The national economic burden of rare disease in the United States in 2019
Yang, Grace, Cintina, Inna, Pariser, Anne, Oehrlein, Elisabeth, Sullivan, Jamie, Kennedy, Annie
Published in Orphanet journal of rare diseases (12.04.2022)
Published in Orphanet journal of rare diseases (12.04.2022)
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Journal Article
Patient-Focused Drug Development: A New Direction for Collaboration
Perfetto, Eleanor M, Burke, Laurie, Oehrlein, Elisabeth M, Epstein, Robert S
Published in Medical care (01.01.2015)
Published in Medical care (01.01.2015)
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Journal Article
Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group
Harrington, Rachel L., Hanna, Maya L., Oehrlein, Elisabeth M., Camp, Rob, Wheeler, Russell, Cooblall, Clarissa, Tesoro, Theresa, Scott, Amie M., von Gizycki, Rainald, Nguyen, Francis, Hareendran, Asha, Patrick, Donald L., Perfetto, Eleanor M.
Published in Value in health (01.06.2020)
Published in Value in health (01.06.2020)
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Journal Article
Health Preference Research in Europe: A Review of Its Use in Marketing Authorization, Reimbursement, and Pricing Decisions—Report of the ISPOR Stated Preference Research Special Interest Group
Marsh, Kevin, van Til, Janine A., Molsen-David, Elizabeth, Juhnke, Christine, Hawken, Natalia, Oehrlein, Elisabeth M., Choi, Y. Christy, Duenas, Alejandra, Greiner, Wolfgang, Haas, Kara, Hiligsmann, Mickael, Hockley, Kimberley S., Ivlev, Ilya, Liu, Frank, Ostermann, Jan, Poder, Thomas, Poon, Jiat L., Muehlbacher, Axel
Published in Value in health (01.07.2020)
Published in Value in health (01.07.2020)
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Journal Article
Value to Whom? The Patient Voice in the Value Discussion
Perfetto, Eleanor M., MS, PhD, Oehrlein, Elisabeth M., BA, Boutin, Marc, JD, Reid, Sarah, BA, Gascho, Eric, BA
Published in Value in health (01.02.2017)
Published in Value in health (01.02.2017)
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Journal Article
An Interview With the Food and Drug Administration About Draft Patient-Focused Drug Development Guidance 3: Selecting, Developing, or Modifying Fit-for-Purpose Clinical Outcome Assessments
Oehrlein, Elisabeth M., Bent, Robyn, Bocell, Fraser, Garrard, Lili, Lee Johnson, Laura, Knoble, Naomi, Reasner, David, Tarver, Michelle, Weinfurt, Kevin, Mullin, Theresa
Published in Value in health (01.06.2023)
Published in Value in health (01.06.2023)
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Journal Article
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Patient-centeredness and psychometric properties of the Defense and Veterans Pain Rating Scale 2.0 (DVPRS)
Costantino, Ryan C, Gressler, Laura E, Highland, Krista B, Oehrlein, Elisabeth M, Villalonga-Olives, Ester, Perfetto, Eleanor M
Published in Pain medicine (Malden, Mass.) (04.01.2024)
Published in Pain medicine (Malden, Mass.) (04.01.2024)
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Journal Article
Developing Patient-Centered Real-World Evidence: Emerging Methods Recommendations From a Consensus Process
Oehrlein, Elisabeth M., Schoch, Silke, Burcu, Mehmet, McBeth, Julia F., Bright, Jennifer, Pashos, Chris L., Willke, Richard, Love, T. Rosie, Mattingly, T. Joseph, Perfetto, Eleanor M.
Published in Value in health (01.01.2023)
Published in Value in health (01.01.2023)
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Journal Article
Measuring and Demonstrating the Value of Patient Engagement Across the Medicines Lifecycle: A Patient Engagement Impact Measurement Framework
Klein, Beyza, Perfetto, Eleanor M, Oehrlein, Elisabeth M, Weston, Fay, Lobban, Trudie C A, Boutin, Marc
Published in The patient : patient-centered outcomes research (16.09.2024)
Published in The patient : patient-centered outcomes research (16.09.2024)
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Journal Article
Improving Access and Quality of Health Care in the United States: Shared Goals Among Patient Advocates
Oehrlein, Elisabeth M., Harris, Jason, Balch, Alan, Furlong, Pat, Hargis, Eric, Woolley, Mary, Perfetto, Eleanor
Published in The patient : patient-centered outcomes research (01.09.2021)
Published in The patient : patient-centered outcomes research (01.09.2021)
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Journal Article
Patient-Reported Outcome Measures in the Food and Drug Administration Pilot Compendium: Meeting Today’s Standards for Patient Engagement in Development?
Oehrlein, Elisabeth M., Perfetto, Eleanor M., Love, T. Rose, Chung, Yujin, Ghafoori, Parima
Published in Value in health (01.08.2018)
Published in Value in health (01.08.2018)
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Journal Article
Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox
Oehrlein, Elisabeth M., Schoch, Silke, Majercak, Kelsie, Gressler, Laura Elisabeth, Costantino, Ryan C., Love, T. Rosie, Perfetto, Eleanor M.
Published in The patient : patient-centered outcomes research (01.05.2024)
Published in The patient : patient-centered outcomes research (01.05.2024)
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Journal Article
Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example
Oehrlein, Elisabeth M., Luo, Xuemei, Savone, Mirko, Lobban, Trudie, Kang, Amiee, Lee, Brian, Gale, Rex, Schoch, Silke, Perfetto, Eleanor
Published in The patient : patient-centered outcomes research (01.03.2021)
Published in The patient : patient-centered outcomes research (01.03.2021)
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Journal Article
FDAMA Section 114: Why the Renewed Interest?
Perfetto, Eleanor M, Burke, Laurie, Oehrlein, Elisabeth M, Gaballah, Mena
Published in Journal of managed care & specialty pharmacy (01.05.2015)
Published in Journal of managed care & specialty pharmacy (01.05.2015)
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Journal Article
PEER-REVIEWED JOURNAL EDITORS’ VIEWS ON REAL-WORLD EVIDENCE
Oehrlein, Elisabeth M., Graff, Jennifer S., Perfetto, Eleanor M., Mullins, C. Daniel, Dubois, Robert W., Anyanwu, Chinenye, Onukwugha, Eberechukwu
Published in International journal of technology assessment in health care (2018)
Published in International journal of technology assessment in health care (2018)
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Journal Article