Uncovering the wider impact of COVID-19 measures on the lives of children with complex care needs and their families: A mixed-methods study protocol
Curran, Janet A, Lane, Jennifer, McCulloch, Holly, Keeping-Burke, Lisa, Johnson, Catie, Wong, Helen, Cassidy, Christine, McIsaac, Jessie-Lee, Lamptey, De-Lawrence, Clegg, Julie, Forbes, Neil, Breneol, Sydney, Sheriko, Jordan, Best, Shauna, Burgess, Stacy, Sinclair, Doug, Elliot Rose, Annette, Standing, Mary-Ann, Somerville, Mari, King, Sarah, Doucet, Shelley, Flieger, Heather, Lamb, Margie, Parsons Leigh, Jeanna, Stewart, Dana
Published in PloS one (08.07.2024)
Published in PloS one (08.07.2024)
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Snap shot: Achieving better care through a one-page personal health profile
Aston, Megan, Sweet, Krista, McAfee, Erin, Price, Sheri, Sheriko, Jordan, Monaghan, Joelle, Filliter, Jillian, Walls, Cathy, McGrath, Patrick, Vanderlee, Emma, Bye, Amanda
Published in Journal of intellectual disabilities (01.06.2021)
Published in Journal of intellectual disabilities (01.06.2021)
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Identifying children with medical complexity in administrative datasets in a Canadian context: study protocol
McCulloch, Holly, Breneol, Sydney, Stewart, Samuel A, Magalhaes, Sandra, Somerville, Mari, Sheriko, Jordan, Best, Shauna, Burgess, Stacy, Jeffers, Elizabeth, Standing, Mary-Ann, King, Sarah, Clegg, Julie, Curran, Janet A
Published in BMJ open (18.03.2022)
Published in BMJ open (18.03.2022)
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Pain burden in children with cerebral palsy (CPPain) survey: Study protocol
Andersen, Randi Dovland, Genik, Lara, Alriksson‐Schmidt, Ann I., Anderzen‐Carlsson, Agneta, Burkitt, Chantel, Bruflot, Sindre K., Chambers, Christine T., Jahnsen, Reidun B., Jeglinsky‐Kankainen, Ira, Kildal, Olav Aga, Ramstad, Kjersti, Sheriko, Jordan, Symons, Frank J., Wallin, Lars, Andersen, Guro L.
Published in Paediatric and neonatal pain (01.03.2022)
Published in Paediatric and neonatal pain (01.03.2022)
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Development of a Bedside Tool to Predict the Diagnosis of Cerebral Palsy in Term-Born Neonates
Rouabhi, Amira, Husein, Nafisa, Dewey, Deborah, Letourneau, Nicole, Daboval, Thierry, Oskoui, Maryam, Kirton, Adam, Shevell, Michael, Dunbar, Mary J
Published in JAMA pediatrics (01.02.2023)
Published in JAMA pediatrics (01.02.2023)
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Feasibility of a home-based exergame therapy for youth with spinal muscular atrophy
Iraqi, Ihsane, Selby, Kathy, Herzig, David, Cardiff, Katrina, Cushen, Niamh, Defosses, Yan, Gonorazky, Hernan, Gottowik, Juergen, Haldenby, Renee, Jurisic, Ivan, Karthigesu, Shaainthabie, Macintyre, Leigh, Mackenzie, Alex, Mah, Jean, Mccullough, James, Ng, Pamela, Opalka, Slawomir, Openchowski, Michal, Petkun, Svetlana, Potter, Beth, Sheriko, Jordan, Smith, Maureen, Strahm, Martin, Desilets, Sarah Turgeon, Woof, Angelina, Chen, Xing, Oskoui, Maryam
Published in Journal of the neurological sciences (01.12.2023)
Published in Journal of the neurological sciences (01.12.2023)
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Cerebral palsy in Canadian Indigenous children
