Correction to: Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis
Johansen, L, O'Hare, F, Shepard, E R, Ayton, L N, Pelentsov, L J, Kearns, L S, Galvin, K L
Published in Orphanet journal of rare diseases (18.04.2024)
Published in Orphanet journal of rare diseases (18.04.2024)
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Journal Article
Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis
Johansen, L, O'Hare, F, Shepard, E R, Ayton, L N, Pelentsov, L J, Kearns, L S, Galvin, K L
Published in Orphanet journal of rare diseases (21.03.2024)
Published in Orphanet journal of rare diseases (21.03.2024)
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Journal Article
Development of the parental needs scale for rare diseases: a tool for measuring the supportive care needs of parents caring for a child with a rare disease
Pelentsov, Lemuel J, Fielder, Andrea L, Laws, Thomas A, Esterman, Adrian J
Published in Journal of multidisciplinary healthcare (01.01.2016)
Published in Journal of multidisciplinary healthcare (01.01.2016)
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Journal Article