Patient‐ and caregiver‐reported impact of symptoms in Duchenne muscular dystrophy
Rosero, Spencer, Weinstein, Jennifer, Seabury, Jamison, Varma, Anika, Dilek, Nuran, Zizzi, Christine, Coffey, Madeleine, Greco, Brittany, Heatwole, John, Alexandrou, Danae, Guntrum, Debra, Ciafaloni, Emma, Heatwole, Chad
Published in Muscle & nerve (01.07.2024)
Published in Muscle & nerve (01.07.2024)
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Journal Article
Patient-Reported Impact of Symptoms in Crohn's Disease
Varma, Anika, Weinstein, Jennifer, Seabury, Jamison, Rosero, Spencer, Wagner, Ellen, Zizzi, Christine, Luebbe, Elizabeth, Dilek, Nuran, McDermott, Michael, Heatwole, John, Saubermann, Lawrence, Temple, Larissa, Rogoff, Scott, Heatwole, Chad
Published in The American journal of gastroenterology (01.12.2022)
Published in The American journal of gastroenterology (01.12.2022)
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Journal Article
The Facioscapulohumeral Muscular Dystrophy‐Health Index: Development and evaluation of a disease‐specific outcome measure
Varma, Anika, Weinstein, Jennifer, Seabury, Jamison, Rosero, Spencer, Engebrecht, Charlotte, Wagner, Ellen, Zizzi, Christine, Luebbe, Elizabeth A., Dilek, Nuran, McDermott, Michael P., Kissel, John, Sansone, Valeria, Heatwole, Chad
Published in Muscle & nerve (01.10.2023)
Published in Muscle & nerve (01.10.2023)
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Journal Article
Correction to: P047 The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient-Reported Outcome Measure for Clinical Trials
Seabury, Jamison, Weinstein, Jennifer, Rosero, Spencer, Varma, Anika, Wagner, Ellen, Zizzi, Christine, Dilek, Nuran, McDermott, Michael, Kaat, Aaron, Saubermann, Lawrence, Temple, Larissa, Rogoff, Scott, Heatwole, Chad
Published in The American journal of gastroenterology (01.05.2022)
Published in The American journal of gastroenterology (01.05.2022)
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Journal Article
Patient-reported impact of symptoms in adrenoleukodystrophy (PRISM-ALD)
Varma, Anika, Weinstein, Jennifer, Seabury, Jamison, Rosero, Spencer, Dilek, Nuran, Heatwole, John, Engebrecht, Charlotte, Khosa, Shaweta, Chung, Kaitlin, Paker, Asif, Woo, Amy, Brooks, Gregory, Beals, Chan, Gandhi, Rohan, Heatwole, Chad
Published in Orphanet journal of rare diseases (19.03.2024)
Published in Orphanet journal of rare diseases (19.03.2024)
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Journal Article
P047 The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient Reported Outcome Measure for Clinical Trials
Seabury, Jamison, Weinstein, Jennifer, Rosero, Spencer, Varma, Anika, Wagner, Ellen, Zizzi, Christine, Dilek, Nuran, McDermott, Michael, Kaat, Aaron, Saubermann, Lawrence, Temple, Larissa, Rogoff, Scott, Heatwole, Chad
Published in The American journal of gastroenterology (01.12.2021)
Published in The American journal of gastroenterology (01.12.2021)
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Journal Article
The Huntington’s Disease Health Index: Initial Evaluation of a Disease-Specific Patient Reported Outcome Measure
Brumfield, Olivia S., Zizzi, Christine E., Dilek, Nuran, Alexandrou, Danae G., Glidden, Alistair M., Rosero, Spencer, Weinstein, Jennifer, Seabury, Jamison, Kaat, Aaron, McDermott, Michael P., Dorsey, E. Ray, Heatwole, Chad R.
