Disease‐specific health‐related quality of life (HRQL) instruments for food allergy: protocol for a systematic review
Background The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter‐linked evidence syntheses that are being undertaken in order to provide a state‐of‐the‐art synopsis of t...
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| Published in | Clinical and translational allergy Vol. 3; no. 1; pp. 15 - n/a |
|---|---|
| Main Authors | , , , , , , , , |
| Format | Journal Article |
| Language | English |
| Published |
London
BioMed Central
01.05.2013
BioMed Central Ltd |
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| Online Access | Get full text |
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| Abstract | Background
The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter‐linked evidence syntheses that are being undertaken in order to provide a state‐of‐the‐art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health‐related quality of life.
Methods
Seven bibliographic databases were searched from their inception to September 30, 2012 for disease‐specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross‐cultural and linguistic adaptation, using a previously reported quality assessment tool.
Discussion
Using appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps. |
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| AbstractList | Background The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter-linked evidence syntheses that are being undertaken in order to provide a state-of-the-art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health-related quality of life. Methods Seven bibliographic databases were searched from their inception to September 30, 2012 for disease-specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross-cultural and linguistic adaptation, using a previously reported quality assessment tool. Discussion Using appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps. Keywords: Food allergy, IgE-mediated, QOL, Quality of life The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter-linked evidence syntheses that are being undertaken in order to provide a state-of-the-art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health-related quality of life. Seven bibliographic databases were searched from their inception to September 30, 2012 for disease-specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross-cultural and linguistic adaptation, using a previously reported quality assessment tool. Using appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps. BACKGROUND: The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter-linked evidence syntheses that are being undertaken in order to provide a state-of-the-art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health-related quality of life. METHODS: Seven bibliographic databases were searched from their inception to September 30, 2012 for disease-specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross-cultural and linguistic adaptation, using a previously reported quality assessment tool. DISCUSSION: Using appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps. The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter-linked evidence syntheses that are being undertaken in order to provide a state-of-the-art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health-related quality of life.BACKGROUNDThe European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter-linked evidence syntheses that are being undertaken in order to provide a state-of-the-art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health-related quality of life.Seven bibliographic databases were searched from their inception to September 30, 2012 for disease-specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross-cultural and linguistic adaptation, using a previously reported quality assessment tool.METHODSSeven bibliographic databases were searched from their inception to September 30, 2012 for disease-specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross-cultural and linguistic adaptation, using a previously reported quality assessment tool.Using appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps.DISCUSSIONUsing appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps. The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter-linked evidence syntheses that are being undertaken in order to provide a state-of-the-art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health-related quality of life. Seven bibliographic databases were searched from their inception to September 30, 2012 for disease-specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross-cultural and linguistic adaptation, using a previously reported quality assessment tool. Using appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps. Background The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter‐linked evidence syntheses that are being undertaken in order to provide a state‐of‐the‐art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health‐related quality of life. Methods Seven bibliographic databases were searched from their inception to September 30, 2012 for disease‐specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross‐cultural and linguistic adaptation, using a previously reported quality assessment tool. Discussion Using appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps. |
