OMERACT 2018 Modified Patient-reported Outcome Domain Core Set in the Life Impact Area for Adult Idiopathic Inflammatory Myopathies
Regardt, Malin, Mecoli, Christopher A, Park, Jin Kyun, de Groot, Ingrid, Sarver, Catherine, Needham, Merrilee, de Visser, Marianne, Shea, Beverly, Bingham, 3rd, Clifton O, Lundberg, Ingrid E, Song, Yeong W, Christopher-Stine, Lisa, Alexanderson, Helene
Published in Journal of rheumatology (01.10.2019)
Published in Journal of rheumatology (01.10.2019)
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Journal Article
Muscle Strength and Muscle Endurance During the First Year of Treatment of Polymyositis and Dermatomyositis: A Prospective Study
Alexanderson, Helene, Regardt, Malin, Ottosson, Christina, Alemo Munters, Li, Dastmalchi, Maryam, Dani, Lara, Lundberg, Ingrid E
Published in Journal of rheumatology (01.04.2018)
Published in Journal of rheumatology (01.04.2018)
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Longitudinal study of patients’ health-related quality of life using EQ-5D-3L in 11 Swedish National Quality Registers
Teni, Fitsum Sebsibe, Rolfson, Ola, Devlin, Nancy, Parkin, David, Nauclér, Emma, Burström, Kristina, Abbott, Allan, Ekström, Magnus, Forssblad, Magnus, Fritzell, Peter, Jonsson, Åsa, Landén, Mikael, Möller, Michael, Regardt, Malin, Rosengren, Björn, Schmitt-Egenolf, Marcus, Vinblad, Johanna, W-Dahl, Annette
Published in BMJ open (01.01.2022)
Published in BMJ open (01.01.2022)
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Journal Article
Patients' Experience of Myositis and Further Validation of a Myositis-specific Patient Reported Outcome Measure - Establishing Core Domains and Expanding Patient Input on Clinical Assessment in Myositis. Report from OMERACT 12
Regardt, Malin, Basharat, Pari, Christopher-Stine, Lisa, Sarver, Catherine, Björn, Anita, Lundberg, Ingrid E, Wook Song, Yeong, Bingham, 3rd, Clifton O, Alexanderson, Helene
Published in Journal of rheumatology (01.12.2015)
Published in Journal of rheumatology (01.12.2015)
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Journal Article
Obesity is associated with pain and impaired mobility despite therapy in systemic lupus erythematosus
Borg, Alexander, Lindblom, Julius, Gomez, Alvaro, Soltani, Ameneh, Enman, Yvonne, Heintz, Emelie, Regardt, Malin, Grannas, David, Emamikia, Sharzad, Parodis, Ioannis
Published in Frontiers in medicine (2023)
Published in Frontiers in medicine (2023)
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EQ-5D full health state after therapy heralds reduced hazard to accrue subsequent organ damage in systemic lupus erythematosus
Lindblom, Julius, Zetterberg, Sture, Emamikia, Sharzad, Borg, Alexander, von Perner, Gunilla, Enman, Yvonne, Heintz, Emelie, Regardt, Malin, Grannas, David, Gomez, Alvaro, Parodis, Ioannis
Published in Frontiers in medicine (2022)
Published in Frontiers in medicine (2022)
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Sensitivity analysis of EQ-5D-3L index scores in terms of discriminative and known-groups validity in SLE: introducing Adequate Health State
Hua, Nicole, Gomez, Alvaro, Lindblom, Julius, Emamikia, Sharzad, Enman, Yvonne, Grannas, David, Heintz, Emelie, Regardt, Malin, Parodis, Ioannis
Published in Rheumatology (Oxford, England) (01.12.2023)
Published in Rheumatology (Oxford, England) (01.12.2023)
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Journal Article
Distribution and trajectory of direct and indirect costs of idiopathic inflammatory myopathies
Leclair, Valérie, Moshtaghi-Svensson, John, Regardt, Malin, Hudson, Marie, Lundberg, Ingrid E., Holmqvist, Marie
Published in Seminars in arthritis and rheumatism (01.10.2021)
Published in Seminars in arthritis and rheumatism (01.10.2021)
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EQ-5D-3L full health state discriminates between drug and placebo in clinical trials of systemic lupus erythematosus
Lindblom, Julius, Gomez, Alvaro, Borg, Alexander, Emamikia, Sharzad, Ladakis, Dimitris , Matilla, Joaquin, Pehr, Martin, Cobar, Flordelyn, Enman, Yvonne, Heintz, Emelie , Regardt, Malin, Parodis, Ioannis
Published in Rheumatology (Oxford, England) (02.10.2021)
Published in Rheumatology (Oxford, England) (02.10.2021)
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Experience-based health state valuation using the EQ VAS: a register-based study of the EQ-5D-3L among nine patient groups in Sweden
Teni, Fitsum Sebsibe, Burström, Kristina, Devlin, Nancy, Parkin, David, Rolfson, Ola
Published in Health and quality of life outcomes (10.04.2023)
Published in Health and quality of life outcomes (10.04.2023)
