Defining palliative care in cystic fibrosis: A Delphi study
Dellon, E.P., Goggin, J., Chen, E., Sabadosa, K., Hempstead, S.E., Faro, A., Homa, K.
Published in Journal of cystic fibrosis (01.05.2018)
Published in Journal of cystic fibrosis (01.05.2018)
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Journal Article
Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery
Abbott, J, Elborn, J.S, Georgiopoulos, A.M, Goldbeck, L, Marshall, B.C, Sabadosa, K.A, Smith, B.A, Quittner, A.L
Published in Journal of cystic fibrosis (01.07.2015)
Published in Journal of cystic fibrosis (01.07.2015)
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Journal Article
537 You've got to move it, move it: Walk-o-rama and Moveapalooza
Garvey, P., Boucher, K., Cantin, D., Burnham, R., Sabadosa, K.
Published in Journal of cystic fibrosis (01.09.2024)
Published in Journal of cystic fibrosis (01.09.2024)
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Journal Article
659 Results from a national mixed-methods assessment of patient and family advisory councils and boards
Allen, S., Sabadosa, K., Metcalf, A., Pandzik, G.
Published in Journal of cystic fibrosis (01.10.2023)
Published in Journal of cystic fibrosis (01.10.2023)
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Journal Article
81 Results from the National Cystic Fibrosis Foundation Experience of Care survey
Bailey, J., Gamory, D., Asfour, F., Allen, S., Sabadosa, K.
Published in Journal of cystic fibrosis (01.10.2022)
Published in Journal of cystic fibrosis (01.10.2022)
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Journal Article
711 Outcomes of diverse recruitment strategies in the Home-Reported Outcomes with CFTR Modulator Therapy study
Hergenroeder, G., Psoter, K., Brown, C., Sabadosa, K., Rosen, B., Bendy, L., Ren, C.
Published in Journal of cystic fibrosis (01.09.2024)
Published in Journal of cystic fibrosis (01.09.2024)
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Journal Article
Cystic Fibrosis Pulmonary Guidelines: Chronic Medications for Maintenance of Lung Health
MOGAYZEL, Peter J, NAURECKAS, Edward T, ROBINSON, Karen A, MUELLER, Gary, HADJILIADIS, Denis, HOAG, Jeffrey B, LUBSCH, Lisa, HAZLE, Leslie, SABADOSA, Kathy, MARSHALL, Bruce
Published in American journal of respiratory and critical care medicine (01.04.2013)
Published in American journal of respiratory and critical care medicine (01.04.2013)
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671 Home reported outcomes in people with cystic fibrosis taking elexacaftor-tezacaftor-ivacaftor: feasibility of conducting a real-world protocol
Bendy, L., Flory, M., Sabadosa, K., Brown, C., Ren, C., Zhang, C., Luo, N., Psoter, K.
Published in Journal of cystic fibrosis (01.10.2023)
Published in Journal of cystic fibrosis (01.10.2023)
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Journal Article
P113 Home reported outcomes (HERO-2) in people with cystic fibrosis taking elexacaftor/tezacaftor/ivacaftor: self-reported changes in use of chronic daily therapies at enrollment
Ren, C., Psoter, K., Sabadosa, K., Zhang, C., Meosky Luo, N., Bendy, L., Brown, C.
Published in Journal of cystic fibrosis (01.06.2023)
Published in Journal of cystic fibrosis (01.06.2023)
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Journal Article
709 Longitudinal Cystic Fibrosis Respiratory Symptom Diary—Chronic Respiratory Infection Symptom Score Questionnaire and PROMIS10 scores from the Home Reported Outcomes Study in people with CF taking elexacaftor/tezacaftor/ivacaftor
Rosen, B., Psoter, K., Hergenroeder, G., Sabadosa, K., Bendy, L., Luo, N., Zhang, C., Ren, C., Brown, C.
Published in Journal of cystic fibrosis (01.09.2024)
Published in Journal of cystic fibrosis (01.09.2024)
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Journal Article
140 Home Reported Outcomes Study (HERO-2): end-of-study participant-reported physical and mental health changes
Bendy, L., Brown, C., Sabadosa, K., Ren, C., Psoter, K., Rosen, B., Hergenroeder, G., Zhang, C., Luo, N.
Published in Journal of cystic fibrosis (01.09.2024)
Published in Journal of cystic fibrosis (01.09.2024)
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Journal Article
141 Lung function and pulmonary exacerbations in individuals who discontinue chronic daily respiratory therapies: results of the Home Reported Outcomes Study-2 (HERO-2)
Brown, C., Psoter, K., Sabadosa, K., Rosen, B., Hergenroeder, G., Bendy, L., Zhang, C., Luo, N., Ren, C.
Published in Journal of cystic fibrosis (01.09.2024)
Published in Journal of cystic fibrosis (01.09.2024)
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Journal Article
P105 Patient reported outcomes in people with CF taking elexacaftor/tezacaftor/ivacaftor (ETI) in the Home-Reported Outcomes (HERO-2) study
Ren, C., Psoter, K., Zhang, C., Hergenroeder, G., Sabadosa, K., Rosen, B., Bendy, L., Meosky Luo, N., Brown, C.
Published in Journal of cystic fibrosis (01.06.2024)
Published in Journal of cystic fibrosis (01.06.2024)
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Journal Article
304 Using network learning models to facilitate best practices for successful conversations prompted from the daily care check-in
Siracusa, C., Saulitis, A., Collins, L., Mirus, K., Patel, N., George, C., Sabadosa, K., Riekert, K.
Published in Journal of cystic fibrosis (01.10.2022)
Published in Journal of cystic fibrosis (01.10.2022)
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Journal Article
72 The daily care check-in challenge: Using a network learning model to test implementation of the daily care check-in
Saulitis, A., Collins, L., Riekert, K., Mirus, K., George, C., Sabadosa, K., Patel, N., Siracusa, C.
Published in Journal of cystic fibrosis (01.10.2022)
Published in Journal of cystic fibrosis (01.10.2022)
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356 The battle over state lines: Leveraging an interstate compact to ensure continuity of care
Rosenthal, S., Stocks, A., Brown, W., Sabadosa, K., Webster-Mellon, S.
Published in Journal of cystic fibrosis (01.10.2022)
Published in Journal of cystic fibrosis (01.10.2022)
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Journal Article
115 Baseline symptom tracking in the Home Reported Outcome Study (HERO-2) in people with cystic fibrosis taking elexacaftor-tezacaftorivacaftor
Rosen, B., Psoter, K., Sabadosa, K., Hergenroeder, G., Bendy, L., Luo, N., Zhang, C., Ren, C., Brown, C.
Published in Journal of cystic fibrosis (01.10.2023)
Published in Journal of cystic fibrosis (01.10.2023)
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Journal Article