French data on the epidemiology and expert healthcare network for epidermolysis bullosa
Bodemer, Christine, Soussand, Louis, Sandrin, Arnaud, Khatim, Ahlem, Sauvestre, Angélique, Elarouci, Nabila, Jannot, Anne‐Sophie
Published in Journal of the European Academy of Dermatology and Venereology (01.05.2023)
Published in Journal of the European Academy of Dermatology and Venereology (01.05.2023)
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Journal Article
Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa
Korte, Eva W H, Pasmooij, Anna M G, Bolling, Maria C, Hickey, Sinéad, Hussain, Sagair, Kiritsi, Dimitra, Kottner, Jan, Prinsen, Cecilia A C, Sauvestre, Angélique, Sendin, Gaston, Spuls, Phyllis I, Tarrats, Núria, Wally, Verena, Welponer, Tobias, Laimer, Martin, van den Akker, Peter C
Published in British journal of dermatology (1951) (14.08.2024)
Published in British journal of dermatology (1951) (14.08.2024)
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Journal Article
Burden of caregivers and out‐of‐pocket expenditures related to epidermolysis bullosa in France
Bourrat, Emmanuelle, Taieb, Charles, Marquié, Adrien, Causse, Patricia, Bergqvist, Christina, Sauvestre, Angelique, Bellon, Nathalia
Published in Journal of the European Academy of Dermatology and Venereology (01.01.2023)
Published in Journal of the European Academy of Dermatology and Venereology (01.01.2023)
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Journal Article