Monitoring health related quality of life in adolescents with diabetes: a review of measures

• Published in: Archives of Disease in Childhood Vol. 92; no. 5; pp. 434 - 439
• Main Authors: de Wit, M, Delemarre-van de Waal, H A, Pouwer, F, Gemke, R J B J, Snoek, F J
• Format: Journal Article Book Review
• Language: English
• Published: London BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health 01.05.2007; BMJ; BMJ Publishing Group Ltd; BMJ Publishing Group LTD; BMJ Group
• Subjects: ADDQoL-Teen; Adolescent; Adolescents; Audit of Diabetes Dependent Quality of Life-Teen version; Biological and medical sciences; Child Health; Child Health Questionnaire-Child Form 87; Children & youth; CHQ-CF87; Chronic Illness; Chronic illnesses; Clinical medicine; Content Validity; Diabetes; Diabetes in children; Diabetes Mellitus, Type 1 - psychology; Diabetes Mellitus, Type 1 - rehabilitation; Diabetes Quality of Life-Youth questionnaire; Diabetes. Impaired glucose tolerance; DISABKIDS-Diabetes Module; DISABKIDS-DM; DQOL-Youth; Endocrine pancreas. Apud cells (diseases); Endocrinopathies; Etiopathogenesis. Screening. Investigations. Target tissue resistance; General aspects; health related quality of life; Health Status Indicators; HRQoL; Humans; Interrater Reliability; Juvenile diabetes; KINDL-R; measures; Medical sciences; Mental health; Miscellaneous; Parents; Patient outcomes; Patients; Pediatric Quality of Life Inventory; PedsQL; Predictive Validity; Prevention and actions; Psychometrics; Public health. Hygiene; Public health. Hygiene-occupational medicine; Quality of Life; Quantitative psychology; Questionnaires; Reference Materials; Reproducibility of Results; Revidierter KINDer Lebensqualitätsfragebogen; Review; Statistical Data; Surveys and Questionnaires; Teenagers; Validity; Young Adults; Youth; Endocrinopathy; Human; Pediatrics; Prognosis; Diabetes mellitus; Review; Health-Related Quality of Life; Quality of life; Surveillance; Adolescent; Child; Monitoring; Bibliographic review; Public health
• ISSN: 0003-9888; 1468-2044
• DOI: 10.1136/adc.2006.102236

Particularly in chronic conditions, monitoring health related quality of life (HRQoL) of adolescents in clinical practice is increasingly advocated. We set out to identify and review the clinical utility of available generic and diabetes specific HRQoL questionnaires suitable for use in adolescents with type 1 diabetes. Four generic and five diabetes specific questionnaires were identified and evaluated. The responsiveness of most instruments warrants further research and standardisation of HRQoL measurement should be sought to facilitate comparisons across centres and countries. The PedsQL and the KINDL-R appear, at this time, to be the most suitable instruments.