Young people’s opinions of cancer care in England: the BRIGHTLIGHT cohort
Hughes, Luke, Fern, Lorna A, Whelan, Jeremy S, Taylor, Rachel M, Study Group, BRIGHTLIGHT
Published in BMJ open (20.09.2023)
Published in BMJ open (20.09.2023)
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Patients' Experiences of a Sarcoma Diagnosis: A Process Mapping Exercise of Diagnostic Pathways
Martin, Sam, Clark, Sigrún Eyrúnardóttir, Gerrand, Craig, Gilchrist, Katie, Lawal, Maria, Maio, Laura, Martins, Ana, Storey, Lesley, Taylor, Rachel M, Wells, Mary, Whelan, Jeremy S, Windsor, Rachael, Woodford, Julie, Vindrola-Padros, Cecilia, Fern, Lorna A
Published in Cancers (01.08.2023)
Published in Cancers (01.08.2023)
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Journal Article
A Critical Review of the Impact of Sarcoma on Psychosocial Wellbeing
Woodford, Julie, Taylor, Rachel M., Windsor, Rachael, Onasanya, Maria, Gerrand, Craig, Bennister, Lindsey, Wells, Mary, Martins, Ana, Fern, Lorna A., Storey, Lesley, Whelan, Jeremy
Published in Complexity (New York, N.Y.) (2019)
Published in Complexity (New York, N.Y.) (2019)
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Journal Article
The Sarcoma Assessment Measure (SAM): Preliminary Psychometric Validation of a Novel Patient-Reported Outcome Measure
Hulbert-Williams, Lee, Hulbert-Williams, Nicholas J, Martins, Ana, Storey, Lesley, Bradley, Jennie, O'Sullivan, Hatty, Fern, Lorna A, Lawal, Maria, Windsor, Rachael, Gerrand, Craig, Whelan, Jeremy S, Bennister, Lindsey, Wells, Mary, Taylor, Rachel M
Published in Cancers (01.03.2024)
Published in Cancers (01.03.2024)
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Journal Article
Specialist cancer services for teenagers and young adults in England: BRIGHTLIGHT research programme
Taylor, Rachel M, Fern, Lorna A, Barber, Julie, Gibson, Faith, Lea, Sarah, Patel, Nishma, Morris, Stephen, Alvarez-Galvez, Javier, Feltbower, Richard, Hooker, Louise, Martins, Ana, Stark, Dan, Raine, Rosalind, Whelan, Jeremy S
Published in Programme grants for applied research (01.11.2021)
Published in Programme grants for applied research (01.11.2021)
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Journal Article
BRIGHTLIGHT researchers as 'dramaturgs': creating There is a Light from complex research data
Taylor, Rachel M, Lobel, Brian, Thompson, Keisha, Onashile, Adura, Croasdale, Mark, Hall, Nathaniel, Gibson, Faith, Martins, Ana, Wright, David, Morgan, Sue, Whelan, Jeremy S, Fern, Lorna A
Published in Research involvement and engagement (10.08.2020)
Published in Research involvement and engagement (10.08.2020)
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Journal Article
Comparison of MAPIE versus MAP in patients with a poor response to preoperative chemotherapy for newly diagnosed high-grade osteosarcoma (EURAMOS-1): an open-label, international, randomised controlled trial
Marina, Neyssa M, Prof, Smeland, Sigbjørn, Prof, Bielack, Stefan S, Prof, Bernstein, Mark, Prof, Jovic, Gordana, PhD, Krailo, Mark D, PhD, Hook, Jane M, MRCP, Arndt, Carola, Prof, van den Berg, Henk, MD, Brennan, Bernadette, MD, Brichard, Bénédicte, Prof, Brown, Ken L B, MD, Butterfass-Bahloul, Trude, MD, Calaminus, Gabriele, MD, Daldrup-Link, Heike E, MD, Eriksson, Mikael, MD, Gebhardt, Mark C, MD, Gelderblom, Hans, Prof, Gerss, Joachim, PhD, Goldsby, Robert, MD, Goorin, Allen, MD, Gorlick, Richard, Prof, Grier, Holcombe E, Prof, Hale, Juliet P, MD, Hall, Kirsten Sundby, MD, Hardes, Jendrik, Prof, Hawkins, Douglas S, MD, Helmke, Knut, Prof, Hogendoorn, Pancras C W, Prof, Isakoff, Michael S, MD, Janeway, Katherine A, MD, Jürgens, Heribert, Prof, Kager, Leo, MD, Kühne, Thomas, Prof, Lau, Ching C, MD, Leavey, Patrick J, Prof, Lessnick, Stephen L, Prof, Mascarenhas, Leo, MD, Meyers, Paul A, Prof, Mottl, Hubert, MD, Nathrath, Michaela, Prof, Papai, Zsuzsanna, Prof, Randall, R Lor, Prof, Reichardt, Peter, MD, Renard, Marleen, MD, Safwat, Akmal Ahmed, PhD, Schwartz, Cindy L, Prof, Stevens, Michael C G, Prof, Strauss, Sandra J, PhD, Teot, Lisa, MD, Werner, Mathias, MD, Sydes, Matthew R, MSc, Whelan, Jeremy S, Prof
Published in The lancet oncology (01.10.2016)
Published in The lancet oncology (01.10.2016)
