Health Data Privacy under the GDPR Big Data Challenges and Regulatory Responses
The growth of data-collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and ingestible tech, combined with recent technological developments such as increased capacity of data storage, artificial intelligence and smart algor...
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Format | eBook |
Language | English |
Published |
Oxford
Routledge
2021
Taylor and Francis Taylor & Francis Group |
Edition | 1 |
Series | Routledge Research in the Law of Emerging Technologies |
Subjects | |
Online Access | Get full text |
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Abstract | The growth of data-collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and ingestible tech, combined with recent technological developments such as increased capacity of data storage, artificial intelligence and smart algorithms, has spawned a big data revolution that has reshaped how we understand and approach health data. Recently, the COVID-19 pandemic has foregrounded a variety of data privacy issues. The collection, storage, sharing and analysis of health- related data raises major legal and ethical questions relating to privacy, data protection, profiling, discrimination, surveillance, personal autonomy and dignity.
This book examines health privacy questions in light of the General Data Protection Regulation (GDPR) and the general data privacy legal framework of the European Union (EU). The GDPR is a complex and evolving body of law that aims to deal with several technological and societal health data privacy problems, while safeguarding public health interests and addressing its internal gaps and uncertainties. The book answers a diverse range of questions including: What role can the GDPR play in regulating health surveillance and big (health) data analytics? Can it catch up with Internet-age developments? Are the solutions to the challenges posed by big health data to be found in the law? Does the GDPR provide adequate tools and mechanisms to ensure public health objectives and the effective protection of privacy? How does the GDPR deal with data that concern children’s health and academic research?
By analysing a number of diverse questions concerning big health data under the GDPR from various perspectives, this book will appeal to those interested in privacy, data protection, big data, health sciences, information technology, the GDPR, EU and human rights law. |
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AbstractList | The growth of data-collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and ingestible tech, combined with recent technological developments such as increased capacity of data storage, artificial intelligence and smart algorithms, has spawned a big data revolution that has reshaped how we understand and approach health data. Recently, the COVID-19 pandemic has foregrounded a variety of data privacy issues. The collection, storage, sharing and analysis of health- related data raises major legal and ethical questions relating to privacy, data protection, profiling, discrimination, surveillance, personal autonomy and dignity.
This book examines health privacy questions in light of the General Data Protection Regulation (GDPR) and the general data privacy legal framework of the European Union (EU). The GDPR is a complex and evolving body of law that aims to deal with several technological and societal health data privacy problems, while safeguarding public health interests and addressing its internal gaps and uncertainties. The book answers a diverse range of questions including: What role can the GDPR play in regulating health surveillance and big (health) data analytics? Can it catch up with Internet-age developments? Are the solutions to the challenges posed by big health data to be found in the law? Does the GDPR provide adequate tools and mechanisms to ensure public health objectives and the effective protection of privacy? How does the GDPR deal with data that concern children’s health and academic research?
By analysing a number of diverse questions concerning big health data under the GDPR from various perspectives, this book will appeal to those interested in privacy, data protection, big data, health sciences, information technology, the GDPR, EU and human rights law. The growth of data-collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and ingestible tech, combined with recent technological developments such as increased capacity of data storage, artificial intelligence and smart algorithms, has spawned a big data revolution that has reshaped how we understand and approach health data. Recently the COVID-19 pandemic has foregrounded a variety of data privacy issues. The collection, storage, sharing and analysis of health- related data raises major legal and ethical questions relating to privacy, data protection, profiling, discrimination, surveillance, personal autonomy and dignity.This book examines health privacy questions in light of the General Data Protection Regulation (GDPR) and the general data privacy legal framework of the European Union (EU). The GDPR is a complex and evolving body of law that aims to deal with several technological and societal health data privacy problems, while safeguarding public health interests and addressing its internal gaps and uncertainties. The book answers a diverse range of questions including: What role can the GDPR play in regulating health surveillance and big (health) data analytics? Can it catch up with internet-age developments? Are the solutions to the challenges posed by big health data to be found in the law? Does the GDPR provide adequate tools and mechanisms to ensure public health objectives and the effective protection of privacy? How does the GDPR deal with data that concern children's health and academic research? By analysing a number of diverse questions concerning big health data under the GDPR from various perspectives, this book will appeal to those interested in privacy, data protection, big data, health sciences, information technology, the GDPR, EU and human rights law. This book examines