Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research

• Published in: Journal of medical ethics Vol. 51; no. 5; p. jme-2022-108781
• Main Authors: Winkler, Eva C, Jungkunz, Martin, Thorogood, Adrian, Lotz, Vincent, Schickhardt, Christoph
• Format: Journal Article
• Language: English
• Published: England BMJ Publishing Group Ltd and Institute of Medical Ethics 25.05.2023; BMJ Publishing Group LTD; BMJ Publishing Group
• Subjects: Artificial intelligence; Biomedical Research - ethics; Ethics; ethics- business; ethics- medical; Extended; Extended essay; health care economics and organizations; Health care industry; Hospitals; Humans; Information Dissemination - ethics; Infrastructure; Liberalism; Medical ethics; Medical research; Patients; philosophy- medical; Privacy; public policy; R&D; Research & development; Society; United Kingdom > UK; ethics- business; ethics- medical; philosophy- medical; health care economics and organizations; public policy

BackgroundResearch using data from medical care promises to advance medical science and improve healthcare. Academia is not the only sector that expects such research to be of great benefit. The research-based health industry is also interested in so-called ‘real-world’ health data to develop new dr...