Advance Care Planning for Children With Rare Diseases: A Pilot RCT
Lyon, Maureen E, Fraser, Jamie L, Thompkins, Jessica D, Clark, Heidi, Brodie, Nicola, Detwiler, Kathryn, Torres, Clarivet, Guerrera, Michael F, Younge, Tamiko, Aoun, Samar, Trujillo Rivera, Eduardo A
Published in Pediatrics (Evanston) (01.06.2024)
Published in Pediatrics (Evanston) (01.06.2024)
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Journal Article
Congruence Gaps Between Adolescents With Cancer and Their Families Regarding Values, Goals, and Beliefs About End-of-Life Care
Friebert, Sarah, Grossoehme, Daniel H, Baker, Justin N, Needle, Jennifer, Thompkins, Jessica D, Cheng, Yao I, Wang, Jichuan, Lyon, Maureen E
Published in JAMA network open (01.05.2020)
Published in JAMA network open (01.05.2020)
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Journal Article
Effect of the Family-Centered Advance Care Planning for Teens with Cancer Intervention on Sustainability of Congruence About End-of-Life Treatment Preferences: A Randomized Clinical Trial
Needle, Jennifer Susan, Friebert, Sarah, Thompkins, Jessica D, Grossoehme, Daniel H, Baker, Justin N, Jiang, JiJi, Wang, Jichuan, Lyon, Maureen E
Published in JAMA network open (01.07.2022)
Published in JAMA network open (01.07.2022)
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Journal Article
Safety outcomes of SARS-CoV-2 vaccination in pediatric patients with a first dose reaction history or allergy to polyethylene glycol or polysorbate
Hartono, Stella P, Sharma, Hemant P, Bundy, Vanessa, Thompkins, Jessica D, Kochis, Suzanne R, Brooks, Joel P
Published in The journal of allergy and clinical immunology in practice (Cambridge, MA) (01.08.2022)
Published in The journal of allergy and clinical immunology in practice (Cambridge, MA) (01.08.2022)
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Journal Article
Family caregivers of children and adolescents with rare diseases: a novel palliative care intervention
Lyon, Maureen E, Thompkins, Jessica D, Fratantoni, Karen, Fraser, Jamie L, Schellinger, Sandra E, Briggs, Linda, Friebert, Sarah, Aoun, Samar, Cheng, Yao Iris, Wang, Jichuan
Published in BMJ supportive & palliative care (25.07.2019)
Published in BMJ supportive & palliative care (25.07.2019)
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Journal Article
BOS5c.003 FACE-rare: a novel palliative care intervention for family caregivers of children living with a rare disease
Lyon, Maureen, Detwiler, Kathryn, Torres, Clarivet, Guerrera, Michael F, Thompkins, Jessica D
Published in BMJ supportive & palliative care (22.05.2023)
Published in BMJ supportive & palliative care (22.05.2023)
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