National randomized controlled trial of virtual house calls for Parkinson disease
Beck, Christopher A, Beran, Denise B, Biglan, Kevin M, Boyd, Cynthia M, Dorsey, E Ray, Schmidt, Peter N, Simone, Richard, Willis, Allison W, Galifianakis, Nicholas B, Katz, Maya, Tanner, Caroline M, Dodenhoff, Kristen, Aldred, Jason, Carter, Julie, Fraser, Andrew, Jimenez-Shahed, Joohi, Hunter, Christine, Spindler, Meredith, Reichwein, Suzanne, Mari, Zoltan, Dunlop, Becky, Morgan, John C, McLane, Dedi, Hickey, Patrick, Gauger, Lisa, Richard, Irene Hegeman, Mejia, Nicte I, Bwala, Grace, Nance, Martha, Shih, Ludy C, Singer, Carlos, Vargas-Parra, Silvia, Zadikoff, Cindy, Okon, Natalia, Feigin, Andrew, Ayan, Jean, Vaughan, Christina, Pahwa, Rajesh, Dhall, Rohit, Hassan, Anhar, DeMello, Steven, Riggare, Sara S, Wicks, Paul, Achey, Meredith A, Elson, Molly J, Goldenthal, Steven, Keenan, H Tait, Korn, Ryan, Schwarz, Heidi, Sharma, Saloni, Stevenson, E Anna, Zhu, William
Published in Neurology (12.09.2017)
Published in Neurology (12.09.2017)
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Balancing feeling ‘prepared’ without feeling ‘devoured’: A qualitative study of self‐care from the perspective of self‐empowered persons living with Parkinson's disease in Sweden
Luckhaus, Jamie L., Clareborn, Anna, Hägglund, Maria, Riggare, Sara
Published in Health expectations : an international journal of public participation in health care and health policy (01.04.2024)
Published in Health expectations : an international journal of public participation in health care and health policy (01.04.2024)
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"You have to know why you're doing this": a mixed methods study of the benefits and burdens of self-tracking in Parkinson's disease
Riggare, Sara, Scott Duncan, Therese, Hvitfeldt, Helena, Hägglund, Maria
Published in BMC medical informatics and decision making (30.08.2019)
Published in BMC medical informatics and decision making (30.08.2019)
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Empowered patients and informal care-givers as partners?-a survey study of healthcare professionals' perceptions
Scott Duncan, Therese, Riggare, Sara, Bylund, Ami, Hägglund, Maria, Stenfors, Terese, Sharp, Lena, Koch, Sabine
Published in BMC health services research (26.04.2023)
Published in BMC health services research (26.04.2023)
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The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
Hägglund, Maria, Kharko, Anna, Hagström, Josefin, Bärkås, Annika, Blease, Charlotte, Cajander, Åsa, DesRoches, Catherine, Fagerlund, Asbjørn Johansen, Haage, Barbara, Huvila, Isto, Hörhammer, Iiris, Kane, Bridget, Klein, Gunnar O, Kristiansen, Eli, Luks, Kerli, Moll, Jonas, Muli, Irene, Raphaug, Eline Hovstad, Rexhepi, Hanife, Riggare, Sara, Ross, Peeter, Scandurra, Isabella, Simola, Saija, Soone, Hedvig, Wang, Bo, Ghorbanian Zolbin, Maedeh, Åhlfeldt, Rose-Mharie, Kujala, Sari, Johansen, Monika Alise
Published in Journal of medical Internet research (13.11.2023)
Published in Journal of medical Internet research (13.11.2023)
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A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research
Wannheden, Carolina, Riggare, Sara, Luckhaus, Jamie L., Jansson, Hanna, Sjunnestrand, My, Stenfors, Terese, Savage, Carl, Reinius, Maria, Hasson, Henna
Published in Health expectations : an international journal of public participation in health care and health policy (01.08.2023)
Published in Health expectations : an international journal of public participation in health care and health policy (01.08.2023)
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Patient lead users experience of the COVID-19 pandemic: a qualitative interview study
Jansson, Hanna, Stenfors, Terese, Riggare, Sara, Hasson, Henna, Reinius, Maria
Published in BMJ open (17.08.2022)
Published in BMJ open (17.08.2022)
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A Nordic Perspective on Patient Online Record Access and the European Health Data Space
Hägglund, Maria, Kharko, Anna, Bärkås, Annika, Blease, Charlotte, Cajander, Åsa, DesRoches, Catherine, Fagerlund, Asbjørn Johansen, Hagström, Josefin, Huvila, Isto, Hörhammer, Iiris, Kane, Bridget, Klein, Gunnar O, Kristiansen, Eli, Moll, Jonas, Muli, Irene, Rexhepi, Hanife, Riggare, Sara, Ross, Peeter, Scandurra, Isabella, Simola, Saija, Soone, Hedvig, Wang, Bo, Ghorbanian Zolbin, Maedeh, Åhlfeldt, Rose-Mharie, Kujala, Sari, Johansen, Monika Alise
