Challenges in optimising patient participation in research: do patients participating in meetings represent the actual patient population with Behçet’s syndrome?

• Published in: Annals of the rheumatic diseases Vol. 81; no. 3; pp. 448 - 450
• Main Authors: Taflan, Sıtkı Safa, Esatoglu, Sinem Nihal, Ozguler, Yesim, Yurttas, Berna, Melikoglu, Melike, Hatemi, Gulen
• Format: Journal Article
• Language: English
• Published: England BMJ Publishing Group Ltd and European League Against Rheumatism 01.03.2022; Elsevier Limited
• Subjects: Adult; Arthritis; Behcet Syndrome; Behcet's syndrome; Biomedical Research - statistics & numerical data; Colchicine; Conventions; Demography; Disease; Education; Erythema; Erythema nodosum; Ethics; Female; health care; Humans; Letter; Male; Nervous system; outcome assessment; Patient Participation - statistics & numerical data; patient reported outcome measures; Patient Selection; Patients; Phenotypes; Prednisolone; Questionnaires; Research Subjects - statistics & numerical data; Rheumatology; Rheumatology - statistics & numerical data; Surveys and Questionnaires; Ulcers; Vein & artery diseases; Young Adult; Istanbul Turkey; Turkey; Behcet syndrome; patient reported outcome measures; outcome assessment; health care