The evolving landscape of expanded carrier screening: challenges and opportunities
Kraft, Stephanie A., Duenas, Devan, Wilfond, Benjamin S., Goddard, Katrina A. B.
Published in Genetics in medicine (01.04.2019)
Published in Genetics in medicine (01.04.2019)
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Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents
Botkin, Jeffrey R., Belmont, John W., Berg, Jonathan S., Berkman, Benjamin E., Bombard, Yvonne, Holm, Ingrid A., Levy, Howard P., Ormond, Kelly E., Saal, Howard M., Spinner, Nancy B., Wilfond, Benjamin S., McInerney, Joseph D.
Published in American journal of human genetics (02.07.2015)
Published in American journal of human genetics (02.07.2015)
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Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations
Bridges, Celina, Duenas, Devan M, Lewis, Hannah, Anderson, Katherine, Opel, Douglas J, Wilfond, Benjamin S, Kraft, Stephanie A
Published in PloS one (29.04.2021)
Published in PloS one (29.04.2021)
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Clinical trials and medical care: defining the therapeutic misconception
Henderson, Gail E, Churchill, Larry R, Davis, Arlene M, Easter, Michele M, Grady, Christine, Joffe, Steven, Kass, Nancy, King, Nancy M P, Lidz, Charles W, Miller, Franklin G, Nelson, Daniel K, Peppercorn, Jeffrey, Rothschild, Barbra Bluestone, Sankar, Pamela, Wilfond, Benjamin S, Zimmer, Catherine R
Published in PLoS medicine (01.11.2007)
Published in PLoS medicine (01.11.2007)
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Longitudinal adherence to breast cancer surveillance following cancer genetic testing in an integrated health care system
Knerr, Sarah, Guo, Boya, Wernli, Karen J., Mittendorf, Kathleen F., Feigelson, Heather Spencer, Gilmore, Marian J., Jarvik, Gail P., Kauffman, Tia L., Keast, Erin, Liles, Elizabeth G., Lynch, Frances L., Muessig, Kristin R., Okuyama, Sonia, Veenstra, David L., Zepp, Jamilyn M., Wilfond, Benjamin S., Devine, Beth, Goddard, Katrina A. B.
Published in Breast cancer research and treatment (01.10.2023)
Published in Breast cancer research and treatment (01.10.2023)
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Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations
Wolf, Susan M., Lawrenz, Frances P., Nelson, Charles A., Kahn, Jeffrey P., Cho, Mildred K., Clayton, Ellen Wright, Fletcher, Joel G., Georgieff, Michael K., Hammerschmidt, Dale, Hudson, Kathy, Illes, Judy, Kapur, Vivek, Keane, Moira A., Koenig, Barbara A., LeRoy, Bonnie S., McFarland, Elizabeth G., Paradise, Jordan, Parker, Lisa S., Terry, Sharon F., Van Ness, Brian, Wilfond, Benjamin S.
Published in The Journal of law, medicine & ethics (22.06.2008)
Published in The Journal of law, medicine & ethics (22.06.2008)
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Assessment of willingness to pay for expanded carrier screening among women and couples undergoing preconception carrier screening
Clarke, Elizabeth V, Schneider, Jennifer L, Lynch, Frances, Kauffman, Tia L, Leo, Michael C, Rosales, Ana G, Dickerson, John F, Shuster, Elizabeth, Wilfond, Benjamin S, Goddard, Katrina A B
Published in PloS one (18.07.2018)
Published in PloS one (18.07.2018)
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Medical interpreter‐mediated genetic counseling for Spanish preferring adults at risk for a hereditary cancer syndrome
Joseph, Galen, Lindberg, Nangel M., Guerra, Claudia, Hernandez, Cindy, Karliner, Leah S., Gilmore, Marian J., Zepp, Jamilyn, Rolf, Bradley A., Caruncho, Mikaella, Riddle, Leslie, Kauffman, Tia L., Leo, Michael C., Wilfond, Benjamin S.
Published in Journal of genetic counseling (01.08.2023)
Published in Journal of genetic counseling (01.08.2023)
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Hyperhydration to Improve Kidney Outcomes in Children with Shiga Toxin-Producing E. coli Infection: a multinational embedded cluster crossover randomized trial (the HIKO STEC trial)
Freedman, Stephen B, Schnadower, David, Estes, Myka, Casper, T Charles, Goldstein, Stuart L, Grisaru, Silviu, Pavia, Andrew T, Wilfond, Benjamin S, Metheney, Melissa, Kimball, Kadyn, Tarr, Phillip I
Published in Current controlled trials in cardiovascular medicine (27.05.2023)
Published in Current controlled trials in cardiovascular medicine (27.05.2023)
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Assent in Research: The Voices of Adolescents
Grady, Christine, R.N., Ph.D, Wiener, Lori, Ph.D, Abdoler, Emily, M.D, Trauernicht, Emily, Zadeh, Sima, Psy.D, Diekema, Douglas S., M.D., M.P.H, Wilfond, Benjamin S., M.D, Wendler, David, Ph.D
Published in Journal of adolescent health (01.05.2014)
Published in Journal of adolescent health (01.05.2014)
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Informed consent: Old and new challenges in the context of the COVID-19 pandemic
Rothwell, Erin, Brassil, Donna, Barton-Baxter, Marietta, Brownley, Kimberly A, Dickert, Neal W, Ford, Daniel E, Kraft, Stephanie A, McCormick, Jennifer B, Wilfond, Benjamin S
Published in Journal of clinical and translational science (07.04.2021)
Published in Journal of clinical and translational science (07.04.2021)
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The experience of families with children with trisomy 13 and 18 in social networks
Janvier, Annie, Farlow, Barbara, Wilfond, Benjamin S
Published in Pediatrics (Evanston) (01.08.2012)
Published in Pediatrics (Evanston) (01.08.2012)
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Identifying patients with Lynch syndrome using a universal tumor screening program in an integrated healthcare system
Crain, Philip R, Zepp, Jamilyn M, Gille, Sara, Jenkins, Lindsay, Kauffman, Tia L, Shuster, Elizabeth, Goddard, Katrina A B, Wilfond, Benjamin S, Hunter, Jessica Ezzell
Published in Hereditary cancer in clinical practice (18.04.2022)
Published in Hereditary cancer in clinical practice (18.04.2022)
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Journal Article
Bringing Social Context Into the Conversation About Pediatric Long-term Ventilation
Henderson, Carrie M, Wilfond, Benjamin S, Boss, Renee D
Published in Hospital pediatrics (01.02.2018)
Published in Hospital pediatrics (01.02.2018)
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Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation
Boss, Renee D., Vo, Holly H., Jabre, Nicholas A., Shepard, Jennifer, Mercer, Amanda, McDermott, Anne, Lanier, Chisa L., Ding, Yuanyuan, Wilfond, Benjamin S., Henderson, Carrie M.
Published in PEC innovation (01.12.2023)
Published in PEC innovation (01.12.2023)
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Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews
Mittendorf, Kathleen F, Lewis, Hannah S, Duenas, Devan M, Eubanks, Donna J, Gilmore, Marian J, Goddard, Katrina A B, Joseph, Galen, Kauffman, Tia L, Kraft, Stephanie A, Lindberg, Nangel M, Reyes, Ana A, Shuster, Elizabeth, Syngal, Sapna, Ukaegbu, Chinedu, Zepp, Jamilyn M, Wilfond, Benjamin S, Porter, Kathryn M
Published in Hereditary cancer in clinical practice (10.06.2022)
Published in Hereditary cancer in clinical practice (10.06.2022)
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