e057229.25 doi: 10.1177/10459602013003004 – volume: 351 start-page: SII21 year: 1998 ident: 2022090110202428000_12.8.e057229.11 article-title: The promise of a good death publication-title: The Lancet doi: 10.1016/S0140-6736(98)90329-4 contributor: fullname: Emanuel – ident: 2022090110202428000_12.8.e057229.32 – ident: 2022090110202428000_12.8.e057229.43 doi: 10.1177/0269216315616759 – ident: 2022090110202428000_12.8.e057229.19 doi: 10.1136/bmjspcare-2013-000551 – ident: 2022090110202428000_12.8.e057229.53 – ident: 2022090110202428000_12.8.e057229.5 doi: 10.1001/archinte.164.9.977 – ident: 2022090110202428000_12.8.e057229.23 doi: 10.1186/s12916-017-0907-4 – volume: 19 year: 2020 ident: 2022090110202428000_12.8.e057229.38 article-title: Development of an international core outcome set (COS) for best care for the dying person: study protocol publication-title: BMC Palliat Care doi: 10.1186/s12904-020-00654-6 contributor: fullname: Zambrano – volume: 55 start-page: 1068 year: 2018 ident: 2022090110202428000_12.8.e057229.13 article-title: Accurate Prognostic Awareness Facilitates, Whereas Better Quality of Life and More Anxiety Symptoms Hinder End-of-Life Care Discussions: A Longitudinal Survey Study in Terminally Ill Cancer Patients’ Last Six Months of Life publication-title: J Pain Symptom Manage doi: 10.1016/j.jpainsymman.2017.12.485 contributor: fullname: Tang – volume: 1 start-page: 27 year: 2008 ident: 2022090110202428000_12.8.e057229.26 article-title: The ABC (and de) of cultural competence in clinical care publication-title: Ethn Inequal Health Soc Care doi: 10.1108/17570980200800005 contributor: fullname: Srivastava – ident: 2022090110202428000_12.8.e057229.8 doi: 10.1093/geront/45.5.651 – ident: 2022090110202428000_12.8.e057229.30 doi: 10.1097/00007632-200012150-00014 – ident: 2022090110202428000_12.8.e057229.57 doi: 10.1186/1472-684X-4-7 – ident: 2022090110202428000_12.8.e057229.6 doi: 10.1016/j.socscimed.2003.09.005 – ident: 2022090110202428000_12.8.e057229.48 – volume: 28 start-page: 809 year: 2017 ident: 2022090110202428000_12.8.e057229.14 article-title: Use of chemotherapy near the end of life: what factors matter? publication-title: Ann Oncol doi: 10.1093/annonc/mdw654 contributor: fullname: Rochigneux – ident: 2022090110202428000_12.8.e057229.24 doi: 10.1136/bmjspcare-2013-000488 – ident: 2022090110202428000_12.8.e057229.29 doi: 10.1111/j.1365-2753.2010.01434.x – ident: 2022090110202428000_12.8.e057229.31 – volume: 16 start-page: 362 year: 2013 ident: 2022090110202428000_12.8.e057229.3 article-title: Patient values and preferences for end-of-life treatments: are values better predictors than a living will? publication-title: J Palliat Med doi: 10.1089/jpm.2012.0303 contributor: fullname: Winter – ident: 2022090110202428000_12.8.e057229.41 doi: 10.1186/1471-2288-12-123 – ident: 2022090110202428000_12.8.e057229.27 doi: 10.1016/j.jpainsymman.2011.05.013 – volume: 50 start-page: 488 year: 2015 ident: 2022090110202428000_12.8.e057229.7 article-title: Symptom expression in the last seven days of life among cancer patients admitted to acute palliative care units publication-title: J Pain Symptom Manage doi: 10.1016/j.jpainsymman.2014.09.003 contributor: fullname: Hui – ident: 2022090110202428000_12.8.e057229.58 doi: 10.3109/0284186X.2011.554434 – ident: 2022090110202428000_12.8.e057229.40 – ident: 2022090110202428000_12.8.e057229.34 doi: 10.1136/bmjopen-2019-035760 – volume: 21 start-page: 149 year: 2018 ident: 2022090110202428000_12.8.e057229.36 article-title: Medication use in the last days of life in hospital, hospice, and home settings in the Netherlands publication-title: J Palliat Med doi: 10.1089/jpm.2017.0179 contributor: fullname: Arevalo – ident: 2022090110202428000_12.8.e057229.21 – ident: 2022090110202428000_12.8.e057229.22 doi: 10.1046/j.1532-5415.2002.50410.x – ident: 2022090110202428000_12.8.e057229.55 doi: 10.1080/07481180125831 – volume: 4 start-page: 98 year: 2002 ident: 2022090110202428000_12.8.e057229.12 article-title: Approach to end of life care publication-title: Ochsner J contributor: fullname: Lee – ident: 2022090110202428000_12.8.e057229.20 – ident: 2022090110202428000_12.8.e057229.47 doi: 10.1016/j.ejca.2005.06.022 – volume: 17 start-page: 15 year: 2019 ident: 2022090110202428000_12.8.e057229.54 article-title: Standardized questionnaire for the measurement, valuation, and estimation of costs of informal care based on the opportunity cost and proxy good method publication-title: Appl Health Econ Health Policy doi: 10.1007/s40258-018-0418-2 contributor: fullname: Landfeldt – ident: 2022090110202428000_12.8.e057229.39 doi: 10.1001/jama.2013.281053 – 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| Snippet | IntroductionAdequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising... Introduction Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising... Introduction Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising... |
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| SubjectTerms | adult adult palliative care Age bereavement Cohort analysis controlled study Death & dying female follow up Gender Health care Health Care Service and Management, Health Policy and Services and Health Economy health care utilization Health Sciences human Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi Hälsovetenskap Informed consent institutional review interview Life expectancy major clinical study male Medical and Health Sciences Medicin och hälsovetenskap Multiculturalism & pluralism Nursing Omvårdnad Palliative Care palliative therapy Patients Physicians Population public health questionnaire Questionnaires relative terminally ill patient |
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| Title | Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study |
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