Approaches to governance of participant-led research: a qualitative case study - Grant, Azure Dominique; Wolf, Gary Isaac; Nebeker, Camille (BMJ open, 2019)
Keywords: Adult; Aged; Biological rhythms; Biomedical research; Biomedical Research - ethics; Clinical Governance; Community; Community-Based Participatory Research - ethics; Crowdsourcing; Ethics; Ethics, Research; Female; Human subjects; Humans; Informed consent; Internet; Male; Medical ethics; Medical research; Middle Aged; Patient Participation; Prospective Studies; Qualitative Research; Research ethics; Research methodology; Review boards; Young Adult; United States--US; citizen science; public involvement; informed consent; research ethics; participant-led research