F64 Suicidal ideation and sleep disturbances by disease stage: evidence from the Huntington’s disease burden of illness (HDBOI) study for europe (EU5)
Rodriguez-Santana, Idaira, Willock, Rosa, Frank, Samuel, Mestre, Tiago, Arnesen, Astri, Hamilton, Jamie L, Hubberstey, Hayley, Winkelmann, Michaela, Hernandez-Jimenez, Elena, Dolmetsch, Ricardo, Ratsch, Sarah, Ali, Talaha M
Published in Journal of neurology, neurosurgery and psychiatry (12.09.2022)
Published in Journal of neurology, neurosurgery and psychiatry (12.09.2022)
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Journal Article
H48 Caregiver burden: evidence from the Huntington’s disease burden of illness (HDBOI) study for Europe
Rodriguez-Santana, Idaira, Willock, Rosa, Frank, Samuel, D’Alessio, Barbara, Fuller, Rebecca, Hubberstey, Hayley, Stanley, Cath, Hernandez-Jimenez, Elena, Dolmetsch, Ricardo, Ratsch, Sarah, Ali, Talaha M
Published in Journal of neurology, neurosurgery and psychiatry (12.09.2022)
Published in Journal of neurology, neurosurgery and psychiatry (12.09.2022)
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Journal Article
H49 The Huntington’s disease quality of life battery for carers (HDQOL-CS): evidence from the Huntington’s disease burden of illness (HDBOI) study for Europe
Rodriguez-Santana, Idaira, Willock, Rosa, Frank, Samuel, Mestre, Tiago, Hamilton, Jamie L, Stanley, Cath, Vetter, Louise, Hernandez-Jimenez, Elena, Dolmetsch, Ricardo, Ratsch, Sarah, Ali, Talaha M
Published in Journal of neurology, neurosurgery and psychiatry (12.09.2022)
Published in Journal of neurology, neurosurgery and psychiatry (12.09.2022)
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Journal Article
F08 Huntington’s disease burden of illness (HDBOI): study methodology, sample representativeness and fieldwork risk mitigation strategy during the COVID-19 pandemic
Rodríguez, Idaira, Frank, Samuel, Fisher, Alex, Fuller, Rebecca, Hamilton, Jamie L, Hubberstey, Hayley, Stanley, Cath, Winkelmann, Michaela, Ruiz, Leonardo, Willock, Rosa, Finnegan, Alan, Dolmetsch, Ricardo E, Li, Nanxin, Ratsch, Sarah, Ali, Talaha M
Published in Journal of neurology, neurosurgery and psychiatry (01.09.2021)
Published in Journal of neurology, neurosurgery and psychiatry (01.09.2021)
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Journal Article
Humanistic Burden of Huntington Disease: Evidence From the Huntington Disease Burden of Illness Study
Rodriguez Santana, Idaira, Frank, Samuel, Doherty, Maria, Willock, Rosa, Hamilton, Jamie, Hubberstey, Hayley, Stanley, Cath, Vetter, Louise, Winkelmann, Michaela, Dolmetsch, Ricardo E, Li, Nanxin, Ratsch, Sarah, Ali, Talaha M
Published in Neurology. Clinical practice (01.12.2022)
Published in Neurology. Clinical practice (01.12.2022)
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Journal Article