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Inflammatory Arthritis and the Effect of Physical Activity on Quality of Life and Self‐Reported Function: A Systematic Review and Meta‐Analysis
Björk, Mathilda, Dragioti, Elena, Alexandersson, Helene, Esbensen, Bente Appel, Boström, Carina, Friden, Cecilia, Hjalmarsson, Sara, Hörnberg, Kristina, Kjeken, Ingvild, Regardt, Malin, Sundelin, Gunnevi, Sverker, Annette, Welin, Elisabet, Brodin, Nina
Published in Arthritis care & research (2010) (01.01.2022)
Published in Arthritis care & research (2010) (01.01.2022)
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Reliability and validity of PROMIS physical function, pain interference, and fatigue as patient reported outcome measures in adult idiopathic inflammatory myopathies: International study from the OMERACT myositis working group
DiRenzo, Dana, Saygin, Didem, de Groot, Ingrid, Bingham III, Clifton O., Lundberg, Ingrid E., Needham, Merrilee, Park, Jin Kyun, Regardt, Malin, Sarver, Catherine, Song, Yeong Wook, Maxwell, Lara, Beaton, Dorcas, de Visser, Marianne, Christopher-Stine, Lisa, Mecoli, Christopher A., Alexanderson, Helene
Published in Seminars in arthritis and rheumatism (01.02.2023)
Published in Seminars in arthritis and rheumatism (01.02.2023)
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Journal Article
Construct validity of PROMIS pain interference, fatigue, and physical function as patient-reported outcomes in adults with idiopathic inflammatory myopathies: An international study from the OMERACT myositis working group
Romich, Ellen, Saygin, Didem, DiRenzo, Dana, Mecoli, Christopher A., de Groot, Ingrid, Lodin, Karin, Regardt, Malin, Sarver, Catherine, Kim, Ju Yeon, Park, Jin Kyun, Beer, Kelly, Needham, Merrilee, Alexanderson, Helene, Christopher-Stine, Lisa, de Visser, Marianne, Raaphorst, Joost
Published in Seminars in arthritis and rheumatism (01.10.2024)
Published in Seminars in arthritis and rheumatism (01.10.2024)
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Journal Article
The impact of pain on daily activities in patients with idiopathic inflammatory myopathies: Report from the OMERACT myositis working group
Saygin, Didem, Alexanderson, Helene, DiRenzo, Dana, Raaphorst, Joost, de Visser, Marianne, Ren, Dianxu, Regardt, Malin, de Groot, Ingrid, Sarver, Catherine, Kim, Ju Yeon, Lodin, Karin, Beer, Kelly, Needham, Merrilee, Park, Jin Kyun, Christopher-Stine, Lisa, Mecoli, Christopher A
Published in Seminars in arthritis and rheumatism (01.08.2024)
Published in Seminars in arthritis and rheumatism (01.08.2024)
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Journal Article
Perceptions of Patients, Caregivers, and Healthcare Providers of Idiopathic Inflammatory Myopathies: An International OMERACT Study
Mecoli, Christopher A, Park, Jin Kyun, Alexanderson, Helene, Regardt, Malin, Needham, Merrilee, de Groot, Ingrid, Sarver, Catherine, Lundberg, Ingrid E, Shea, Beverley, de Visser, Marianne, Song, Yeong Wook, Bingham, 3rd, Clifton O, Christopher-Stine, Lisa
Published in Journal of rheumatology (01.01.2019)
Published in Journal of rheumatology (01.01.2019)
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Mental health in paediatric and adult myositis-related diseases: current state of research, interventions, and future steps from the MIHRA Psychological Impact Scientific Working Group
Lanis, Aviya, Alexanderson, Helene, Ardalan, Kaveh, Edison, Suzanne, Graham, Christopher D, de Groot, Ingrid, Gupta, Latika, Kim, Susan, Knight, Andrea M, Kobert, Linda, Livermore, Polly, Lood, Christian, Pilkington, Clarissa, Regardt, Malin, Rubinstein, Tamar B, Shenoi, Susan, Turnier, Luke, Voet, Nicole B M, Wahezi, Dawn M, Saketkoo, Lesley Ann
Published in Clinical and experimental rheumatology (01.02.2024)
Published in Clinical and experimental rheumatology (01.02.2024)
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Moving forward together: collaborative landscapes of research in idiopathic inflammatory myopathies and calcinosis
Saketkoo, Lesley Ann, Valenzuela, Antonia, Kim, Susan, McCann, Liza J, Lood, Christian, Wahezi, Dawn M, Werth, Victoria P, Yi, Belina, Alexanderson, Helene, Maillard, Susan, Pilkington, Clarissa, Fligelstone, Kim, Limbach, Barbara, Orandi, Amir B, Regardt, Malin, Russell, Anne-Marie, Davuluri, Srijana, deGroot, Ingrid, Ernste, Floranne, Paik, Julie J, von Muhlen, Carlos A, Dimachkie, Mazen M, Machado, Pedro M, Naddaf, Elie, Shafranski, Barbara M, Gupta, Latika, Zulian, Francesco, Chung, Lorinda
Published in Rheumatology (Oxford, England) (02.05.2024)
Published in Rheumatology (Oxford, England) (02.05.2024)
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