The psychosocial impact of childhood dementia on children and their parents: a systematic review
Nevin, Suzanne M, McGill, Brittany C, Kelada, Lauren, Hilton, Gail, Maack, Megan, Elvidge, Kristina L, Farrar, Michelle A, Baynam, Gareth, Katz, Naomi T, Donovan, Leigh, Grattan, Sarah, Signorelli, Christina, Bhattacharya, Kaustuv, Nunn, Kenneth, Wakefield, Claire E
Published in Orphanet journal of rare diseases (07.09.2023)
Published in Orphanet journal of rare diseases (07.09.2023)
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Journal Article
Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol
Robertson, Eden G, Kelada, Lauren, Best, Stephanie, Goranitis, I, Grainger, Natalie, Le Marne, Fleur, Pierce, Kristine, Nevin, Suzanne M, Macintosh, Rebecca, Beavis, Erin, Sachdev, Rani, Bye, Annie, Palmer, Elizabeth E
Published in BMJ open (26.10.2022)
Published in BMJ open (26.10.2022)
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Journal Article
Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies
Nevin, Suzanne M., Wakefield, Claire E., Dadich, Ann, LeMarne, Fleur, Macintosh, Rebecca, Beavis, Erin, Sachdev, Rani, Bye, Ann, Nunn, Kenneth, Palmer, Elizabeth E.
Published in PEC innovation (01.12.2022)
Published in PEC innovation (01.12.2022)
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Journal Article
Exploring childhood cancer survivor, parent, healthcare and community professionals' experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study
Ha, Lauren, Nevin, Suzanne M, Wakefield, Claire E, Jacovou, Jacqueline, Mizrahi, David, Signorelli, Christina
Published in Journal of cancer survivorship (13.03.2024)
Published in Journal of cancer survivorship (13.03.2024)
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Journal Article
Psychosocial experiences of clinicians providing care for children with severe neurological impairment
Nevin, Suzanne M, Le Marne, Fleur A, Beavis, Erin, Macintosh, Rebecca, Palmer, Elizabeth E, Sachdev, Rani, Nunn, Kenneth, Bye, Ann
Published in Developmental medicine and child neurology (05.06.2024)
Published in Developmental medicine and child neurology (05.06.2024)
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Journal Article
Feasibility of a mental health informed physical activity intervention for the carers of children with developmental and epileptic encephalopathy
McKeon, Grace, Palmer, Elizabeth E., Macintosh, Rebecca, Nevin, Suzanne M., Wheatley, Lauren, Rosenbaum, Simon
Published in Epilepsy & behavior (01.08.2021)
Published in Epilepsy & behavior (01.08.2021)
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Journal Article
Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy
Nevin, Suzanne M, Wakefield, Claire E, Barlow‐Stewart, Kristine, McGill, Brittany C, Bye, Ann, Palmer, Elizabeth E, Dale, Russell C, Gill, Deepak, Kothur, Kavitha, Boggs, Kirsten, Le Marne, Fleur, Beavis, Erin, Macintosh, Rebecca, Sachdev, Rani
Published in Developmental medicine and child neurology (01.01.2022)
Published in Developmental medicine and child neurology (01.01.2022)
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Journal Article
Hope in the uncertainties and certainty for parents of children with rare neurological disorders. Part I (of 3): Uncertainty
Palmer, Elizabeth E, Sachdev, Rani, Beavis, Erin, Macintosh, Rebecca, Le Marne, Fleur A, Nevin, Suzanne M, Bye, Ann ME, Nunn, Kenneth
Published in Journal of paediatrics and child health (01.10.2022)
Published in Journal of paediatrics and child health (01.10.2022)
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Journal Article
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty
Nevin, Suzanne M, Beavis, Erin, Macintosh, Rebecca, Palmer, Elizabeth E, Sachdev, Rani, Le Marne, Fleur A, Bye, Ann ME, Nunn, Kenneth
Published in Journal of paediatrics and child health (01.10.2022)
Published in Journal of paediatrics and child health (01.10.2022)
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Journal Article
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 3 (of 3): Hope
Bye, Ann ME, Le Marne, Fleur A, Beavis, Erin, Macintosh, Rebecca, Nevin, Suzanne M, Palmer, Elizabeth E, Sachdev, Rani, Nunn, Kenneth
Published in Journal of paediatrics and child health (01.10.2022)
Published in Journal of paediatrics and child health (01.10.2022)
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Journal Article
Neurodevelopmental outcomes in a cohort of Australian families with self-limited familial epilepsy of neonatal/infantile onset
Innes, Emily A, Marne, Fleur Annette Le, Macintosh, Rebecca, Nevin, Suzanne M., Briggs, Nancy E, Vivekanandarajah, Sinthu, Webster, Richard I, Sachdev, Rani K, Bye, Ann M E
Published in Seizure (London, England) (01.02.2024)
Published in Seizure (London, England) (01.02.2024)
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Journal Article
Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy
Nevin, Suzanne M., Wakefield, Claire E., Le Marne, Fleur, Beavis, Erin, Macintosh, Rebecca, Sachdev, Rani, Bye, Ann, Palmer, Elizabeth E., Nunn, Kenneth
Published in European journal of paediatric neurology (01.03.2022)
Published in European journal of paediatric neurology (01.03.2022)
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