Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body
Werner-Lin, Allison, Forbes Shepherd, Rowan, Young, Jennifer L., Wilsnack, Catherine, Merrill, Shana L., Greene, Mark H., Khincha, Payal P.
Published in Social science & medicine (1982) (01.05.2022)
Published in Social science & medicine (1982) (01.05.2022)
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Journal Article
Family communication challenges of adolescents and young adults with Li-Fraumeni syndrome: Implications for psychosocial care
Rising, Camella J, Wilsnack, Catherine, Boyd, Patrick, Sleight, Alix G, Hutson, Sadie P, Khincha, Payal P, Werner-Lin, Allison
Published in Patient education and counseling (01.11.2022)
Published in Patient education and counseling (01.11.2022)
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Journal Article
Defining the complex needs of families with rare diseases-the example of telomere biology disorders
Wilsnack, Catherine, Rising, Camella J, Pearce, Emily E, Forbes Shepherd, Rowan, Thompson, Ashley S, Majid, Alina, Werner-Lin, Allison, Savage, Sharon A, Hutson, Sadie P
Published in European journal of human genetics : EJHG (01.10.2024)
Published in European journal of human genetics : EJHG (01.10.2024)
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Journal Article
Diet and physical activity behaviors: how are they related to illness perceptions, coping, and health-related quality of life in young people with hereditary cancer syndromes?
Rising, Camella J., Huelsnitz, Chloe O., Shepherd, Rowan Forbes, Klein, William M. P., Sleight, Alix G., Wilsnack, Catherine, Boyd, Patrick, Feldman, Alexandra E., Khincha, Payal P., Werner-Lin, Allison
Published in Journal of behavioral medicine (01.08.2024)
Published in Journal of behavioral medicine (01.08.2024)
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Journal Article
How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? “With Li‐Fraumeni syndrome, it’s just an intermission”
Werner‐Lin, Allison, Forbes Shepherd, Rowan, Rising, Camella J., Thompson, Ashley S., Huelsnitz, Chloe, Wilsnack, Catherine, Boyd, Patrick, Sleight, Alix G., Hutson, Sadie, Khincha, Payal P.
Published in Psycho-oncology (Chichester, England) (01.03.2023)
Published in Psycho-oncology (Chichester, England) (01.03.2023)
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Journal Article
Waiting and “weighted down”: the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome
Werner-Lin, Allison, Young, Jennifer L., Wilsnack, Catherine, Merrill, Shana L., Groner, Victoria, Greene, Mark H., Khincha, Payal P.
Published in Familial cancer (01.07.2020)
Published in Familial cancer (01.07.2020)
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Journal Article
Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome
Werner-Lin, Allison, Khincha, Payal P., Thompson, Ashley S., Rising, Camella, Sleight, Alix, Wilsnack, Catherine, Boyd, Patrick, Feldman, Alexandra, Shepherd, Rowan Forbes, Savage, Sharon A.
Published in Rare (2024)
Published in Rare (2024)
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Journal Article
A “rotating menu” of medical uncertainty for families affected by telomere biology disorders: A qualitative interview study
Pearce, Emily E., Majid, Alina, Brown, Toniya, Wilsnack, Catherine, Rising, Camella, Thompson, Ashley S., Forbes Shepherd, Rowan, Niknafs, Arman, Werner-Lin, Allison, Gilkey, Melissa B., Ribisl, Kurt M., Hutson, Sadie P., Han, Paul K.J., Savage, Sharon A.
Published in SSM. Qualitative research in health (01.12.2024)
Published in SSM. Qualitative research in health (01.12.2024)
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Journal Article
Family Identity and Roles in the Context of Li-Fraumeni Syndrome: “No One’s Like Us Mutants”
Wilsnack, Catherine, Young, Jennifer L., Merrill, Shana L., Groner, Victoria, Loud, Jennifer T., Bremer, Renee C., Greene, Mark H., Khincha, Payal P., Werner-Lin, Allison
Published in Health & social work (16.11.2021)
Published in Health & social work (16.11.2021)
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Journal Article
Relating to the Body Under Chronic Cancer Threat: Implications for Psychosocial Health Among Adolescents and Young Adults with Cancer Predisposition Syndromes
Rising, Camella J, Forbes Shepherd, Rowan, Sleight, Alix G, Boyd, Patrick, Wilsnack, Catherine, Thompson, Ashley S, Huelsnitz, Chloe O, Hutson, Sadie P, Khincha, Payal P, Werner-Lin, Allison
Published in Journal of adolescent and young adult oncology (27.09.2024)
Published in Journal of adolescent and young adult oncology (27.09.2024)
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Journal Article
"It's All about Breaking down Those Barriers…": Exploring Survivors' Perspectives on Services and Treatment Needs following Commercial Sexual Exploitation during Childhood
O'Brien, Jennifer E, Jordan, Brooke, Honeycutt, Nina, Wilsnack, Catherine, Davison, Clara
Published in Journal of evidence-based social work (2019) (01.03.2019)
Published in Journal of evidence-based social work (2019) (01.03.2019)
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Journal Article