Published in Journal of medical Internet research (27.06.2024)
Published in Journal of medical Internet research (27.06.2024)
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Patient-driven innovations reported in peer-reviewed journals: a scoping review
Reinius, Maria, Mazzocato, Pamela, Riggare, Sara, Bylund, Ami, Jansson, Hanna, Øvretveit, John, Savage, Carl, Wannheden, Carolina, Hasson, Henna
Published in BMJ open (01.01.2022)
Published in BMJ open (01.01.2022)
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Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA
Salmi, Liz, Brudnicki, Selina, Isono, Maho, Riggare, Sara, Rodriquez, Cecilia, Schaper, Louise K, Walker, Jan, Delbanco, Tom
Published in BMJ open (15.09.2020)
Published in BMJ open (15.09.2020)
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Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners
Richards, Dawn P, Mulhall, Hetty, Belton, Joletta, de Souza, Savia, Flynn, Trudy, Haagaard, Alex, Hunter, Linda, Price, Amy, Riggare, Sara, Tufte, Janice, Twomey, Rosie, Khan, Karim M
Published in Research involvement and engagement (29.07.2024)
Published in Research involvement and engagement (29.07.2024)
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Why publish? An interview study exploring patient innovators' reasons for and experiences of scientific publishing
Dahlberg, Marie, Luckhaus, Jamie Linnea, Hasson, Henna, Jansson, Hanna, Lek, Madelen, Savage, Carl, Riggare, Sara, Wannheden, Carolina
Published in Research involvement and engagement (06.06.2024)
Published in Research involvement and engagement (06.06.2024)
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Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson’s disease in Sweden
Riggare, Sara, Höglund, Pär J, Hvitfeldt Forsberg, Helena, Eftimovska, Elena, Svenningsson, Per, Hägglund, Maria
Published in Health informatics journal (01.03.2019)
Published in Health informatics journal (01.03.2019)
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PARKIN is not required to sustain OXPHOS function in adult mammalian tissues
Filograna, Roberta, Gerlach, Jule, Choi, Hae-Na, Rigoni, Giovanni, Barbaro, Michela, Oscarson, Mikael, Lee, Seungmin, Tiklova, Katarina, Ringnér, Markus, Koolmeister, Camilla, Wibom, Rolf, Riggare, Sara, Nennesmo, Inger, Perlmann, Thomas, Wredenberg, Anna, Wedell, Anna, Motori, Elisa, Svenningsson, Per, Larsson, Nils-Göran
Published in NPJ Parkinson's Disease (29.04.2024)
Published in NPJ Parkinson's Disease (29.04.2024)
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National Randomized Controlled Trial of Virtual House Calls for People with Parkinson's Disease: Interest and Barriers
Dorsey, E Ray, Achey, Meredith A, Beck, Christopher A, Beran, Denise B, Biglan, Kevin M, Boyd, Cynthia M, Schmidt, Peter N, Simone, Richard, Willis, Allison W, Galifianakis, Nicholas B, Katz, Maya, Tanner, Caroline M, Dodenhoff, Kristen, Ziman, Nathan, Aldred, Jason, Carter, Julie, Jimenez-Shahed, Joohi, Hunter, Christine, Spindler, Meredith, Mari, Zoltan, Morgan, John C, McLane, Dedi, Hickey, Patrick, Gauger, Lisa, Richard, Irene Hegeman, Bull, Michael T, Mejia, Nicte I, Bwala, Grace, Nance, Martha, Shih, Ludy, Anderson, Lauren, Singer, Carlos, Zadikoff, Cindy, Okon, Natalia, Feigin, Andrew, Ayan, Jean, Vaughan, Christina, Pahwa, Rajesh, Cooper, Jessica, Webb, Sydney, Dhall, Rohit, Hassan, Anhar, Weis, Delana, DeMello, Steven, Riggare, Sara S, Wicks, Paul, Smith, Joseph, Keenan, H Tait, Korn, Ryan, Schwarz, Heidi, Sharma, Saloni, Stevenson, E Anna, Zhu, William
Published in Telemedicine journal and e-health (01.07.2016)
Published in Telemedicine journal and e-health (01.07.2016)
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Virtual house calls for Parkinson disease (Connect.Parkinson): study protocol for a randomized, controlled trial
Achey, Meredith A, Beck, Christopher A, Beran, Denise B, Boyd, Cynthia M, Schmidt, Peter N, Willis, Allison W, Riggare, Sara S, Simone, Richard B, Biglan, Kevin M, Dorsey, E Ray
Published in Trials (27.11.2014)
Published in Trials (27.11.2014)
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