Treatments Administered to the First 9152 Reported Cases of COVID-19: A Systematic Review
Fajgenbaum, David C., Khor, Johnson S., Gorzewski, Alexander, Tamakloe, Mark-Avery, Powers, Victoria, Kakkis, Joseph J., Repasky, Mileva, Taylor, Anne, Beschloss, Alexander, Hernandez-Miyares, Laura, Go, Beatrice, Nimgaonkar, Vivek, McCarthy, Madison S., Kim, Casey J., Pai, Ruth-Anne Langan, Frankl, Sarah, Angelides, Philip, Jiang, Joanna, Rasheed, Rozena, Napier, Erin, Mackay, Duncan, Pierson, Sheila K.
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Published in Infectious diseases and therapy (01.09.2020)
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PB2708: SYMPTOM BURDEN AND ITS IMPACT ON DAILY LIFE IN PATIENTS WITH IDIOPATHIC MULTICENTRIC CASTLEMAN’S DISEASE (IMCD): AN EXPLORATORY ANALYSIS OF THE SURVEY’S INTERNAL CONSTRUCT VALIDITY
Franklin, Matt, Shupo, Francis, Jones, Emily, Mason, Nicola, Wayi‐Wayi, Grace, Kanhai, Karan, Zibelnick, Natasa, Repasky, Mileva, Makarounas‐Kirchmann, Kelly, Mukherjee, Sudipto, Brazier, John
Published in HemaSphere (08.08.2023)
Published in HemaSphere (08.08.2023)
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ACCELERATE: A Patient-Powered Natural History Study Design Enabling Clinical and Therapeutic Discoveries in a Rare Disorder
Pierson, Sheila K., Khor, Johnson S., Ziglar, Jasira, Liu, Amy, Floess, Katherine, NaPier, Erin, Gorzewski, Alexander M., Tamakloe, Mark-Avery, Powers, Victoria, Akhter, Faizaan, Haljasmaa, Eric, Jayanthan, Raj, Rubenstein, Arthur, Repasky, Mileva, Elenitoba-Johnson, Kojo, Ruth, Jason, Jacobs, Bette, Streetly, Matthew, Angenendt, Linus, Patier, Jose Luis, Ferrero, Simone, Zinzani, Pier Luigi, Terriou, Louis, Casper, Corey, Jaffe, Elaine, Hoffmann, Christian, Oksenhendler, Eric, Fosså, Alexander, Srkalovic, Gordan, Chadburn, Amy, Uldrick, Thomas S., Lim, Megan, van Rhee, Frits, Fajgenbaum, David C.
Published in Cell reports. Medicine (22.12.2020)
Published in Cell reports. Medicine (22.12.2020)
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Exploratory Validation of a Bespoke International Patient Symptom Survey in Idiopathic Multicentric Castleman's Disease Using Psychometric Testing: Implications for Clinical Practice and Routine Data Collection
Mukherjee, Sudipto, Franklin, Matthew, Shupo, Francis, Mason, Nicola, Wayi-Wayi, Grace, Zibelnik, Natasa, Repasky, Mileva, Brazier, John
Published in Blood (15.11.2022)
Published in Blood (15.11.2022)
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