The role of community engagement in promoting research participants' understanding of pharmacogenomic research results: Perspectives of stakeholders involved in HIV/AIDS research and treatment
Nabukenya, Sylvia, Kyaddondo, David, Munabi, Ian Guyton, Waitt, Catriona, Twimukye, Adelline, Mwaka, Erisa S
Published in PloS one (02.04.2024)
Published in PloS one (02.04.2024)
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Journal Article
COVID-19 may exacerbate the clinical, structural and psychological barriers to retention in care among women living with HIV in rural and peri-urban settings in Uganda
Nalubega, Sylivia, Kyenkya, Joshua, Bagaya, Irene, Nabukenya, Sylvia, Ssewankambo, Nelson, Nakanjako, Damalie, Kiragga, Agnes N
Published in BMC infectious diseases (20.09.2021)
Published in BMC infectious diseases (20.09.2021)
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Journal Article
Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members
Mwaka, Erisa Sabakaki, Bagenda, Godfrey, Sebatta, Deborah Ekusai, Nabukenya, Sylvia, Munabi, Ian
Published in Frontiers in genetics (17.11.2022)
Published in Frontiers in genetics (17.11.2022)
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Journal Article
Research Participants’ Preferences for Individual Results of Pharmacogenomics Research: A Case of a Ugandan HIV Research Institute
Nabukenya, Sylvia, Waitt, Catriona, Senyonga, Ronald, Castelnuovo, Barbara, Munabi, Ian Guyton, Kyaddondo, David, Mwaka, Erisa S.
Published in Journal of empirical research on human research ethics (01.10.2023)
Published in Journal of empirical research on human research ethics (01.10.2023)
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Journal Article
Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study
Sylvia, Nabukenya, Joseph, Ochieng, David, Kaawa-Mafigiri, Ian, Munabi, Janet, Nakigudde, Nelson, Nakwagala Frederick, John, Barugahare, Betty, Kwagala, Charles, Ibingira, Adelline, Twimwijukye, Nelson, Sewankambo, Erisa Sabakaki, Mwaka
Published in Research ethics review (01.07.2022)
Published in Research ethics review (01.07.2022)
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Journal Article
The role of community engagement in promoting research participants' understanding of pharmacogenomic research results: Perspectives of stakeholders involved in HIV/AIDS research and treatment
Sylvia Nabukenya, David Kyaddondo, Ian Guyton Munabi, Catriona Waitt, Adelline Twimukye, Erisa S Mwaka
Published in PloS one (01.01.2024)
Published in PloS one (01.01.2024)
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Journal Article
Researchers experience of using the regulatory affairs information system in Uganda
Nabukenya, Sylvia, Okoboi, Stephen, Nakate, Vivian, Twimukye, Adelline, Opio, Bruce, Castelnuovo, Barbara
Published in JAMIA open (01.10.2022)
Published in JAMIA open (01.10.2022)
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Journal Article
Researchers experience of using the regulatory affairs information system (RAIS) in strengthening research compliance in a large research program: A case study of the Infectious Diseases Institute (IDI) in Uganda
Nabukenya, Sylvia, Okoboi, Stephen, Nakate, Vivian, Twimukye, Adelline, Opio, Bruce, Castelnuovo, Barbara
Published in JAMIA open (01.10.2022)
Published in JAMIA open (01.10.2022)
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Journal Article
PP122 Strengthening Ethics Compliance In A Large Research Program: Uganda
Nabukenya, Sylvia, Castelnuovo, Barbara, Kambugu, Andrew, Kayaga, Maimouna, Opio, Bruce, Orama, Richard, Okoboi, Stephen
Published in International journal of technology assessment in health care (2017)
Published in International journal of technology assessment in health care (2017)
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Journal Article
Core competencies for ethics experts in health technology assessment
Refolo, Pietro, Bond, Kenneth, Bloemen, Bart, Autti-Rämö, Ilona, Hofmann, Bjørn, Mischke, Claudia, Mueller, Debjani, Nabukenya, Sylvia, Oortwijn, Wija, Sandman, Lars, Stanak, Michal, Steele, Duncan, van der Wilt, Gert Jan, Sacchini, Dario
Published in International journal of technology assessment in health care (01.12.2020)
Published in International journal of technology assessment in health care (01.12.2020)
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Journal Article
‘. Stakeholders’ perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV
Sylvia Nabukenya, David Kyaddondo, Adelline Twimukye, Ian Guyton Munabi, Catriona Waitt, Erisa S Mwaka
Published in Research ethics review (01.04.2024)
Published in Research ethics review (01.04.2024)
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Journal Article
‘It is a complex process, but it’s very important to return these results to participants’. Stakeholders’ perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV
Nabukenya, Sylvia, Kyaddondo, David, Twimukye, Adelline, Munabi, Ian Guyton, Waitt, Catriona, Mwaka, Erisa S
Published in Research ethics review (01.04.2024)
Published in Research ethics review (01.04.2024)
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Journal Article