Chen, Anjellica, Dyck Holzinger, Sasha, Oskoui, Maryam, Shevell, Michael, Andersen, John, Buckley, David, Fehlings, Darcy, Burkholder, Lee, Kirton, Adam, Koclas, Louise, Pigeon, Nicole, Van Rensburg, Esias, Sheriko, Jordan, Wood, Ellen
Published in Developmental medicine and child neurology (01.05.2021)
Published in Developmental medicine and child neurology (01.05.2021)
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A National Spinal Muscular Atrophy Registry for Real-World Evidence
Hodgkinson, Victoria L., Oskoui, Maryam, Lounsberry, Joshua, M’Dahoma, Saïd, Butler, Emily, Campbell, Craig, MacKenzie, Alex, McMillan, Hugh J., Simard, Louise, Vajsar, Jiri, Brais, Bernard, Chapman, Kristine M., Chrestian, Nicolas, Crone, Meghan, Dobrowolski, Peter, Dojeiji, Susan, Dowling, James J., Dupré, Nicolas, Genge, Angela, Gonorazky, Hernan, Hasal, Simona, Izenberg, Aaron, Johnston, Wendy, Leung, Edward, Lochmüller, Hanns, Mah, Jean K., Marerro, Alier, Massie, Rami, McAdam, Laura, McCormick, Anna, Melanson, Michel, Mezei, Michelle M., Nguyen, Cam-Tu E., O’Connell, Colleen, O’Ferrall, Erin K., Pfeffer, Gerald, Phan, Cecile, Plamondon, Stephanie, Poulin, Chantal, Rodrigue, Xavier, Schellenberg, Kerri L., Selby, Kathy, Sheriko, Jordan, Shoesmith, Christen, Smith, Garth, Taillon, Monique, Taylor, Sean, Warman Chardon, Jodi, Worley, Scott, Korngut, Lawrence
Published in Canadian journal of neurological sciences (01.11.2020)
Published in Canadian journal of neurological sciences (01.11.2020)
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CHILD-BRIGHT READYorNot Brain-Based Disabilities Trial: protocol of a randomised controlled trial (RCT) investigating the effectiveness of a patient-facing e-health intervention designed to enhance healthcare transition readiness in youth
Gorter, Jan Willem, Amaria, Khush, Kovacs, Adrienne, Rozenblum, Ronen, Thabane, Lehana, Galuppi, Barbara, Nguyen, Linda, Strohm, Sonya, Mahlberg, Nadilein, Via-Dufresne Ley, Alicia, Marelli, Ariane, Thomson, Donna, Stoddard, Roger, Mosel, JoAnne, Putterman, Connie, Pozniak, Kinga, Tasker, Nathan, Hanes, Julia, Chambers, Kyle, Havens, Jessica, Dawe-McCord, Claire, Arafeh, Dana, Alazem, Hana, Andersen, John, Azar, Rima, Boyd, Kerry, Cassidy, Caitlin, Churchill, Jamie, Curran, CJ, Doucet, Shelley, Fournier, Anne, Gander, Sarah, Mackie, Andrew, McCormick, Anna, Mesterman, Ronit, Oskoui, Maryam, Rennick, Janet, Sheriko, Jordan, Speechley, Kathy, Wynne, Kelly, Zwaigenbaum, Lonnie, Breault, Fabiola, Elshamy, Yomna, Gutierrez, Rocio, Hasan, Hashaam, Hicks, Rhiannon, Pépin, André, Sorzano, Rochelle, Zaidi, Sarah, Ungar, Wendy J, Zwicker, Jennifer, Moretti, Myla E
Published in BMJ open (26.03.2021)
Published in BMJ open (26.03.2021)
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Pediatric intrathecal baclofen management during the COVID-19 pandemic in the US and Canada
Thomas, Sruthi P, Hardesty, Christina K, Buxton, Kristin A, Collins, Andrew B, Pruente, Jessica, Pham, Kelly L D, Sheriko, Jordan, McClanahan, M Elise, Inanoglu, Didem, Srinivasan, Rajashree, Ridnour, Laura, Cooper, Robert, Khurana, Seema, Network, The Pediatric Itb
Published in Journal of pediatric rehabilitation medicine (01.01.2020)
Published in Journal of pediatric rehabilitation medicine (01.01.2020)
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