health and big data questions in light of the GDPR and the EU's general data privacy legal framework. It addresses the opportunities and challenges of big health data and considers the GDPR's responses to these from a variety of disciplines and perspectives. The growth of data-collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and ingestible tech, combined with recent technological developments such as increased capacity of data storage, artificial intelligence and smart algorithms, has spawned a big data revolution that has reshaped how we understand and approach health data. Recently the COVID-19 pandemic has foregrounded a variety of data privacy issues. The collection, storage, sharing and analysis of health- related data raises major legal and ethical questions relating to privacy, data protection, profiling, discrimination, surveillance, personal autonomy and dignity. This book examines health privacy questions in light of the General Data Protection Regulation (GDPR) and the general data privacy legal framework of the European Union (EU). The GDPR is a complex and evolving body of law that aims to deal with several technological and societal health data privacy problems, while safeguarding public health interests and addressing its internal gaps and uncertainties. The book answers a diverse range of questions including: What role can the GDPR play in regulating health surveillance and big (health) data analytics? Can it catch up with internet-age developments? Are the solutions to the challenges posed by big health data to be found in the law? Does the GDPR provide adequate tools and mechanisms to ensure public health objectives and the effective protection of privacy? How does the GDPR deal with data that concern children’s health and academic research? By analysing a number of diverse questions concerning big health data under the GDPR from various perspectives, this book will appeal to those interested in privacy, data protection, big data, health sciences, information technology, the GDPR, EU and human rights law. Section 1 Health Data Privacy under the GDPR Chapter 1 The GDPR and (Big) Health Data: Assessing the EU Legislator’s Choices Maria Tzanou, Keele University, UK Chapter 2 Attribution of Responsibility under the GDPR in the Context of Health Data Processing Yordanka Ivanova, Sofia University St. Kliment Ohridski, Bulgaria, and Vrije Universiteit Brussel, Belgium Chapter 3 Healthcare data about children in social media: the challenges raised under the GDPR Rosemary Jay, Hunton Andrews Kurth, UK Chapter 4 European-wide Big Health Data Analytics under the GDPR Jos Dumortier, KU Leuven and Timelex Lawyers, Brussels, Belgium Mahault Piéchaud Boura, Timelex Lawyers, Brussels, Belgium Chapter 5 Privacy Issues in eHealth and mHealth Apps Beatriz Sainz-de-Abajo, University of Valladolid, Spain Isabel de la Torre-Díez, University of Valladolid, Spain Susel Góngora-Alonso, University of Valladolid, Spain Miguel López-Coronado, University of Valladolid, Spain Section 2 A Critical Assessment of the GDPR’s Regulatory Solutions Chapter 6 Regulating non-personal data in the age of Big Data Bart van der Sloot, Tilburg University, the Netherlands Chapter 7 Addressing Big Data and AI Challenges: A Taxonomy and Why the GDPR Cannot Provide a One-size-fits-all Solution Maria Tzanou, Keele University, UK Chapter 8 The GDPR, AI and the NHS Code of Conduct for Data-Driven Health and Care Technology Joseph Savirimuthu, University of Liverpool, UK Dr. Maria Tzanou is Senior Lecturer in Law at Keele University, United Kingdom. |
Author | Maria Tzanou |
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Copyright | 2021 Taylor & Francis |
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Keywords | Big Data Analytics Data Protection Law Health Data Sensitive Personal Data Data Protection Regimes Big Data Challenges Data Protection Impact Assessments UK Act Non-personal Data AI System Historical Research Purposes Big Data Context Data Subjects Big Data Big Data Issues Big Health Data Data Protection Data Controller Health Data Processing Data Protection Officer Personal Data Medical Identity Theft GDPR mHealth App Scientific Research Purposes |
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PublicationSeriesTitle | Routledge Research in the Law of Emerging Technologies |
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Snippet | The growth of data-collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and... This book examines health and big data questions in light of the GDPR and the EU's general data privacy legal framework. It addresses the opportunities and... |
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SubjectTerms | Artificial Intelligence Children Consent Data Protection Data Storage Emerging Technologies European (EC) Law European Law European Parliament.-General Data Protection Regulation GDPR Health Networking Platforms Legal Framework Legal, Ethical & Social Aspects of IT Medical records Privacy, Right of Smart Algorithms Social Media technological developments Women's Health |
Subtitle | Big Data Challenges and Regulatory Responses |
TableOfContents | Cover -- Half Title -- Series Page -- Title Page -- Copyright Page -- Dedication Page -- Contents -- Preface -- Acknowledgements -- Section 1 Health data privacy under the GDPR -- 1 The GDPR and (big) health data: assessing the EU legislator's choices -- 2 Attribution of responsibility under the GDPR in the context of health data processing -- 3 Healthcare data about children in social media: the challenges raised under the GDPR -- 4 European-wide big health data analytics under the GDPR -- 5 Privacy issues in eHealth and mHealth apps -- Section 2 A critical assessment of the GDPR's regulatory solutions -- 6 Regulating non-personal data in the age of Big Data -- 7 Addressing big data and AI challenges: a taxonomy and why the GDPR cannot provide a one-size-fits-all solution -- 8 The GDPR, AI and the NHS Code of Conduct for Data-Driven Health and Care Technology -- List of contributors -- Index |
Title | Health Data Privacy under the GDPR |
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