The evolving landscape of expanded carrier screening: challenges and opportunities
Kraft, Stephanie A., Duenas, Devan, Wilfond, Benjamin S., Goddard, Katrina A. B.
Published in Genetics in medicine (01.04.2019)
Published in Genetics in medicine (01.04.2019)
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Journal Article
Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations
Bridges, Celina, Duenas, Devan M, Lewis, Hannah, Anderson, Katherine, Opel, Douglas J, Wilfond, Benjamin S, Kraft, Stephanie A
Published in PloS one (29.04.2021)
Published in PloS one (29.04.2021)
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Journal Article
Development of the Better Research Interactions for Every Family (BRIEF) intervention to support recruitment for neonatal clinical trials: an intervention mapping guided approach
Weiss, Elliott Mark, Gray, Megan M, Ko, Linda K, Duenas, Devan M, Oslin, Ellie, Kraft, Stephanie A
Published in Current controlled trials in cardiovascular medicine (12.09.2024)
Published in Current controlled trials in cardiovascular medicine (12.09.2024)
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Journal Article
Informed consent: Old and new challenges in the context of the COVID-19 pandemic
Rothwell, Erin, Brassil, Donna, Barton-Baxter, Marietta, Brownley, Kimberly A, Dickert, Neal W, Ford, Daniel E, Kraft, Stephanie A, McCormick, Jennifer B, Wilfond, Benjamin S
Published in Journal of clinical and translational science (07.04.2021)
Published in Journal of clinical and translational science (07.04.2021)
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Journal Article
Relationship building in pediatric research recruitment: Insights from qualitative interviews with research staff
Kraft, Stephanie A, Porter, Kathryn M, Sullivan, Tara R, Anderson, Emily E, Garrison, Nanibaa' A, Baker, Laura, Smith, Jodi M, Weiss, Elliott M
Published in Journal of clinical and translational science (2022)
Published in Journal of clinical and translational science (2022)
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Journal Article
Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews
Mittendorf, Kathleen F, Lewis, Hannah S, Duenas, Devan M, Eubanks, Donna J, Gilmore, Marian J, Goddard, Katrina A B, Joseph, Galen, Kauffman, Tia L, Kraft, Stephanie A, Lindberg, Nangel M, Reyes, Ana A, Shuster, Elizabeth, Syngal, Sapna, Ukaegbu, Chinedu, Zepp, Jamilyn M, Wilfond, Benjamin S, Porter, Kathryn M
Published in Hereditary cancer in clinical practice (10.06.2022)
Published in Hereditary cancer in clinical practice (10.06.2022)
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Journal Article
Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium
Gutierrez, Amanda M, Robinson, Jill O, Outram, Simon M, Smith, Hadley S, Kraft, Stephanie A, Donohue, Katherine E, Biesecker, Barbara B, Brothers, Kyle B, Chen, Flavia, Hailu, Benyam, Hindorff, Lucia A, Hoban, Hannah, Hsu, Rebecca L, Knight, Sara J, Koenig, Barbara A, Lewis, Katie L, Lich, Kristen Hassmiller, O'Daniel, Julianne M, Okuyama, Sonia, Tomlinson, Gail E, Waltz, Margaret, Wilfond, Benjamin S, Ackerman, Sara L, Majumder, Mary A
Published in Journal of clinical and translational science (2021)
Published in Journal of clinical and translational science (2021)
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Journal Article
Better recognition for research participants: what society should learn from covid-19
Kraft, Stephanie A, Rohrig, Abie, Williams, Anthony, Shah, Seema K
Published in BMJ (Online) (17.01.2023)
Published in BMJ (Online) (17.01.2023)
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Journal Article
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research
Kraft, Stephanie A., Cho, Mildred K., Gillespie, Katherine, Halley, Meghan, Varsava, Nina, Ormond, Kelly E., Luft, Harold S., Wilfond, Benjamin S., Lee, Sandra Soo-Jin
Published in American journal of bioethics (03.04.2018)
Published in American journal of bioethics (03.04.2018)
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Journal Article
"Treatable not curable": trade-offs in the use of treatment-oriented language with patients who have incurable cancer
Batten, Jason N, Kennedy, Kristin M, Wong, Bonnie O, Kraft, Stephanie A, Hanks, William, Magnus, David, Schapira, Lidia
Published in The oncologist (Dayton, Ohio) (14.11.2024)
Published in The oncologist (Dayton, Ohio) (14.11.2024)
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Journal Article
“I don’t want to be Henrietta Lacks”: diverse patient perspectives on donating biospecimens for precision medicine research
Lee, Sandra S.-J., Cho, Mildred K., Kraft, Stephanie A., Varsava, Nina, Gillespie, Katie, Ormond, Kelly E., Wilfond, Benjamin S., Magnus, David
Published in Genetics in medicine (01.01.2019)
Published in Genetics in medicine (01.01.2019)
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Journal Article
Can a Parent Refuse the Brain Death Examination?
Lee, Brittany M, Trowbridge, Amy, McEvoy, Macallagh, Wightman, Aaron, Kraft, Stephanie A, Clark, Jonna D
Published in Pediatrics (Evanston) (01.04.2020)
Published in Pediatrics (Evanston) (01.04.2020)
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Journal Article
“I'm completely off base here on what this child is capable of”: A qualitative analysis of how medical ableism manifests in PICU clinicians' care of children with severe neurological impairment
Oslin, Ellie, Montenegro, Roberto E., Kraft, Stephanie A., Van Cleave, Alisa, Bogetz, Jori
Published in Disability and health journal (01.01.2025)
Published in Disability and health journal (01.01.2025)
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Journal Article