Published in Journal of Huntington's disease (2022)
Published in Journal of Huntington's disease (2022)
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Journal Article
The fibromyalgia-health index - (FM-HI): Development and validation of a novel, patient reported, fibromyalgia outcome measure
Khosa, Shaweta, Weinstein, Jennifer, Seabury, Jamison, Rosero, Spencer, Varma, Anika, Dilek, Nuran, Engebrecht, Charlotte, Heatwole, John, Kaat, Aaron, Heatwole, Chad
Published in Journal of the neurological sciences (01.12.2023)
Published in Journal of the neurological sciences (01.12.2023)
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Journal Article
Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM)
Weinstein, Jennifer, Rosero, Spencer, Seabury, Jamison, Varma, Anika, Engebrecht, Charlotte, Khosa, Shaweta, Heatwole, John, Dilek, Nuran, Kaat, Aaron, Matallana, Lynne Kennedy, Heatwole, Chad
Published in Journal of rheumatology (01.07.2024)
Published in Journal of rheumatology (01.07.2024)
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Journal Article
Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM)
Weinstein, Jennifer, Rosero, Spencer, Seabury, Jamison, Varma, Anika, Engebrecht, Charlotte, Khosa, Shaweta, Heatwole, John, Dilek, Nuran, Kaat, Aaron, Matallana, Lynne Kennedy, Heatwole, Chad
Published in Journal of rheumatology (01.06.2024)
Published in Journal of rheumatology (01.06.2024)
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Journal Article
Development and validation of a caregiver‐reported outcome measure for Alzheimer’s disease: the Alzheimer’s Disease Caregiver Reported‐Health Index (ADCR‐HI), a fully validated tool to bolster clinical trial and research infrastructure
Rosero, Spencer, Varma, Anika, Seabury, Jamison, Weinstein, Jennifer, Engebrecht, Charlotte, Dilek, Nuran, Arky, Abigail, Santos, Elizabeth, Heatwole, Chad
Published in Alzheimer's & dementia (01.12.2023)
Published in Alzheimer's & dementia (01.12.2023)
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Journal Article
Development of a patient‐reported outcome measure for Alzheimer’s disease: the Alzheimer’s Disease‐Health Index (AD‐HI), a fully validated tool to bolster clinical trial and research infrastructure
Rosero, Spencer, Varma, Anika, Seabury, Jamison, Weinstein, Jennifer, Engebrecht, Charlotte, Dilek, Nuran, Arky, Abigail, Santos, Elizabeth, Heatwole, Chad
Published in Alzheimer's & dementia (01.12.2023)
Published in Alzheimer's & dementia (01.12.2023)
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Journal Article
The inclusion body myositis-health index (IBM-HI): Development and validation of a novel, disease-specific, patient-reported outcome measure
Rosero, Spencer, Seabury, Jamison, Bhagchandani, Perya, Weinstein, Jennifer, Varma, Anika, Zizzi, Christine, Heatwole, John, Khosa, Shaweta, Engebrecht, Charlotte, Johnson, Nicholas, Gibson, Cynthia, Dilek, Nuran, Marten, Bill, Heatwole, Chad
Published in Journal of the neurological sciences (01.12.2023)
Published in Journal of the neurological sciences (01.12.2023)
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Journal Article
Development, validation, and translation of patient- and caregiver- reported outcome measures for Duchenne Muscular Dystrophy (DMD): DMD-HI and DMDCR-HI
Khosa, Shaweta, Varma, Anika, Weinstein, Jennifer, Rosero, Spencer, Seabury, Jamison, Dilek, Nuran, Zizzi, Christine, Engebrecht, Charlotte, Heatwole, John, Cohen, Brittany, Alexandrou, Danae, Guntrum, Debra, Ciafaloni, Emma, Heatwole, Chad