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Methotrexate, Doxorubicin, and Cisplatin (MAP) Plus Maintenance Pegylated Interferon Alfa-2b Versus MAP Alone in Patients With Resectable High-Grade Osteosarcoma and Good Histologic Response to Preoperative MAP: First Results of the EURAMOS-1 Good Response Randomized Controlled Trial
Bielack, Stefan S, Smeland, Sigbjørn, Whelan, Jeremy S, Marina, Neyssa, Jovic, Gordana, Hook, Jane M, Krailo, Mark D, Gebhardt, Mark, Pápai, Zsuzsanna, Meyer, James, Nadel, Helen, Randall, R Lor, Deffenbaugh, Claudia, Nagarajan, Rajaram, Brennan, Bernadette, Letson, G Douglas, Teot, Lisa A, Goorin, Allen, Baumhoer, Daniel, Kager, Leo, Werner, Mathias, Lau, Ching C, Sundby Hall, Kirsten, Gelderblom, Hans, Meyers, Paul, Gorlick, Richard, Windhager, Reinhard, Helmke, Knut, Eriksson, Mikael, Hoogerbrugge, Peter M, Schomberg, Paula, Tunn, Per-Ulf, Kühne, Thomas, Jürgens, Heribert, van den Berg, Henk, Böhling, Tom, Picton, Susan, Renard, Marleen, Reichardt, Peter, Gerss, Joachim, Butterfass-Bahloul, Trude, Morris, Carol, Hogendoorn, Pancras C W, Seddon, Beatrice, Calaminus, Gabriele, Michelagnoli, Maria, Dhooge, Catharina, Sydes, Matthew R, Bernstein, Mark
Published in Journal of clinical oncology (10.07.2015)
Published in Journal of clinical oncology (10.07.2015)
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Journal Article
Associations between diagnostic time intervals and health-related quality of life, clinical anxiety and depression in adolescents and young adults with cancer: cross-sectional analysis of the BRIGHTLIGHT cohort
Forster, Alice S, Herbert, Annie, Koo, Minjoung Monica, Taylor, Rachel M, Gibson, Faith, Whelan, Jeremy S, Lyratzopoulos, Georgios, Fern, Lorna A
Published in British journal of cancer (01.06.2022)
Published in British journal of cancer (01.06.2022)
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SARC025 arms 1 and 2: A phase 1 study of the poly(ADP‐ribose) polymerase inhibitor niraparib with temozolomide or irinotecan in patients with advanced Ewing sarcoma
Chugh, Rashmi, Ballman, Karla V., Helman, Lee J., Patel, Shreyaskumar, Whelan, Jeremy S., Widemann, Brigitte, Lu, Yao, Hawkins, Douglas S., Mascarenhas, Leo, Glod, John W., Ji, Jiuping, Zhang, Yiping, Reinke, Denise, Strauss, Sandra J.
Published in Cancer (15.04.2021)
Published in Cancer (15.04.2021)
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Journal Article
Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM)
Martins, Ana, Bennister, Lindsey, Fern, Lorna A., Gerrand, Craig, Onasanya, Maria, Storey, Lesley, Wells, Mary, Whelan, Jeremy S., Windsor, Rachael, Woodford, Julie, Taylor, Rachel M.
Published in Quality of life research (01.08.2020)
Published in Quality of life research (01.08.2020)
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Journal Article
A Qualitative Study of the Factors Influencing Patients' Experience of Soft Tissue Sarcoma in the United Kingdom
Martins, Ana, Bennister, Lindsey, Fern, Lorna A, Gerrand, Craig, Onasanya, Maria, Storey, Lesley, Wells, Mary, Whelan, Jeremy S, Windsor, Rachael, Woodford, Julie, Taylor, Rachel M
Published in Cancer nursing (01.03.2024)
Published in Cancer nursing (01.03.2024)
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Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer
Taylor, Rachel M, Feltbower, Richard G, Aslam, Natasha, Raine, Rosalind, Whelan, Jeremy S, Gibson, Faith
Published in BMJ open (01.01.2016)
Published in BMJ open (01.01.2016)
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Journal Article
The BRIGHTLIGHT National Survey of the Impact of Specialist Teenage and Young Adult Cancer Care on Caregivers' Information and Support Needs
Martins, Ana, Alvarez-Galvez, Javier, Fern, Lorna A, Vindrola-Padros, Cecilia, Barber, Julie A, Gibson, Faith, Whelan, Jeremy S, Taylor, Rachel M
Published in Cancer nursing (01.05.2021)
Published in Cancer nursing (01.05.2021)
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Journal Article
Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance
Aldiss, Susie, Fern, Lorna A, Phillips, Robert S, Callaghan, Amy, Dyker, Karen, Gravestock, Helen, Groszmann, Michael, Hamrang, Leila, Hough, Rachael, McGeachy, Demi, Morgan, Sue, Smith, Sam, Upadhyaya, Sheela, Veitch, Helen, Veitch, Lara, Williamson, Max, Whelan, Jeremy S, Gibson, Faith
Published in BMJ open (05.08.2019)
Published in BMJ open (05.08.2019)
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