Public Opinion about the Importance of Privacy in Biobank Research
Kaufman, David J., Murphy-Bollinger, Juli, Scott, Joan, Hudson, Kathy L.
Published in American journal of human genetics (13.11.2009)
Published in American journal of human genetics (13.11.2009)
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Journal Article
Progress, Persistence, and Hope: Building a System of Services for CYSHCN and Their Families
Warren, Michael D, McLellan, Sarah E, Mann, Marie Y, Scott, Joan A, Brown, Treeby W
Published in Pediatrics (Evanston) (01.06.2022)
Published in Pediatrics (Evanston) (01.06.2022)
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Journal Article
Public Perspectives on Informed Consent for Biobanking
Murphy, Juli, Scott, Joan, Kaufman, David, Geller, Gail, LeRoy, Lisa, Hudson, Kathy
Published in American journal of public health (1971) (01.12.2009)
Published in American journal of public health (1971) (01.12.2009)
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Journal Article
Subjects matter: a survey of public opinions about a large genetic cohort study
Kaufman, David, Murphy, Juli, Scott, Joan, Hudson, Kathy
Published in Genetics in medicine (01.11.2008)
Published in Genetics in medicine (01.11.2008)
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Journal Article
Newborn screening timeliness quality improvement initiative: Impact of national recommendations and data repository
Sontag, Marci K, Miller, Joshua I, McKasson, Sarah, Sheller, Ruthanne, Edelman, Sari, Yusuf, Careema, Singh, Sikha, Sarkar, Deboshree, Bocchini, Joseph, Scott, Joan, Ojodu, Jelili, Kellar-Guenther, Yvonne
Published in PloS one (02.04.2020)
Published in PloS one (02.04.2020)
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Journal Article