2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis
BackgroundAn important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their disease and building their ability to deal effectively with the practical, physical and psychological impacts of it. Self-management...
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| Published in | Annals of the rheumatic diseases Vol. 80; no. 10; pp. 1278 - 1285 |
|---|---|
| Main Authors | , , , , , , , , , , , , , , , , , |
| Format | Journal Article |
| Language | English |
| Published |
England
BMJ Publishing Group Ltd and European League Against Rheumatism
01.10.2021
BMJ Publishing Group LTD BMJ Publishing Group |
| Subjects | |
| Online Access | Get full text |
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| Abstract | BackgroundAn important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their disease and building their ability to deal effectively with the practical, physical and psychological impacts of it. Self-management skills can be helpful in this regard.ObjectivesTo develop recommendations for the implementation of self-management strategies in IA.MethodsA multidisciplinary taskforce of 18 members from 11 European countries was convened. A systematic review and other supportive information (survey of healthcare professionals (HCPs) and patient organisations) were used to formulate the recommendations.ResultsThree overarching principles and nine recommendations were formulated. These focused on empowering patients to become active partners of the team and to take a more proactive role. The importance of patient education and key self-management interventions such as problem solving, goal setting and cognitive behavioural therapy were highlighted. Role of patient organisations and HCPs in promoting and signposting patients to available resources has been highlighted through the promotion of physical activity, lifestyle advice, support with mental health aspects and ability to remain at work. Digital healthcare is essential in supporting and optimising self-management and the HCPs need to be aware of available resources to signpost patients.ConclusionThese recommendations support the inclusion of self-management advice and resources in the routine management of people with IA and aim to empower and support patients and encourage a more holistic, patient-centred approach to care which could result in improved patient experience of care and outcomes. |
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| AbstractList | Background An important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their disease and building their ability to deal effectively with the practical, physical and psychological impacts of it. Self-management skills can be helpful in this regard. Objectives To develop recommendations for the implementation of self-management strategies in IA. Methods A multidisciplinary taskforce of 18 members from 11 European countries was convened. A systematic review and other supportive information (survey of healthcare professionals (HCPs) and patient organisations) were used to formulate the recommendations. Results Three overarching principles and nine recommendations were formulated. These focused on empowering patients to become active partners of the team and to take a more proactive role. The importance of patient education and key self-management interventions such as problem solving, goal setting and cognitive behavioural therapy were highlighted. Role of patient organisations and HCPs in promoting and signposting patients to available resources has been highlighted through the promotion of physical activity, lifestyle advice, support with mental health aspects and ability to remain at work. Digital healthcare is essential in supporting and optimising self-management and the HCPs need to be aware of available resources to signpost patients. Conclusion These recommendations support the inclusion of self-management advice and resources in the routine management of people with IA and aim to empower and support patients and encourage a more holistic, patient-centred approach to care which could result in improved patient experience of care and outcomes. BackgroundAn important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their disease and building their ability to deal effectively with the practical, physical and psychological impacts of it. Self-management skills can be helpful in this regard.ObjectivesTo