Challenges in optimising patient participation in research: do patients participating in meetings represent the actual patient population with Behçet’s syndrome? - Taflan, Sıtkı Safa; Esatoglu, Sinem Nihal; Ozguler, Yesim; Yurttas, Berna; Melikoglu, Melike; Hatemi, Gulen (Annals of the rheumatic diseases, 2022)
Keywords: Adult; Arthritis; Behcet Syndrome; Behcet's syndrome; Biomedical Research - statistics & numerical data; Colchicine; Conventions; Demography; Disease; Education; Erythema; Erythema nodosum; Ethics; Female; health care; Humans; Letter; Male; Nervous system; outcome assessment; Patient Participation - statistics & numerical data; patient reported outcome measures; Patient Selection; Patients; Phenotypes; Prednisolone; Questionnaires; Research Subjects - statistics & numerical data; Rheumatology; Rheumatology - statistics & numerical data; Surveys and Questionnaires; Ulcers; Vein & artery diseases; Young Adult; Istanbul Turkey; Turkey; Behcet syndrome; patient reported outcome measures; outcome assessment; health care