Cancer survivors not participating in observational patient-reported outcome studies have a lower survival compared to participants: the population-based PROFILES registry
de Rooij, Belle H., Ezendam, Nicole P.M., Mols, Floortje, Vissers, Pauline A. J., Thong, Melissa S. Y., Vlooswijk, Carla C. P., Oerlemans, Simone, Husson, Olga, Horevoorts, Nicole J. E., van de Poll-Franse, Lonneke V.
Published in Quality of life research (01.12.2018)
Published in Quality of life research (01.12.2018)
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Journal Article
Switching the scope from “how to identify cancer survivors” to “who is participating in cancer survivorship research”: A proposal for a new focus
Wal, Deborah, Janssen, Silvie H. M., Meer, Daniël J., Vlooswijk, Carla C. P., Roos, Daniëlle C., Bootsma, Tom I., Fles, Renske, Burgers, Vivian W. G., Husson, Olga
Published in Cancer (15.05.2022)
Published in Cancer (15.05.2022)
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Journal Article
Learning from long‐term adolescent and young adult (AYA) cancer survivors regarding their age‐specific care needs to improve current AYA care programs
Janssen, Silvie H. M., Vlooswijk, Carla, Manten‐Horst, Eveliene, Sleeman, Sophia H. E., Bijlsma, Rhodé M., Kaal, Suzanne E. J., Kerst, Jan Martijn, Tromp, Jacqueline M., Bos, Monique E. M. M., Hulle, Tom, Lalisang, Roy I., Nuver, Janine, Kouwenhoven, Mathilde C. M., Graaf, Winette T. A., Husson, Olga
Published in Cancer medicine (Malden, MA) (01.06.2023)
Published in Cancer medicine (Malden, MA) (01.06.2023)
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Journal Article
Recruiting Adolescent and Young Adult Cancer Survivors for Patient-Reported Outcome Research: Experiences and Sample Characteristics of the SURVAYA Study
Vlooswijk, Carla, Poll-Franse, Lonneke V. van de, Janssen, Silvie H. M., Derksen, Esther, Reuvers, Milou J. P., Bijlsma, Rhodé, Kaal, Suzanne E. J., Kerst, Jan Martijn, Tromp, Jacqueline M., Bos, Monique E. M. M., Hulle, Tom van der, Lalisang, Roy I., Nuver, Janine, Kouwenhoven, Mathilde C. M., van der Graaf, Winette T. A., Husson, Olga
Published in Current oncology (Toronto) (29.07.2022)
Published in Current oncology (Toronto) (29.07.2022)
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Journal Article
A Negative Body Image among Adolescent and Young Adult (AYA) Cancer Survivors: Results from the Population-Based SURVAYA Study
Saris, Laura M. H, Vlooswijk, Carla, Kaal, Suzanne E. J, Nuver, Janine, Bijlsma, Rhodé M, van der Hulle, Tom, Kouwenhoven, Mathilde C. M, Tromp, Jacqueline M, Lalisang, Roy I, Bos, Monique E. M. M, van der Graaf, Winette T. A, Husson, Olga
Published in Cancers (26.10.2022)
Published in Cancers (26.10.2022)
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Journal Article
AYAs' online information and eHealth needs: A comparison with healthcare professionals' perceptions
Graaf, Daniëlle L., Vlooswijk, Carla, Bol, Nadine, Krahmer, Emiel J., Bijlsma, Rhodé, Kaal, Suzanne, Sleeman, Sophia H. E., Graaf, Winette T. A., Husson, Olga, Eenbergen, Mies C.