develop recommendations for the implementation of self-management strategies in IA.MethodsA multidisciplinary taskforce of 18 members from 11 European countries was convened. A systematic review and other supportive information (survey of healthcare professionals (HCPs) and patient organisations) were used to formulate the recommendations.ResultsThree overarching principles and nine recommendations were formulated. These focused on empowering patients to become active partners of the team and to take a more proactive role. The importance of patient education and key self-management interventions such as problem solving, goal setting and cognitive behavioural therapy were highlighted. Role of patient organisations and HCPs in promoting and signposting patients to available resources has been highlighted through the promotion of physical activity, lifestyle advice, support with mental health aspects and ability to remain at work. Digital healthcare is essential in supporting and optimising self-management and the HCPs need to be aware of available resources to signpost patients.ConclusionThese recommendations support the inclusion of self-management advice and resources in the routine management of people with IA and aim to empower and support patients and encourage a more holistic, patient-centred approach to care which could result in improved patient experience of care and outcomes. Background An important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their disease and building their ability to deal effectively with the practical, physical and psychological impacts of it. Self-management skills can be helpful in this regard. Objectives To develop recommendations for the implementation of self-management strategies in IA. Methods A multidisciplinary taskforce of 18 members from 11 European countries was convened. A systematic review and other supportive information (survey of healthcare professionals (HCPs) and patient organisations) were used to formulate the recommendations. Results Three overarching principles and nine recommendations were formulated. These focused on empowering patients to become active partners of the team and to take a more proactive role. The importance of patient education and key self-management interventions such as problem solving, goal setting and cognitive behavioural therapy were highlighted. Role of patient organisations and HCPs in promoting and signposting patients to available resources has been highlighted through the promotion of physical activity, lifestyle advice, support with mental health aspects and ability to remain at work. Digital healthcare is essential in supporting and optimising self-management and the HCPs need to be aware of available resources to signpost patients. Conclusion These recommendations support the inclusion of self-management advice and resources in the routine management of people with IA and aim to empower and support patients and encourage a more holistic, patient-centred approach to care which could result in improved patient experience of care and outcomes. An important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their disease and building their ability to deal effectively with the practical, physical and psychological impacts of it. Self-management skills can be helpful in this regard. To develop recommendations for the implementation of self-management strategies in IA. A multidisciplinary taskforce of 18 members from 11 European countries was convened. A systematic review and other supportive information (survey of healthcare professionals (HCPs) and patient organisations) were used to formulate the recommendations. Three overarching principles and nine recommendations were formulated. These focused on empowering patients to become active partners of the team and to take a more proactive role. The importance of patient education and key self-management interventions such as problem solving, goal setting and cognitive behavioural therapy were highlighted. Role of patient organisations and HCPs in promoting and signposting patients to available resources has been highlighted through the promotion of physical activity, lifestyle advice, support with mental health aspects and ability to remain at work. Digital healthcare is essential in supporting and optimising self-management and the HCPs need to be aware of available resources to signpost patients. These recommendations support the inclusion of self-management advice and resources in the routine management of people with IA and aim to empower and support patients and encourage a more holistic, patient-centred approach to care which could result in improved patient experience of care and outcomes. |