Published in Journal of the neurological sciences (01.12.2023)
Published in Journal of the neurological sciences (01.12.2023)
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Journal Article
The Crohn's Disease-Health Index: Development and Evaluation of a Novel Outcome Measure
Varma, Anika, Weinstein, Jennifer, Seabury, Jamison, Rosero, Spencer, Wagner, Ellen, Zizzi, Christine, Kaat, Aaron, Luebbe, Elizabeth, Dilek, Nuran, Heatwole, John, Saubermann, Lawrence, Temple, Larissa, Rogoff, Scott, Heatwole, Chad
Published in Journal of clinical gastroenterology (26.01.2024)
Published in Journal of clinical gastroenterology (26.01.2024)
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Journal Article
The Alzheimer’s Disease‐Health Indices (AD‐HI): Development of Two Novel Outcome Measures for Use in Clinical Trials
Seabury, Jamison, Arky, Abigail, Ayles, Megan, Dilek, Nuran, Hance, Margaret, Rosero, Spencer, Santos, Elizabeth, Weinstein, Jennifer, Varma, Anika, Heatwole, Chad
Published in Alzheimer's & dementia (01.12.2022)
Published in Alzheimer's & dementia (01.12.2022)
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Journal Article
DEVELOPMENT AND VALIDATION OF THE CROHN'S DISEASE-HEALTH INDEX (CD-HI), A CLINICALLY-RELEVANT, DISEASE-SPECIFIC PATIENT-REPORTED OUTCOME MEASURE
Seabury, Jamison, Weinstein, Jennifer, Rosero, Spencer, Varma, Anika, Wagner, Ellen, Zizzi, Christine, Dilek, Nuran, McDermott, Michael, Kaat, Aaron, Saubermann, Lawrence, Temple, Larissa, Rogoff, Scott, Heatwole, Chad, Rose, Zach
Published in Gastroenterology (New York, N.Y. 1943) (01.02.2022)
Published in Gastroenterology (New York, N.Y. 1943) (01.02.2022)
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Journal Article
DEVELOPMENT AND VALIDATION OF A PATIENT-REPORTED OUTCOME MEASURE FOR CROHN’S DISEASE: THE CROHN’S DISEASE-HEALTH INDEX (CD-HI), A FULLY VALIDATED TOOL TO BOLSTER CLINICAL TRIAL AND RESEARCH INFRASTRUCTURE
Rosero, Spencer, Varma, Anika, Seabury, Jamison, Weinstein, Jennifer, Wagner, Ellen, Zizzi, Christine, Engebrecht, Charlotte, Kaat, Aaron, Luebbe, Elizabeth, Dilek, Nuran, Heatwole, John, Saubermann, Lawrence, Temple, Larissa, Rogoff, Scott, Heatwole, Chad
Published in Gastroenterology (New York, N.Y. 1943) (01.04.2023)
Published in Gastroenterology (New York, N.Y. 1943) (01.04.2023)
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Journal Article
DEVELOPMENT AND VALIDATION OF THE CROHN’S DISEASE-HEALTH INDEX (CD-HI), A CLINICALLY-RELEVANT, DISEASE-SPECIFIC PATIENT-REPORTED OUTCOME MEASURE
Seabury, Jamison, Weinstein, Jennifer, Rosero, Spencer, Varma, Anika, Wagner, Ellen, Zizzi, Christine, Dilek, Nuran, McDermott, Michael, Kaat, Aaron, Saubermann, Lawrence, Temple, Larissa, Rogoff, Scott, Heatwole, Chad, Rose, Zach
Published in Inflammatory bowel diseases (22.01.2022)
Published in Inflammatory bowel diseases (22.01.2022)
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Journal Article
Patient-Reported Impact of Symptoms in Friedreich Ataxia
Seabury, Jamison, Alexandrou, Danae, Dilek, Nuran, Cohen, Brittany, Heatwole, John, Larkindale, Jane, Lynch, David R, Park, Courtney, Rosero, Spencer, Subramony, Sub H, Varma, Anika, Wagner, Ellen, Walther, Susan, Weinstein, Jennifer, Wells, McKenzie, Zizzi, Christine, Heatwole, Chad
Published in Neurology (21.02.2023)
Published in Neurology (21.02.2023)
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Journal Article