Published in Cancer medicine (Malden, MA) (01.01.2023)
Published in Cancer medicine (Malden, MA) (01.01.2023)
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Journal Article
Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue
Vlooswijk, Carla, Janssen, Silvie H. M., van de Poll-Franse, Lonneke V., Bijlsma, Rhodé, Kaal, Suzanne E. J., Kerst, J. Martijn, Tromp, Jacqueline M., Bos, Monique E. M. M., Lalisang, Roy I., Nuver, Janine, Kouwenhoven, Mathilde C. M., van der Graaf, Winette T. A., Husson, Olga
Published in Journal of patient-reported outcomes (13.09.2023)
Published in Journal of patient-reported outcomes (13.09.2023)
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Journal Article
Self-reported causes of cancer among 6881 survivors with 6 tumour types: results from the PROFILES registry
Vlooswijk, Carla, Husson, Olga, Oerlemans, Simone, Ezendam, Nicole, Schoormans, Dounya, de Rooij, Belle, Mols, Floortje
Published in Journal of cancer survivorship (01.02.2023)
Published in Journal of cancer survivorship (01.02.2023)
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Journal Article
Reference data of the EORTC QLQ-C30 questionnaire: five consecutive annual assessments of approximately 2000 representative Dutch men and women
Mols, Floortje, Husson, Olga, Oudejans, Marije, Vlooswijk, Carla, Horevoorts, Nicole, van de Poll-Franse, Lonneke V
Published in Acta oncologica (03.10.2018)
Published in Acta oncologica (03.10.2018)
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Journal Article
Measuring Clinical, Biological, and Behavioral Variables to Elucidate Trajectories of Patient-Reported Outcomes: The PROFILES Registry
van de Poll-Franse, Lonneke V, Horevoorts, Nicole, Schoormans, Dounya, Beijer, Sandra, Ezendam, Nicole P M, Husson, Olga, Oerlemans, Simone, Schagen, Sanne B, Hageman, Geja J, Van Deun, Katrijn, van den Hurk, Corina, van Eenbergen, Mies, Mols, Floortje
Published in JNCI : Journal of the National Cancer Institute (13.06.2022)
Published in JNCI : Journal of the National Cancer Institute (13.06.2022)
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Journal Article
Physical Activity is Associated with Health Related Quality of Life in Lymphoma Survivors Regardless of Body Mass Index; Results from the Profiles Registry
Vlooswijk, Carla, Oerlemans, Simone, Ezendam, Nicole P. M., Schep, Goof, Slot, Stefanie, Thong, Melissa S. Y., Vissers, Pauline A. J., Beijer, Sandra
Published in Nutrition and cancer (2022)
Published in Nutrition and cancer (2022)
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Journal Article
Patient-Reported Outcomes of Accelerated Aging: A Novel Approach to Investigate Second Cancer Risk in Adolescent and Young Adult (18-39 Years) Cancer Survivors
van der Meer, Daniël J, Zevenbergen, Susan, Vlooswijk, Carla, Bijlsma, Rhodé M, Kaal, Suzanne E J, Kerst, Jan Martijn, Tromp, Jacqueline M, Bos, Monique E M M, van der Hulle, Tom, Lalisang, Roy I, Nuver, Janine, Kouwenhoven, Mathilde C M, van der Graaf, Winette T A, Husson, Olga
Published in The oncologist (Dayton, Ohio) (04.04.2024)
Published in The oncologist (Dayton, Ohio) (04.04.2024)
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Journal Article
Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform
Vlooswijk, Carla, Janssen, Silvie H M, Sleeman, Sophia H E, Pluis, Jonas, van der Graaf, Winette T A, van de Poll-Franse, Lonneke V, Husson, Olga, van Eenbergen, Mies C
Published in Journal of cancer survivorship (18.10.2024)
Published in Journal of cancer survivorship (18.10.2024)
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Journal Article
‘This is not part of my life plan’: A qualitative study on the psychosocial experiences and practical challenges in young adults with cancer age 25 to 39 years at diagnosis