| Author | Nikiphorou, Elena Böhm, Peter Zabalan, Condruta Fragoulis, George E Bijlsma, Johannes WJ McBain, Hayley Holmes, Pat Bosworth, Ailsa Ferreira, Ricardo J O Santos, Eduardo José Ferreira Marques, Andrea Moe, Rikke Helene Stamm, Tanja A Metsios, George S de Thurah, Annette Esbensen, Bente Appel Daien, Claire Immediato Carmona, Loreto |
| AuthorAffiliation | 1 Rheumatology Department , King's College Hospital , London , UK 6 Department of Rheumatology & Clinical Immunology , University Medical Center Utrecht , Utrecht , The Netherlands 11 National Rheumatoid Arthritis Society , Maidenhead , UK 4 Health Sciences Research Unit Nursing , Higher School of Nursing of Coimbra , Coimbra , Portugal 21 National Rheumatoid Arthritis Society , Littlewick Green , UK 2 Centre for Rheumatic Diseases , King’s College London , London , UK 9 Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen , Copenhagen , Denmark 17 Department of Rheumatology , Aarhus University Hospital , Aarhus , Denmark 10 First Department of Internal Medicine , Propaedeutic Clinic , Athens , Greece 3 Rheumatology , Centro Hospitalar e Universitário de Coimbra EPE , Coimbra , Portugal 8 Copenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Centre of Head and Orthopaedics , Rigshospitalet , Denmark 20 Institu |
| AuthorAffiliation_xml | – name: 15 Division of Rheumatology and Research , Diakonhjemmet Hospital , Oslo , Norway – name: 1 Rheumatology Department , King's College Hospital , London , UK – name: 8 Copenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Centre of Head and Orthopaedics , Rigshospitalet , Denmark – name: 2 Centre for Rheumatic Diseases , King’s College London , London , UK – name: 5 German League against Rheumatism , Bonn , Germany – name: 17 Department of Rheumatology , Aarhus University Hospital , Aarhus , Denmark – name: 20 Instituto de Salud Musculoesquelética , Madrid , Spain – name: 19 Romanian League against Rheumatism , Bucharest , Romania – name: 3 Rheumatology , Centro Hospitalar e Universitário de Coimbra EPE , Coimbra , Portugal – name: 4 Health Sciences Research Unit Nursing , Higher School of Nursing of Coimbra , Coimbra , Portugal – name: 10 First Department of Internal Medicine , Propaedeutic Clinic , Athens , Greece – name: 6 Department of Rheumatology & Clinical Immunology , University Medical Center Utrecht , Utrecht , The Netherlands – name: 21 National Rheumatoid Arthritis Society , Littlewick Green , UK – name: 9 Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen , Copenhagen , Denmark – name: 14 Department of Nutrition and Dietetics , University of Thessaly , Trikala , Thessaly , Greece – name: 16 Section for Outcomes Research, Center for Medical Statistics, Informatics, and Intelligent Systems , Medical University of Vienna , Vienna , Austria – name: 18 Departent of Clinical Medicine, Aarhus University , Aarhus , Denmark – name: 11 National Rheumatoid Arthritis Society , Maidenhead , UK – name: 7 Lapeyronie Hospital, CHU Montpellier, and Inserm U1046, CNRS UMR 9214, Montpellier University , Montpellier , France – name: 12 School of Health Sciences , City, University of London , London , UK – name: 13 Faculty of Education, Health and Wellbeing , University of Wolverhampton , Walsall , UK |
| Author_xml | – sequence: 1 givenname: Elena orcidid: 0000-0001-6847-3726 surname: Nikiphorou fullname: Nikiphorou, Elena email: enikiphorou@gmail.com organization: Centre for Rheumatic Diseases, King’s College London, London, UK – sequence: 2 givenname: Eduardo José Ferreira orcidid: 0000-0003-0557-2377 surname: Santos fullname: Santos, Eduardo José Ferreira organization: Health Sciences Research Unit Nursing, Higher School of Nursing of Coimbra, Coimbra, Portugal – sequence: 3 givenname: Andrea orcidid: 0000-0002-2026-9926 surname: Marques fullname: Marques, Andrea organization: Health Sciences Research Unit Nursing, Higher School of Nursing of Coimbra, Coimbra, Portugal – sequence: 4 givenname: Peter orcidid: 0000-0002-7186-1997 surname: Böhm fullname: Böhm, Peter organization: German League against Rheumatism, Bonn, Germany – sequence: 5 givenname: Johannes WJ orcidid: 0000-0002-0128-8451 surname: Bijlsma fullname: Bijlsma, Johannes WJ organization: Department of Rheumatology & Clinical Immunology, University Medical Center Utrecht, Utrecht, The Netherlands – sequence: 6 givenname: Claire Immediato surname: Daien fullname: Daien, Claire Immediato organization: Lapeyronie Hospital, CHU Montpellier, and Inserm U1046, CNRS UMR 9214, Montpellier University, Montpellier, France – sequence: 7 givenname: Bente Appel orcidid: 0000-0001-5331-8221 surname: Esbensen fullname: Esbensen, Bente Appel organization: Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark – sequence: 8 givenname: Ricardo J O orcidid: 0000-0002-2517-0247 surname: Ferreira fullname: Ferreira, Ricardo J O organization: Health Sciences Research Unit Nursing, Higher School of Nursing of Coimbra, Coimbra, Portugal – sequence: 9 givenname: George E orcidid: 0000-0003-4932-7023 surname: Fragoulis fullname: Fragoulis, George E organization: First Department of Internal Medicine, Propaedeutic Clinic, Athens, Greece – sequence: 10 givenname: Pat surname: Holmes fullname: Holmes, Pat organization: National Rheumatoid Arthritis Society, Maidenhead, UK – sequence: 11 givenname: Hayley orcidid: 0000-0002-6742-1104 surname: McBain fullname: McBain, Hayley organization: School of Health Sciences, City, University of London, London, UK – sequence: 12 givenname: George S surname: Metsios fullname: Metsios, George S organization: Department of Nutrition and Dietetics, University of Thessaly, Trikala, Thessaly, Greece – sequence: 13 givenname: Rikke Helene orcidid: 0000-0001-7601-5346 surname: Moe fullname: Moe, Rikke Helene organization: Division of Rheumatology and Research, Diakonhjemmet Hospital, Oslo, Norway – sequence: 14 givenname: Tanja A orcidid: 0000-0003-3073-7284 surname: Stamm fullname: Stamm, Tanja A organization: Section for Outcomes Research, Center for Medical Statistics, Informatics, and Intelligent Systems, Medical University of Vienna, Vienna, Austria – sequence: 15 givenname: Annette orcidid: 0000-0003-0103-4328 surname: de Thurah fullname: de Thurah, Annette organization: Departent of Clinical Medicine, Aarhus University, Aarhus, Denmark – sequence: 16 givenname: Condruta surname: Zabalan fullname: Zabalan, Condruta organization: Romanian League against Rheumatism, Bucharest, Romania – sequence: 17 givenname: Loreto orcidid: 0000-0002-4401-2551 surname: Carmona fullname: Carmona, Loreto organization: Instituto de Salud Musculoesquelética, Madrid, Spain – sequence: 18 givenname: Ailsa surname: Bosworth fullname: Bosworth, Ailsa organization: National Rheumatoid Arthritis Society, Littlewick Green, UK |
| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/33962964$$D View this record in MEDLINE/PubMed https://hal.science/hal-03221612$$DView record in HAL |
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| Keywords | arthritis ankylosing spondylitis psoriatic outcome assessment health care rheumatoid Health care Rheumatoid Spondylitis Ankylosing Arthritis Psoriatic Outcome assessment |
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77 Coles, Anderson, Maxwell 2020; 9 Barlow, Wright 1998; 37 Rogers, Kennedy, Nelson 2005; 15 Cramp, Hewlett, Almeida 2013; 8 Du, Yuan, Xiao 2011; 85 Baillet, Gossec, Carmona 2016; 75 van der Heijde, Aletaha, Carmona 2015; 74 Brown, Metcalf, Bednarz 2020; 2 Chewning, Bylund, Shah 2012; 86 van Lankveld, van Helmond, Näring 2004; 31 Opava, Carlsson 2012; 26 Dagfinrud, Kvien, Hagen 2008; 1 Gualtierotti, Ughi, Marfia 2017; 4 Moher, Liberati, Tetzlaff 2009; 6 Rausch Osthoff, Niedermann, Braun 2018; 77 Dissanayake, Bertouch 2010; 13 Steinhubl, Muse, Topol 2015; 7 Hammond, Bryan, Hardy 2008; 47 Chen, Li, He 2012; 12 Santos, Duarte, Ferreira 2019; 37 Najm, Nikiphorou, Kostine 2019; 5 Brown (2021100808151879000_80.10.1278.52) 2020; 2 2021100808151879000_80.10.1278.29 Magharei (2021100808151879000_80.10.1278.15) 2019; 7 2021100808151879000_80.10.1278.61 Ferwerda (2021100808151879000_80.10.1278.19) 2018; 20 2021100808151879000_80.10.1278.60 Cramp (2021100808151879000_80.10.1278.43) 2013; 8 2021100808151879000_80.10.1278.25 2021100808151879000_80.10.1278.24 2021100808151879000_80.10.1278.68 2021100808151879000_80.10.1278.23 2021100808151879000_80.10.1278.67 2021100808151879000_80.10.1278.66 2021100808151879000_80.10.1278.65 2021100808151879000_80.10.1278.20 2021100808151879000_80.10.1278.64 2021100808151879000_80.10.1278.63 Voshaar (2021100808151879000_80.10.1278.81) 2015; 29 2021100808151879000_80.10.1278.39 