| Audience | Academic |
| Author | Salvilla, Sarah A Muraro, Antonella Panesar, Sukhmeet S Roberts, Graham Rader, Tamara Patel, Shyamal Dubois, Anthony Sheikh, Aziz de‐Blok, Bertine Flokstra |
| AuthorAffiliation | 2 St. George’s University, Cranmer Terrace, London SW17 0RE, UK 8 Division of Paediatric Pulmonology and Paediatric Allergy, University Medical Centre Groningen, PO Box 30.001, Groningen 9700 RB, The Netherland 9 University of Groningen, Groningen 9700 RB, The Netherland 7 Department of Paediatrics, University Medical Centre Groningen, Groningen 9700 RB, The Netherland 4 Padua General University Hospital, Via Giustiniani 3, Padua 35128, Italy 10 Centre for Population Health Sciences, The University of Edinburgh Medical School, Doorway 3, Teviot Place, Edinburgh EH8 9AG, UK 3 University of Ottawa, 75 Laurier Avenue East, Ottawa, ON K1N 6N5, Canada 5 Faculty of Medicine, University of Southampton, Southampton SO171BJ, UK 1 University of Edinburgh, Teviot Place, Edinburgh EH8 9AG, UK 6 Department of General Practice, GRIAC Research Institute, University Medical Center Groningen, PO Box 30.001, Groningen 9700 RB, The Netherlands |
| AuthorAffiliation_xml | – name: 5 Faculty of Medicine, University of Southampton, Southampton SO171BJ, UK – name: 2 St. George’s University, Cranmer Terrace, London SW17 0RE, UK – name: 7 Department of Paediatrics, University Medical Centre Groningen, Groningen 9700 RB, The Netherland – name: 6 Department of General Practice, GRIAC Research Institute, University Medical Center Groningen, PO Box 30.001, Groningen 9700 RB, The Netherlands – name: 1 University of Edinburgh, Teviot Place, Edinburgh EH8 9AG, UK – name: 9 University of Groningen, Groningen 9700 RB, The Netherland – name: 8 Division of Paediatric Pulmonology and Paediatric Allergy, University Medical Centre Groningen, PO Box 30.001, Groningen 9700 RB, The Netherland – name: 10 Centre for Population Health Sciences, The University of Edinburgh Medical School, Doorway 3, Teviot Place, Edinburgh EH8 9AG, UK – name: 4 Padua General University Hospital, Via Giustiniani 3, Padua 35128, Italy – name: 3 University of Ottawa, 75 Laurier Avenue East, Ottawa, ON K1N 6N5, Canada |
| Author_xml | – sequence: 1 givenname: Sarah A surname: Salvilla fullname: Salvilla, Sarah A organization: University of Edinburgh – sequence: 2 givenname: Sukhmeet S surname: Panesar fullname: Panesar, Sukhmeet S organization: University of Edinburgh – sequence: 3 givenname: Shyamal surname: Patel fullname: Patel, Shyamal organization: Cranmer Terrace – sequence: 4 givenname: Tamara surname: Rader fullname: Rader, Tamara organization: University of Ottawa – sequence: 5 givenname: Antonella surname: Muraro fullname: Muraro, Antonella organization: Padua General University Hospital – sequence: 6 givenname: Graham surname: Roberts fullname: Roberts, Graham organization: University of Southampton – sequence: 7 givenname: Bertine Flokstra surname: de‐Blok fullname: de‐Blok, Bertine Flokstra organization: University Medical Center Groningen – sequence: 8 givenname: Anthony surname: Dubois fullname: Dubois, Anthony organization: University of Groningen – sequence: 9 givenname: Aziz surname: Sheikh fullname: Sheikh, Aziz email: aziz.sheikh@ed.ac.uk organization: The University of Edinburgh Medical School |
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| Copyright | 2020 The Authors. Clinical and Translational Allergy published by John Wiley and Sons Ltd on behalf of European Academy of Allergy and Clinical Immunology COPYRIGHT 2013 BioMed Central Ltd. Copyright © 2013 Salvilla et al.; licensee BioMed Central Ltd. 2013 Salvilla et al.; licensee BioMed Central Ltd. |
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The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this... The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic... Background The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this... BACKGROUND: The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this... |
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| StartPage | 15 |
| SubjectTerms | Epidemiology Food allergy IgE‐mediated Immunoglobulin E QOL Quality of life Study Protocol |
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| Title | Disease‐specific health‐related quality of life (HRQL) instruments for food allergy: protocol for a systematic review |
| URI | https://onlinelibrary.wiley.com/doi/abs/10.1186%2F2045-7022-3-15 https://www.ncbi.nlm.nih.gov/pubmed/23635302 https://www.proquest.com/docview/1350893112 http://dx.doi.org/10.1186/2045-7022-3-15 https://pubmed.ncbi.nlm.nih.gov/PMC3651316 |
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