Lidington, Emma, Vlooswijk, Carla, Stallard, Kate, Travis, Emily, Younger, Eugenie, Edwards, Penelope, Nandhabalan, Meera, Hunter, Nikki, Sarpal, Neelam, Flett, Denise, Din, Amy, Starling, Naureen, Larkin, James, Stanway, Susannah, Nobbenhuis, Marielle, Banerjee, Susana, Szucs, Zoltan, Darlington, Anne‐Sophie, Gonzalez, Michael, Sirohi, Bhawna, Graaf, Winette T. A., Husson, Olga
Published in European journal of cancer care (01.09.2021)
Published in European journal of cancer care (01.09.2021)
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Journal Article
Exploring the interconnectedness between health-related quality of life factors among long-term adolescent and young adult cancer survivors (AYAs): a network analysis
Bootsma, Tom I., van de Wal, Deborah, Vlooswijk, Carla, Roos, Daniëlle C., Drabbe, Cas, Tissier, Renaud, Bijlsma, Rhodé M., Kaal, Suzanne E.J., Kerst, Jan Martijn, Tromp, Jacqueline M., Bos, Monique E.M.M., van der Hulle, Tom, Lalisang, Roy I., Nuver, Janine, Kouwenhoven, Mathilde C.M., van der Graaf, Winette T.A., Janssen, Silvie H.M., Husson, Olga
Published in Supportive care in cancer (01.02.2024)
Published in Supportive care in cancer (01.02.2024)
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Journal Article
Pre-treatment fertility preservation and post-treatment reproduction in long-term survivors of adolescent and young adult (AYA) cancer
Lehmann, Vicky, Vlooswijk, Carla, van der Graaf, Winette T A, Bijlsma, Rhodé, Kaal, Suzanne E J, Kerst, Jan Martijn, Tromp, Jacqueline M, Bos, Monique E M M, van der Hulle, Tom, Lalisang, Roy I, Nuver, Janine, Kouwenhoven, Mathilde C M, Lok, Christianne A R, Beerendonk, Catharina C M, Dinkelman-Smit, Marij, Husson, Olga
Published in Journal of cancer survivorship (06.02.2024)
Published in Journal of cancer survivorship (06.02.2024)
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Journal Article
Health-related conditions among long-term cancer survivors diagnosed in adolescence and young adulthood (AYA): results of the SURVAYA study
Janssen, Silvie H M, Vlooswijk, Carla, Bijlsma, Rhodé M, Kaal, Suzanne E J, Kerst, Jan Martijn, Tromp, Jacqueline M, Bos, Monique E M M, van der Hulle, Tom, Lalisang, Roy I, Nuver, Janine, Kouwenhoven, Mathilde C M, van der Graaf, Winette T A, Husson, Olga
Published in Journal of cancer survivorship (13.05.2024)
Published in Journal of cancer survivorship (13.05.2024)
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Journal Article
Adherence to the World Cancer Research Fund/American Institute for Cancer Research recommendations for cancer prevention in adolescent and young adult (AYA) cancer survivors: results from the SURVAYA study
Gavioli, Costanza, Vlooswijk, Carla, Janssen, Silvie H M, Kaal, Suzanne E J, Kerst, J Martijn, Tromp, Jacqueline M, Bos, Monique E M M, van der Hulle, Tom, van der Graaf, Winette T A, Lalisang, Roy I, Nuver, Janine, Bijlsma, Rhodé M, Kouwenhoven, Mathilde C M, Husson, Olga, Beijer, Sandra
Published in Journal of cancer survivorship (15.01.2024)
Published in Journal of cancer survivorship (15.01.2024)
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Journal Article
Differences in Internet Use and eHealth Needs of Adolescent and Young Adult Versus Older Cancer Patients; Results from the PROFILES Registry
Vlooswijk, Carla, Husson, Olga, Krahmer, Emiel J, Bijlsma, Rhodé, Kaal, Suzanne E J, Sleeman, Sophia H E, van de Poll-Franse, Lonneke V, van der Graaf, Winette T A, Bol, Nadine, van Eenbergen, Mies C
Published in Cancers (16.12.2021)
Published in Cancers (16.12.2021)
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Journal Article
Same Journey, Different Paths: Caregiver Burden among Informal Caregivers of Adolescent and Young Adult Patients with an Uncertain or Poor Cancer Prognosis (UPCP)
Reuvers, Milou J P, Burgers, Vivian W G, Vlooswijk, Carla, Verhees, Bram, Husson, Olga, van der Graaf, Winette T A
Published in Journal of clinical medicine (27.12.2023)
Published in Journal of clinical medicine (27.12.2023)
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Journal Article