2021100808151879000_80.10.1278.38 2021100808151879000_80.10.1278.72 2021100808151879000_80.10.1278.70 Litchfield (2021100808151879000_80.10.1278.84) 2018; 18 2021100808151879000_80.10.1278.37 2021100808151879000_80.10.1278.78 Souliotis (2021100808151879000_80.10.1278.22) 2018; 7 Hill (2021100808151879000_80.10.1278.26) 2001; 60 2021100808151879000_80.10.1278.33 2021100808151879000_80.10.1278.32 Santos (2021100808151879000_80.10.1278.59) 2019; 37 2021100808151879000_80.10.1278.76 McCormack (2021100808151879000_80.10.1278.79) 2015; 5 2021100808151879000_80.10.1278.31 2021100808151879000_80.10.1278.30 Gualtierotti (2021100808151879000_80.10.1278.57) 2017; 4 Bradway (2021100808151879000_80.10.1278.73) 2015; 26 El Miedany (2021100808151879000_80.10.1278.34) 2012; 30 Lwin (2021100808151879000_80.10.1278.58) 2020; 7 Bay (2021100808151879000_80.10.1278.21) 2020; 18 Santos (2021100808151879000_80.10.1278.2) 2018; 77 Santos (2021100808151879000_80.10.1278.49) 2019; 17 Martinez-Calderon (2021100808151879000_80.10.1278.1) 2020; 36 2021100808151879000_80.10.1278.40 2021100808151879000_80.10.1278.82 Lopes (2021100808151879000_80.10.1278.48) 2016; 41 2021100808151879000_80.10.1278.80 Shigaki (2021100808151879000_80.10.1278.35) 2013; 65 Fragoulis (2021100808151879000_80.10.1278.55) 2020; 18 2021100808151879000_80.10.1278.46 2021100808151879000_80.10.1278.45 Ferreira (2021100808151879000_80.10.1278.83) 2020; 18 2021100808151879000_80.10.1278.44 2021100808151879000_80.10.1278.42 2021100808151879000_80.10.1278.41 2021100808151879000_80.10.1278.85 Najm (2021100808151879000_80.10.1278.74) 2019; 5 2021100808151879000_80.10.1278.18 2021100808151879000_80.10.1278.17 2021100808151879000_80.10.1278.16 Pécourneau (2021100808151879000_80.10.1278.47) 2018; 99 Knittle (2021100808151879000_80.10.1278.27) 2015; 34 Barlow (2021100808151879000_80.10.1278.13) 2001; 44 Lumley (2021100808151879000_80.10.1278.36) 2014; 82 Nikiphorou (2021100808151879000_80.10.1278.54) 2018; 57 2021100808151879000_80.10.1278.3 2021100808151879000_80.10.1278.51 Opava (2021100808151879000_80.10.1278.75) 2012; 26 2021100808151879000_80.10.1278.4 2021100808151879000_80.10.1278.50 DiRenzo (2021100808151879000_80.10.1278.62) 2018; 20 2021100808151879000_80.10.1278.5 Kurt (2021100808151879000_80.10.1278.69) 2013; 50 2021100808151879000_80.10.1278.6 2021100808151879000_80.10.1278.7 2021100808151879000_80.10.1278.8 van Lankveld (2021100808151879000_80.10.1278.28) 2004; 31 Udlis (2021100808151879000_80.10.1278.77) 2011; 3 2021100808151879000_80.10.1278.9 2021100808151879000_80.10.1278.14 Yoshida (2021100808151879000_80.10.1278.71) 2004; 20 2021100808151879000_80.10.1278.12 2021100808151879000_80.10.1278.56 2021100808151879000_80.10.1278.11 2021100808151879000_80.10.1278.10 2021100808151879000_80.10.1278.53 |
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| Snippet | BackgroundAn important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding... An important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their... Background An important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding... BACKGROUNDAn important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding... Background An important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding... |
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| SubjectTerms | ankylosing Arthritis Arthritis, Psoriatic / therapy Arthritis, Rheumatoid / therapy Best practice Clinical medicine Cognitive ability Cognitive Behavioral Therapy Comorbidity Disease Disease management Drug therapy Europe Exercise Health care Human health and pathology Humans Inflammation Life Sciences Mental disorders Mental health outcome assessment Patient Education as Topic Patient Participation Patients Physical activity Problem solving Professionals psoriatic Recommendation rheumatoid Rheumatology Rhumatology and musculoskeletal system Risk Reduction Behavior Self Efficacy Self-Management Societies, Medical Spondylarthropathies / therapy spondylitis |
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| Title | 2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis |
| URI | http://dx.doi.org/10.1136/annrheumdis-2021-220249 https://www.ncbi.nlm.nih.gov/pubmed/33962964 https://www.proquest.com/docview/2572110050/abstract/ https://search.proquest.com/docview/2524358539 https://hal.science/hal-03221612 https://pubmed.ncbi.nlm.nih.gov/PMC8458093 |
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