Factors affecting overall care experience for people living with rare conditions in the UK: exploratory analysis of a quantitative patient experience survey
Jones, Jennifer, Cruddas, Marie, Simpson, Amy, Meade, Nick, Pushparajah, Daphnee, Peter, Michelle, Hunter, Amy
Published in Orphanet journal of rare diseases (19.02.2024)
Published in Orphanet journal of rare diseases (19.02.2024)
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Journal Article
Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance
Mickute, Gerda, Staley, Kristina, Delaney, Heather, Gardiner, Oliver, Hunter, Amy, Keen, Richard, Lockhart, Lorraine, Meade, Nick, Newman, Maria, Ralston, Stuart, Rush, Elaine, Upadhyaya, Sheela, Regan, Sandra, Watts, Laura, Walsh, Jennifer, White, Paul, Francis, Roger M, Javaid, M Kassim
Published in Orphanet journal of rare diseases (19.05.2020)
Published in Orphanet journal of rare diseases (19.05.2020)
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Journal Article
“in the Patients' Hands”- a Structured Survey of Patient Voices to Prioritise Research Questions in Rare Inherited Anaemias: The James Lind Alliance Priority Setting Partnership
Welch, Jenny, Meade, Nick, Messenger, Dominic, Hunter, Amy, Rao, Anupama, Chakravorty, Subarna, Wearmouth, Rachel, Chalin, Anju, Staley, Kristina, Upadhyaya, Sheela, Roberts, Irene, Roy, Noemi
Published in Blood (29.11.2018)
Published in Blood (29.11.2018)
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Challenges with advanced therapy medicinal products and how to meet them
Schneider, Christian K, Salmikangas, Paula, Jilma, Bernd, Flamion, Bruno, Todorova, Lyubina Racheva, Paphitou, Anna, Haunerova, Ivana, Maimets, Toivo, Trouvin, Jean-Hugues, Flory, Egbert, Tsiftsoglou, Asterios, Sarkadi, Balázs, Gudmundsson, Kolbeinn, O'Donovan, Maura, Migliaccio, Giovanni, Ancāns, Jānis, Maciulaitis, Romaldas, Robert, Jean-Louis, Samuel, Anthony, Ovelgönne, Johannes H, Hystad, Marit, Fal, Andrzej Mariusz, Lima, Beatriz Silva, Moraru, Anca Stela, Turcáni, Peter, Zorec, Robert, Ruiz, Sol, Akerblom, Lennart, Narayanan, Gopalan, Kent, Alastair, Bignami, Fabrizia, Dickson, J George, Niederwieser, Dietger, Figuerola-Santos, María-Angeles, Reischl, Ilona G, Beuneu, Claire, Georgiev, Rosen, Vassiliou, Maria, Pychova, Alena, Clausen, Mette, Methuen, Taina, Lucas, Sophie, Schüssler-Lenz, Martina, Kokkas, Vasilios, Buzás, Zsuzsanna, MacAleenan, Niall, Galli, Maria Cristina, Linē, Aija, Gulbinovic, Jolanta, Berchem, Guy, Fraczek, Mariusz, Menezes-Ferreira, Margarida, Vilceanu, Nela, Hrubisko, Mikulás, Marinko, Petra, Timón, Marcos, Cheng, Wing, Crosbie, George Andrew, Meade, Nick, di Paola, Michelino Lipucci, VandenDriessche, Thierry, Ljungman, Per, D'Apote, Lucia, Oliver-Diaz, Olga, Büttel, Isabel, Celis, Patrick
Published in Nature reviews. Drug discovery (01.03.2010)
Published in Nature reviews. Drug discovery (01.03.2010)
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Book Review
Strengthening international patient advocacy perspectives on patient involvement in HTA within the HTAi Patient and Citizen Involvement Interest Group - Commentary
Wale, Janet L, Scott, Anna Mae, Bertelsen, Neil, Meade, Nick
Published in Research involvement and engagement (10.01.2017)
Published in Research involvement and engagement (10.01.2017)
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